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Movement Disorders Including essential tremor, dystonia and Restless Leg Syndrome (RLS).

Anyone with Essential Tremors

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Unread 09-24-2012, 02:08 AM   #1
PRgirl53
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Default Anyone with Essential Tremors

Anyone has essential tremors not caused by Parkinsons, Myasthenia Gravis or medications?

I started having tremors in a hospital while I was almost done with H1N1 and a chronic severe pneumonia. I still get them at different times, sleeping, in a place from a oddor/smell reaction. Just for no reason or for forcing my body when I should rest. I was diagnosed with essential tremors by my neurologist ,and the meaning that they don't know the cause.

Is depressing because you never know when I will have them and how strong. Some are strongers, some are in my legs more than my arms. Some feel like inside my whole body.

To sleep they had to put me on clonopin (klonopin) and during the day that is a mild medication I have to take Ativan if it is needed.

Once in a while I get involuntary movements, but not that often.
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Unread 10-29-2012, 01:19 PM   #2
dystoniadisease
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I overcame my neurological disorder, dystonia, with the use of a combination of naturally organic whole food supplements. *edit*

Quote:
Originally Posted by PRgirl53 View Post
Anyone has essential tremors not caused by Parkinsons, Myasthenia Gravis or medications?

I started having tremors in a hospital while I was almost done with H1N1 and a chronic severe pneumonia. I still get them at different times, sleeping, in a place from a oddor/smell reaction. Just for no reason or for forcing my body when I should rest. I was diagnosed with essential tremors by my neurologist ,and the meaning that they don't know the cause.

Is depressing because you never know when I will have them and how strong. Some are strongers, some are in my legs more than my arms. Some feel like inside my whole body.

To sleep they had to put me on clonopin (klonopin) and during the day that is a mild medication I have to take Ativan if it is needed.

Once in a while I get involuntary movements, but not that often.

Last edited by Chemar; 10-29-2012 at 02:05 PM. Reason: NT guidelines
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Unread 11-01-2012, 08:58 AM   #3
ellen66
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Default Hand Tremors

I have tremors in my hands, which are worsening as I get older (I'm 66.) They seem to have started in my early 50s, but when I look back I can its beginnings in early adolescence when they'd shake badly if I was under stress.

My father had hand tremors as well, and I have a great grandfather who had them. So I know its genetic, and I think I've passed it on to my daughter and, through her, to my grandson.

I used to take one propranolol when I thought I'd need it, and it used to be very effective. Now, I take a pill a day and add more if necessary.

Not fun, but not fatal either.










Quote:
Originally Posted by PRgirl53 View Post
Anyone has essential tremors not caused by Parkinsons, Myasthenia Gravis or medications?

I started having tremors in a hospital while I was almost done with H1N1 and a chronic severe pneumonia. I still get them at different times, sleeping, in a place from a oddor/smell reaction. Just for no reason or for forcing my body when I should rest. I was diagnosed with essential tremors by my neurologist ,and the meaning that they don't know the cause.

Is depressing because you never know when I will have them and how strong. Some are strongers, some are in my legs more than my arms. Some feel like inside my whole body.

To sleep they had to put me on clonopin (klonopin) and during the day that is a mild medication I have to take Ativan if it is needed.

Once in a while I get involuntary movements, but not that often.
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Unread 11-09-2012, 03:54 PM   #4
antony38
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I've had hand tremors for over 20 years which were made worse when I was drinking a lot, since taking 10mg of Propranolol three times a day I hardly suffer at all now.
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Unread 12-02-2012, 01:50 AM   #5
jonmoor
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Default essential tremors

Quote:
Originally Posted by PRgirl53 View Post
Anyone has essential tremors not caused by Parkinsons, Myasthenia Gravis or medications?

I started having tremors in a hospital while I was almost done with H1N1 and a chronic severe pneumonia. I still get them at different times, sleeping, in a place from a oddor/smell reaction. Just for no reason or for forcing my body when I should rest. I was diagnosed with essential tremors by my neurologist ,and the meaning that they don't know the cause.

Is depressing because you never know when I will have them and how strong. Some are strongers, some are in my legs more than my arms. Some feel like inside my whole body.

To sleep they had to put me on clonopin (klonopin) and during the day that is a mild medication I have to take Ativan if it is needed.

Once in a while I get involuntary movements, but not that often.
you are not alone. i first started getting tremors when i was about to have spine surgery. at first i was sure it was due to the siatica pain which was intense. but after the surgery, when the pain subsided and the tremors were still there i began to worry. the worry turned into fear and thinking i had the deadliest diseases i could imagine as the tremors seemed to get worse daily. well, it took numerous visits to my pcp, neurosurgeon and neurologist and reassurnces from them all to finally calm down and realize that 1) yes do have et, 2) no we don't know whats causing it 3) it ain't MS or some other life threatening disease and 4) my constant anxiety over it actually makes it worse!. hang in there my friend life will get better and easier once you have accepted your condition for what it is even if you don't know the cause.
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Unread 05-16-2013, 02:31 AM   #6
nmdicke2
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I am 66 and have had hand tremors since I was was in nursing school in my twenties and learning to give patients injections. Whoa! Patients were somewhat concerned that this shaking nurse was going to give them a shot. Really? But I just went ahead with what I had to do and made a joke of it or gave reassurance to the patient.

Tremors are much worse when I am afraid or angry. A neurologist prescribed propranolol for me and it helps some, but if I take too much my blood pressure falls out. Its not a big problem and doesn't keep me from living my life. Some of my friends in their 70's tremble quite badly and can't write legibly. One person had a little brain surgery that helped quite a bit.
I hope you will explore some techniques to learn to quiet your mind and body; that could help; maybe not. When/if my trembling gets worse I'll try meditation again, yoga, and other non-drug solutions. I do understand and wish for you to accept your challenges.
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Unread 05-19-2013, 03:49 AM   #7
Llafree136
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I was just diagnosed with essential tremor..then.Parkinson s and then he went back to essential tremor (pardon the typos..tremors don't help lol) mi had onset at 22 and it started in my right hand amd over the yeats (I'm 29 now) it moved to both hands but mg right hand clearlg shakes more than my right. my neuro gave me a 2 day treatmengt of 1000mg/day tthru an iv of solu-medrol to 'see what it would do' which was nothing. so he prescribed me propanolo but told me in mg case that ill be lucky if my tremors go away even '40%'. At my first appt, i only knew Parkinson. was on my moms side with my great aunt. by my second appt id learnned that mg bio grandpa/uncle/his son and then another second cousin all had/have parkinsons. yours sounds diffefent than anything I've experienved or researched of coming and going. Its so hard to explain to people that dont experience these tremors what its like for ghe unexpected ..I'm so thankful. i found this site!! Again, sordy coe fhe typos..i shouldn't be doinv this crom my phone..its even more of a challenge. lol
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Unread 05-19-2013, 05:50 PM   #8
MissMarbles
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I've had essential tremor since I was about 19. I'm in my mid-30's now and realize it is getting worse and has caused me some embarrassment. Some activities are difficult when the tremor is bad, like using a spoon. I've now made the decision to take medication (propranolol) on a prn basis.
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Unread 06-12-2013, 11:09 PM   #9
ETguywithDBS
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I've had essential tremors since I was 4. It started in my right hand and by age 6 it was in both hands. I'm 45 now. It hasn't always been easy but I've coped with it pretty well through years. As you age it tends to get worse. I've tried various drugs over the years to no avail. I been fortunate enough to see some the top neurologists in the country at Havard, Wake Forest, and University of Florida. I've learned a lot over years about ET. I finally made the decision to have Deep Brain Stimulation surgery to correct the problem. The completion of surgery was last Friday. I have a stimulator in my chest attached to wire that's embedded in the my left brain. For the first time in 41 years my right hand doesn't shake. I'm able pick up a cup filled to the brim without spilling. I'm able have soup with spoon instead of a straw. I'm able to bring food to my mouth instead of bringing my mouth to my plate. I plan on having the other side done later this year.
I say all of this, to let you know your not alone. There are plenty of us out here that understand frustration, embarrassment, and helplessness that you feel. Fortunately there are solutions to help you cope. Many people found medications that work for them with little to no side effects. Others like myself have found surgery to be the best option.

I did address a couple of things in this thread that I learned from my doctors. Essential Tremor is disorder and Parkinson's is separate disorder. They're not related. They appear in different parts of the brain. Yes, they both have tremors as a symptom. Just as you could have fever from the flu or a cold. The fever is just a symptom of two different diseases. The tremors with Parkinson's are different from the tremors with Essential Tremors. Parkinson's patients are encouraged to exercise to lessen their tremors. ET tremors get worse with exercise. Parkinson's tremors happen all the time. ET tremors don't occur when you sleep.
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