Go Back   NeuroTalk Support Groups > Health & Related Topics > Medications & Treatments > SCS & Pain Pumps

SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.

My SCS for Thalamic Pain Syndrome

Reply
Thread Tools Display Modes
Unread 12-10-2012, 11:59 AM   #1
Poko
Junior Member
 
Join Date: Sep 2006
Location: USA
Posts: 7
My Mood:
Default My SCS for Thalamic Pain Syndrome

I have great results so far.

I have had widespread CRPS since 1993. Suffered a Brainstem Stroke in 2010 caused from side effects of one of my pain medications. Re-gained most function back within the first week. About two weeks out Thalamic Pain Syndrome hit on the entire Rt. Side.. (This pain is like RSD on steroids). Only after a large variety of pain therapies fail, I qualified for a SCS.
This was implanted in April 2012. It took several trips back for programing tweeks to get max coverage for my leg and arm pain. I have three different programs to choose from depending on the type activity I do.

This unit has 6 positional change sensors that auto re-adjust my desired settings. Really cool techy stuff, I can adjust the pulse width and rate with one of the programs. It took a lot of devotion from the clinic staff for all the tweeks and added programs.

Later this week I start a trial with a second SCS unit which should cover the pain of rt. Half of my chest/abdomial area, side and back.

Granted my neurostimulator does not kill all the pain all the time, but it sure has made my life more bearable to be more active and less in brain fog by have reduced and stopping some of my medications.
Poko is offline   Reply With Quote
"Thanks for this!" says:
eva5667faliure (12-10-2012), Hannabananna (12-10-2012), Mark56 (12-12-2012), Rrae (12-12-2012)
Unread 12-12-2012, 04:47 PM   #2
Rrae
Grand Magnate
 
Rrae's Avatar
 
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,109
My Mood:
Smile Hi Poko!

Welcome!

So, you're going for 2 SCS's! There are a few others here who have 2 and I'm sure they'll give you some support.
I'm glad to hear that your first one is doing you good. It's amazing isn't it? Mine has brought me a quality of life that I thought I'd never get back!

I'm sorry about the stroke you had. My dad had a thalamic stroke about 15 yrs ago. NObody could figure out what happened to him. Doctors were scratching their heads. They just looked at him like cows looking at a new gate.
We find out that the thalamus is smack dab in the middle of the brain. wow!

I'm also sorry that you've been hit with this nasty CRPS.
I don't think there is anything more frustrating than this.
I'm from a small community and most people just give me that look...."oh, you poor baby. you can't handle pain"
Well, this forum sure is a lifesaver.
The people here are wonderful, caring, understanding, supportive. We're all in this together, which somehow makes things seem a lot less horrible

Please stick around and let us know how your upcoming trial goes!

Rae
Rrae is offline   Reply With Quote
"Thanks for this!" says:
eva5667faliure (12-13-2012), Mark56 (12-12-2012), Poko (12-13-2012)
Unread 12-12-2012, 05:27 PM   #3
tkayewade
Member
 
Join Date: Jun 2012
Location: Texas!!!
Posts: 326
My Mood:
Default

Interestingly enough, I'm consulting with my dr. Next month for a cervical to match my thoracic for crps as well. I hope it works as well there as it does on bottom!!

Wish you well!! I'm hoping for some input too!!
tkayewade is offline   Reply With Quote
"Thanks for this!" says:
eva5667faliure (12-13-2012), Mark56 (12-12-2012), Rrae (12-13-2012)
Unread 12-13-2012, 11:20 PM   #4
Poko
Junior Member
 
Join Date: Sep 2006
Location: USA
Posts: 7
My Mood:
Default

Procedure went well. Now have 4 leads inserted. Awesome coverage so far.

Poko is offline   Reply With Quote
"Thanks for this!" says:
eva5667faliure (12-14-2012), Mark56 (01-30-2013), Rrae (12-14-2012)
Unread 12-14-2012, 04:21 PM   #5
Rrae
Grand Magnate
 
Rrae's Avatar
 
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,109
My Mood:
Laugh Wonderful!

Great news Poko!!

So happy things went well during the procedure. Course, you are a veteran of this by now so you knew what was happening and how to communicate to the Dr and Rep.

This unit has alot of ground to cover, so we want these babies (leads) to stick! Are you going for the laminectomy when it's time for the permanent?

Please let us know how you are doing throughout this trial!

Rae
Rrae is offline   Reply With Quote
"Thanks for this!" says:
eva5667faliure (12-14-2012), Poko (01-30-2013)
Unread 01-30-2013, 01:03 PM   #6
Poko
Junior Member
 
Join Date: Sep 2006
Location: USA
Posts: 7
My Mood:
Default Second neurostem implant completed

So far the second implant is doing very good. Surgery was a week ago. ??? Laminectomy... that sounds pretty invasive. My procedures used an epidural needle at T9-10 and T10-11 for lead insertion.

Last year insertion points at T5-T6 and L2-L3
Poko is offline   Reply With Quote
"Thanks for this!" says:
Rrae (01-30-2013)
Unread 01-30-2013, 10:20 PM   #7
Rrae
Grand Magnate
 
Rrae's Avatar
 
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,109
My Mood:
Default Wow!

Poko, you rock!

You've been thru an amazing amount of medical trauma, in which I'm sure had your doctors scrambling. I keep thinking back on what my dad went thru when he had his thalamic stroke......he swore he saw a glimpse into hell itself.
I'm so happy to hear that you are getting on well with these devices.
Thanks so much for the update. I hope your pain levels are being managed well.
What percentage of relief would you say you get? I know it's probably too soon to know for sure with this most recent one.

Rae
Rrae is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Central Pain Syndrome pono Chronic Pain 32 11-29-2014 01:13 AM
Central Pain Syndrome - Electric Shock Pain Truebluebird General Health Conditions & Rare Disorders 1 04-22-2011 06:35 AM
Central Pain Syndrome Dakota Peripheral Neuropathy 18 01-13-2008 08:22 AM
Anyone with myofascial pain syndrome? slogo Fibromyalgia and Chronic Fatigue 21 08-08-2007 04:43 AM
Modulation Of VPM Thalamic Units By The Locus Ceruleus DocJohn Health News Headlines 0 09-29-2006 06:00 AM


All times are GMT -5. The time now is 05:31 AM.
Brought to you by the fine folks who publish mental health and psychology information at Psych Central Mental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.


Powered by vBulletin • Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.


All posts copyright their original authors Community Guidelines Terms of Use Privacy Policy
NeuroTalk Archives