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Cpap/bpap

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Unread 12-17-2012, 09:42 AM   #1
singergal64
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hi there!
Has anyone else had to get a BPAP or CPAP machine since having MG? My breathing at night is terrible. I had a sleep study and that confirmed it.
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Unread 12-17-2012, 09:48 AM   #2
alice md
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Originally Posted by singergal64 View Post
hi there!
Has anyone else had to get a BPAP or CPAP machine since having MG? My breathing at night is terrible. I had a sleep study and that confirmed it.
I have had a bipap/respirator for the last 4 years.
My life would have been very different without it.
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StephC (12-20-2012)
Unread 12-18-2012, 07:42 AM   #3
StephC
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I also did sleep study and am waiting for call now to get machine. My neuro says very common with MG and using machine should provide significant help with general well being.
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Unread 12-18-2012, 09:25 AM   #4
singergal64
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Thanks so much for your input here. This is a great site! Glad to know that as far as MG'ers go this is normal. All the best for this holiday season to you all!
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Unread 12-18-2012, 06:57 PM   #5
Juanitad
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I can't sleep without my cpap. I take it with me even if I'm going to be away from home for 1 night. I have tried to sleep without it and just can't do it. I wake myself up because I can't breathe. I've been using it for about 12 years and am on my second machine. It takes a little time to get used to wearing it at night, but keep on trying and you will find the mask that works best for you. Good luck!
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StephC (12-20-2012)
Unread 12-19-2012, 08:36 AM   #6
singergal64
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thanks again for all of the encouragement!
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Unread 05-01-2013, 03:24 PM   #7
Cherokee23
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Originally Posted by StephC View Post
I also did sleep study and am waiting for call now to get machine. My neuro says very common with MG and using machine should provide significant help with general well being.
I was placed on a Cpap after a sleep study diagnosed obstructive sleep apnea five years ago. I was diagnosed with MG two years ago and I am now finding it increasingly harder to sleep/breathe with the Cpap. My mask feels great so that is mot the problem. In the mornings my chest hurts and my breathing muscles feel exhausted. I've been reading that BiPap is better for MGers. Has anyone had to go from the Cpap to the bipap because of MG?

Cherokee23
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Unread 09-27-2013, 11:12 AM   #8
grassahop
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Originally Posted by singergal64 View Post
hi there!
Has anyone else had to get a BPAP or CPAP machine since having MG? My breathing at night is terrible. I had a sleep study and that confirmed it.
I have just been put on a BiPap machine, kind of tough getting used to it.....but I have severe sleep apnea & some COPD.....
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