Hydrocephalus n' Loneliness

[jats]

Originally Posted by lcms0516

I have congenital hydrocephalus. I was married for 8.5yrs. My (ex)wife left me at 4.75yrs. into the marriage. A year after my (ex)wife left, I found out that my (ex)wife had wanted my health problems to 'just go away'. That ignorant attitude is why my (ex)wife freaked when I had a seizure. So I divorced her after 8.5yrs.. Four years after that, my long held suspicion about her health was confirmed, so I was vindicated. I could no longer be looked at as the sole problem in the marriage.

I was engaged to another woman after my marriage. But when I held her accountable for her behavior(Bi-Polar II), she was quick to 'diagnose' me.

elAm I due to die alone because people can't cope with my health?

I also have hydrocephalus my husband things i should control my moods and the hydro is no big thing and will just go away not much I can do with his out support im alone with it.

[jats]

You are so lucky to have a wonderful man married 24 years hes thinks this no big thing I get scared when have a promblem HUGS To YOU BOTH

[kl2568]

Originally Posted by lcms0516

What is the name of the support group on Facebook.

I have been engaged since 2007, but the reason for my original post has to do with, feet.

It is actually women with hydrocephalus and life with hydrocephalus. There is this guy named ron who will give you friend suggestions from people in your area as well. It is fascinating and everyone is so nice and understanding.

[lcms0516]

Originally Posted by kl2568

It is actually women with hydrocephalus and life with hydrocephalus. There is this guy named ron who will give you friend suggestions from people in your area as well. It is fascinating and everyone is so nice and understanding.

The 'Women With Hydrocephalus' group is restricted. But I do know who Ron Patrick Kelleher is.

I did go to a hydrocephalus support group over the summer, with my father. He had largely left knowledge of my health up to my mother for my entire life. To the point that, if I did start to have a seizure, or start vomiting, he would probably call my mother. He stayed away from it. The group meeting we went to, was mostly parents with, kids no older than 15, that had hydrocephalus. There weren't any adults with hydrocephalus in attendance, other than me.