Long distance vision

[jeatak]

I have both near and far distance problems that vary depending on the time of day and also from day to day. Mestinon does not help very much with my vision problems. I can see fairly well in the morning and my vision gets more double throughout the day. I wear a prism on my Right eye glass lens that is quite helpful.

[Alan53]

Anacrusis
I was on steroids for the first year which did improve my vision I no longer drive as I now have a fear of being in a car even a bus due to always seeing things come at me which even thou I know isn't real
I'm not on any medication mestinon never really helped me
It's only in the right eye
Alan

[Anacrusis]

Thanks Quandry, Jana, Heat Intolerant, Jeatak and Alan

These are exactly the nuances of fluctuations and fine details I was interested in......

Nice experiment Jana! - I can just picture you swiveling around and around until you get the answers you are looking for!!!!

Heat Intolerant - I hope you don´t mind but I smiled a LOT when I read yours!

[jana]

Originally Posted by Alan53

Anacrusis
I was on steroids for the first year which did improve my vision I no longer drive as I now have a fear of being in a car even a bus due to always seeing things come at me which even thou I know isn't real I'm not on any medication mestinon never really helped me
It's only in the right eye
Alan

YEP!! You reminded me...............before I got prisms I was riding in the front seat one day, my sister was driving (she is an AWESOME driver). I was SOOOO nervous.......I kept on thinking cars/trucks were about to HIT us -- especially on the 4 lane when someone would pass us then return to our lane. I actually SCREAMED a couple of times! After that, I sat IN the back seat til I got prisms.

Yeah, from what I've read, Mestinon usually doesn't do much for eyes.

[Anacrusis]

Originally Posted by jana

Yeah, from what I've read, Mestinon usually doesn't do much for eyes.

That´s what I´ve read and heard mostly as well.
Jana, I wanted to share my experiment with you as well...
For me, Mestinon would get rid of 4 eyes, sharpen the horizon AND improved my short distance focus in the following way....

For example:

Time after tablet (max ever - 30 mg) and distance of book from old pair glasses:
20 min 32cm
30 min 35 cm
60 min 37 cm
90 min 49 cm
110 min 56 cm (glasses are now useless and it has now become impossible to have the book 32 cm away from the eye)

Letters on page also had´ghosts´behind them which disappeared after Mestinon.
Horizon became sharp and boats on the ocean would appear as single objects after just 20 minutes.
Positive results on every trial dose.

But what I do wonder is if its just a case of Mestinon working with vision issues in only milder cases or maybe of course it was not MG....


Anacrusis

By the way I did also have the sharper vision to the sides but spent most of my time measuring forward vision.

[jana]

Originally Posted by Anacrusis

That´s what I´ve read and heard mostly as well.
Jana, I wanted to share my experiment with you as well...

But what I do wonder is if its just a case of Mestinon working with vision issues in only milder cases or maybe of course it was not MG....


Anacrusis

By the way I did also have the sharper vision to the sides but spent most of my time measuring forward vision.

Hey, we are turning into REAL scientists, right??? GREAT experiment!

I think the literature says that Mestinon doesn't "usually" help DV......not that it "never" helps. For all I know, Mestinon COULD have been keeping me from having severe DV until this past Fall. (I was diagnosed in 2005.)

I feel pretty confident that you DO have MG.

I found this article (a good read from the neuro-opthalmologist's point of view):

http://www.aao.org/publications/eyenet/200607/neuro.cfm

“With Mestinon, you may be able to improve diplopia by 50 percent, but the patient will still have diplopia.”

However, these drugs (pyridostigmine and neostigmine) may be more effective in treating ptosis than diplopia.

[Alan53]

Anacrusis
I do not understand how their could be any doubt about your Myasthenia how on earth haven't you been diagnosed
I'm also seronegative also for the musk antibodies and failed some other
Test I'm also a odd case but was diagnosed
Just think Jana is right and it can be fun at times in seeing things differently
What helps me is a eye mask that is a gel and I use that sometimes which I keep in the freezer
Alan

[Anacrusis]

Originally Posted by Alan53

Anacrusis
I do not understand how their could be any doubt about your Myasthenia how on earth haven't you been diagnosed
I'm also seronegative also for the musk antibodies and failed some other
Test I'm also a odd case but was diagnosed
Just think Jana is right and it can be fun at times in seeing things differently
What helps me is a eye mask that is a gel and I use that sometimes which I keep in the freezer
Alan

Thanks for your opinions Jana & Alan they really mean a lot to me


Alan you reminded me of the cold - thanks! I am so good at forgetting things when symptoms start clearing up.

The oddest thing about cooling for me is that it has the most predictable effect!

It is much more predictable than heat exacerbation

Cooling worked every time to improve eye issues.

We are having sub zero temperatures at the moment and surprisingly both my symptoms and my son´s symptoms stopped at the same time.


But what I still don´t get is that when the weather gets colder we will sit inside our houses where it´s also good and warm
But yet do not get those same overbearing summer symptoms

(see my picture - it might get only 10-15 degrees warmer than that in the summertime where I live )


Enjoy your winter season...


Anacrusis

[StephC]

I recently learned that it is not just that heat makes things worse for us but that nerve/muscle communication is better in cold temperatures overall