Go Back   NeuroTalk Support Groups > Health Conditions M - Z > Reflex Sympathetic Dystrophy (RSD and CRPS)

Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Cleveland clinic

Reply
Thread Tools Display Modes
Unread 12-03-2012, 07:42 PM   #1
Tedd
New Member
 
Join Date: Sep 2012
Posts: 3
Default Cleveland clinic

Has anyone ever gone to the Cleveland Clinic for there RSD ? I was told the doc's there are very good for treating RSD.
I have had RSD in my right hand and arm for 2yrs.
Tedd is offline   Reply With Quote
Unread 12-04-2012, 11:00 AM   #2
daylilyfan
Member
 
Join Date: Oct 2006
Location: ohio
Posts: 399
Default

If you are in Ohio, or near Ohio, there is a Facebook group for RSDers. Lots of good info on doctors etc. several people, including myself, have been to various doctors at Clev. Clinic.

If you contact the RSDSA, Jim can give you the info on joining the FB group.

It is nearly 3 hours drive one way for me, and it is to painful and difficult for me, so I have stopped going. I am hoping to find someone closer to me.

The Occupational Therapy department was great to work with. The only place I have gone where they did not make me worse, and actually improved my range of motion.
daylilyfan is offline   Reply With Quote
"Thanks for this!" says:
Tedd (12-14-2012)
Unread 12-04-2012, 12:58 PM   #3
alaska49
Member
 
Join Date: May 2009
Location: Pennsylvania
Posts: 191
Default

I can only speak for my experience but mine was a nightmare. I just would not attend the 4 week pain program as for me it was not just worthless the doctors everyday tried to humiliat me or make me feel like this is all in the head. Even the patient that were there with just back pain the doctors told them it was in the head and if they stopped thinking of it, it would vanish. Then during group talking when the doctor would ask for us to share, people would talk about things that scared them and stuff and the one doctor that ran it would sit there rolling his eyes about the topics.

I did see Dr Hicks who was good. if you do go there make sure to go to a pain specialists as I was first sent to the neurologists and they believe RSD is a made up disease to get medecine.

Iam sure out of the whole institute there are good doctors, its just like anywhere some are good doctors and some are nightmares.

Niki
alaska49 is offline   Reply With Quote
"Thanks for this!" says:
Tedd (12-14-2012)
Unread 12-04-2012, 01:58 PM   #4
daylilyfan
Member
 
Join Date: Oct 2006
Location: ohio
Posts: 399
Default

Niki - I think you are right. There are good and bad doctors at each hospital/clinic.

I've heard that Dr. Hayek (sp??) is very good there, and does ketamine infusions. I've not seen him, but I'd like to.
daylilyfan is offline   Reply With Quote
"Thanks for this!" says:
Tedd (12-14-2012)
Unread 12-06-2012, 07:49 PM   #5
Freshh20
Junior Member
 
Join Date: Oct 2012
Location: Ohio
Posts: 22
Default

Quote:
Originally Posted by Tedd View Post
Has anyone ever gone to the Cleveland Clinic for there RSD ? I was told the doc's there are very good for treating RSD.
I have had RSD in my right hand and arm for 2yrs.
Hey my doctor wanted to put me into the Cleveland Clinic for my RSD in my right leg and foot. However I heard it was a total nightmare and that they just treat rsd as any other nerve damage issue, and that they push you through the pain. Which as we all know, is TERRIBLE. So I got put into the pain clinic at a branch of Akron Childrens Hospital. Now I don't know your age, I am only 17 so it works for me, but if you are close to my age you would be accepted. I would recommend it very much. Not just the therapy, Ot and PT, but they actually treat the people well and know there is an extent to the work we can do.
Freshh20 is offline   Reply With Quote
"Thanks for this!" says:
Tedd (12-14-2012)
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
had the daTscan at cleveland clinic harley Parkinson's Disease 10 09-12-2011 09:10 PM
Back from Cleveland Clinic and more confused then ever :( Patti_Christmas Reflex Sympathetic Dystrophy (RSD and CRPS) 13 08-04-2011 11:23 PM
Just returned from Cleveland Clinic kpRN Peripheral Neuropathy 14 07-02-2010 08:09 AM
Cleveland Clinic squirrel154 Arnold Chiari Malformation & Syringomyelia 2 04-16-2009 03:20 PM
Cleveland Clinic/PM doctors in WNY superduck95 Reflex Sympathetic Dystrophy (RSD and CRPS) 11 02-23-2009 09:28 AM


All times are GMT -5. The time now is 07:17 PM.
Brought to you by the fine folks who publish mental health and psychology information at Psych Central Mental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.


Powered by vBulletin • Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.


All posts copyright their original authors Community Guidelines Terms of Use Privacy Policy
NeuroTalk Archives