Sad news

[Jackiey]

So sorry this didn't work, but I'm sure there is something else that can be done. Keep positive..........

[Saffy]

Thank you one and all. I've sorta got my head around it now. It wasn't meant to be.

The will meet to discuss other things but I'm not pressing them. Don't want them messing around with my brain with tha deep brain stimulation .. I had encephalitis when I was a cold and don't want anyone messing around up there unless I'm Jan road traffic accident .. What I mean is, it's not my elective choice.

Back home in my snuggly bed . Very up but. Dont think that's a bad thing for the first few days.

Wee wee is back to normal .. My us band is soooo relieved.

When they removed my cannula yesterday the blood shot up to my face .. Looked like a great stage problem. As long as I have tootle, my little mobility scooter, all is well.

So nice to be home with the Christmas tree up and my family.

And now my friends I must sign off before I fall asleep typing. Xx

Still smiling x x

[Sandy Kay]

So sorry Karen. Glad your home with your family for Christmas. Praying there will be other options in the days ahead.
Merry Christmas
Sandy

[Rrae]

Karen, you're sounding very good about everything and taking it well. This leaves you wide open to other possibilities - this ain't over yet my friend!

Rae

[Hannabananna]

sounds so nice to be cuddled in...warm...and a tree too!!

I share the disappointment with you and so agree that it could not have been your highest option..

as you rest the body please let out the emotions that go along with the let down....sometimes for me it is not a cry...just a deep breath of morning air, quiet,stillness, being in nature...it helps me find the gratitude of living.

in prayer for you
Johanna

[Saffy]

I knew there was a big chance he would be unable to get the paddle in .. Told you all I heal quickly .. But there was that little bit of hope.
I'm taking some time out from being desperate for so etching else to help; it only screws with my head.

If I have to stay on the meds I will.

I have a caring family who hold me in their arms and caring friends from afar that I have never met.

I have a wheelchair, crutches and a mobility scooter, so I'm not stuck in.

This wasn't a cure was it? It was only an aid, together with my meds .. If it had been a cure I would,probably be feeling totally gutted.

I'm still smiling .. And hey, it's nearly Christmas. X

[Spiney95]

Originally Posted by Saffy

I knew there was a big chance he would be unable to get the paddle in .. Told you all I heal quickly .. But there was that little bit of hope.
I'm taking some time out from being desperate for so etching else to help; it only screws with my head.

If I have to stay on the meds I will.

I have a caring family who hold me in their arms and caring friends from afar that I have never met.

I have a wheelchair, crutches and a mobility scooter, so I'm not stuck in.

This wasn't a cure was it? It was only an aid, together with my meds .. If it had been a cure I would,probably be feeling totally gutted.

I'm still smiling .. And hey, it's nearly Christmas. X

Hang on to the positive thoughts. Things could be worse. I am preaching at myself more than you. We do have wheelchairs and crutches and mobility scooters. I love my scooter. If the weather is decent and the pain levels are down a bit, it is such a joy to get out in the sun and ride around. I purposely chose an apartment across from the hospital so I could drive myself over there for testing etc. What a blessing.

I have been a chronic pain patient since 1976. There have been so many improvements in pain mgt since then. Sadly, my degeneration has stayed ahead of the improvements. My convaluted point is that there is hope ahead. I believe our day is coming. Enjoy the tree and family. They, too, are a blessing. Hugz.

[Saffy]

Aww thank you muchly.

All my stitches have come out .. Had a bit of a heavy bleed but it's settled down now. Did the silly of feeding the rabbits and tried to climb over the fence, caught my back foot on the fence and did a skip, hop into the cage and felt something "go" .

I pulled the string gently and about 8 inches came out. Oops.

Bled heavily for a short time but it's ok now. Had a shower and staying in bed to allow everything to settle.

[Spiney95]

Originally Posted by Saffy

Aww thank you muchly.

All my stitches have come out .. Had a bit of a heavy bleed but it's settled down now. Did the silly of feeding the rabbits and tried to climb over the fence, caught my back foot on the fence and did a skip, hop into the cage and felt something "go" .

I pulled the string gently and about 8 inches came out. Oops.

Bled heavily for a short time but it's ok now. Had a shower and staying in bed to allow everything to settle.

We don't learn, do we? The last time I had spinal surgery it was a bi-level disc/lam with lots of hardware revision. Mr Wonderful took off on a "business trip" as soon as they decided I was going to live and didn't come home until three days after my discharge from rehab. I arrived home to at least a week's worth of dirty laundry and a kitchen beyond description. I was "home alone" and wasn't about to look at that mess for an undetermined period of time so I rolled up my sleeves and went to work. I hope I will never be that unwise again.

I may be alone now but at least I am in control of my situation. The place will be clean when I leave for the implant on the 26th and it will be clean when I come home from spending a few days with my daughter. Try to behave. Hugz.

[ger715]

Saffy,

You are right on.....no messing with your head. From experience, I found acceptance to be the answer to prayers. Had Spinal fusion and laminectomy. Also, a failed SCS.

Unfortunately, or fortunately (depends on how you look at it), the meds are a way of life for me; but once I accepted the pain was going to be a big part of my life; am grateful for the meds that help me get thru each day.

As you said, you have the support of your family. What a gift !!! I very much enjoy my family and they enjoy the time we spend together.

You have much to be grateful about. Enjoy !!!!

Gerry