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New PN Treatment

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Unread 10-12-2012, 09:32 AM   #31
Stillfighting
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Since this appears to be the same treatment I posted about on "A new treatment my cousin is doing", you can follow my experience on that thread.
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Unread 10-13-2012, 09:25 PM   #32
bananababe
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Quote:
Originally Posted by mrsD View Post
You might want to try the gluten free diet, for at least 3 months and preferrably 6 or more. It can take a while to clear the gluten reaction.
Some people react to gluten with PN symptoms. Since you added whole grains to the diet, and had a flare, I'd seriously consider gluten as a trigger.

https://sites.google.com/site/jccglu...eralneuropathy
hmmm... this must another one of those hidden things like even if I've tested negative for celiac's, the neuropathy could be indicative of a sensitivity. Thanks for the link!
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Unread 12-05-2012, 07:44 AM   #33
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For those who kindlly report this technique and plan to use it in PN, will you please update us on your personal results? "Procdures" are a major cash cow for pain centers, and the "latest, greatest" unproven ones are targeted at those of us for whom there are no clear treatments. Thanks!
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Unread 12-05-2012, 08:05 AM   #34
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Quote:
Originally Posted by drdave View Post
For those who kindlly report this technique and plan to use it in PN, will you please update us on your personal results? "Procdures" are a major cash cow for pain centers, and the "latest, greatest" unproven ones are targeted at those of us for whom there are no clear treatments. Thanks!
Here is one:
http://neurotalk.psychcentral.com/thread175982.html

The Rebuilder has had spotty responses here. If you search
"Rebuilder" in our search engine you can see them. Some of the comments were brief...and those people did not stick around.(over the last 6 yrs). Rebuilder was also discussed at another location where we all used to gather, but that site crashed and the posts are lost.

Basically I avoid these types of things, myself.
You can do epsom salt baths without the Rebuilder and they are quite effective in reducing symptoms.

You can do Lidoderm patches, placed well, and get relief as well.

I am hopeful that new drugs affecting the Nav1.7 channel may be useful for PNers. Something with less side effects than what we have now:
http://neurotalk.psychcentral.com/sh...ghlight=Nav1.7
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Unread 12-05-2012, 11:43 AM   #35
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I too am hopeful that Nav1.7 treatments come very soon. I am not thrilled about potentially losing smell but I will take that trade-off over what I have now. It also appears Nav1.8 and Nav1.9 are also potential treatments to watch out for.

Here is a great article to bring folks up to speed on the latest research. I hope to be put on each of these company's email lists the moment a treatment is available.

It seems Dr. Stephen Waxman is one of the key players to watch.
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