Finally Getting Somewhere...

LisaLisa37 · 11-30-2012, 02:08 AM

Went to my pcp yesterday thinking it was going to be the same ol' thing- continue treating symptoms without pushing for a clear dx. I prepared for this appt by writing down a few things that I felt most important to address and taking copies of medical records highlighting patterns of symptoms over the years. I was surprised when she agreed that we need to be aggressive in figuring this all out. She said she has a neurologist friend who specializes in ms that she wants me to go to because my current neuro is not digging for answers. I had another emg today as another piece of the rule out puzzle and now will be seeing my new neuro in two weeks. I am so happy that I have given my new doc a chance instead of giving up. We also talked about changing some of my meds that are not doing their job. Seems silly to be taking 15 pills a day & still feel so horrible! Someone on here reminded me that I am my best advocate and it gave me the strength to push forward and stand up for what I know to be right. Sometimes we all need to be reminded that this is a marathon- not a race...things don't always happen right when we need or want them to but there are always other options than giving up. Hope everyone is well today 😊

Lynn · 11-30-2012, 05:46 AM

Gosh - 15 tablets a day and still feeling lousy? I sure hope you get some concrete answers soon!

I am so glad that your doc is listening to you, and has referred you to someone who specialises in MS. Not knowing exactly what you are fighting must be so hard - I can only imagine just how much it messes with your head.

Good luck, and keep us posted.

Regards

Lyn

Debbie D · 11-30-2012, 08:25 AM

Good for you! I believe part of the chronically ill's problems stem from the fact that we want to be considered "good" patients and don't push for ourselves.
I have found that getting OFF a lot of my meds that manage my symptoms has helped me feel a bit better.
Keep us informed and our thoughts are with you

SallyC · 11-30-2012, 10:22 AM

Good going Lisa, you little tiger.

Hope you get your answers and a little relief soon. Good luck with your new Neuro.

LisaLisa37 · 11-30-2012, 11:36 AM

I have definitely noticed my patterns of wanting to be a 'good patient'. I have never wanted to talk about the depression associated with the chronic symptoms because I didn't want it to follow me on my medical records and also didn't want my symptoms to be passed off as a result of depression. It is tricky! I also get so sick of hearing 'you look like you feel good'...what exactly does that mean?? I went to my last appt in sweats, no makeup & greasy hair and my pcp still said this to me! Any ideas on what a sick person is supposed to look like?? Lol

NurseNancy · 11-30-2012, 04:46 PM

lisa,

that is one of those comments that grate on us the most. i get it all the time too.

my hat's off to you for organizing your plan, writing it down and executing it to your dr. great job. i hope you get the changes you need.

Sparky10 · 12-01-2012, 08:31 AM

Quote:

Originally Posted by LisaLisa37

Sometimes we all need to be reminded that this is a marathon- not a race...things don't always happen right when we need or want them to but there are always other options than giving up. Hope everyone is well today 😊

You are so right, and thank you for the well-wishes! So nice to hear your pcp is listening. Also good that your neuro appointment is only 2 weeks away!