Go Back   NeuroTalk Support Groups > Health Conditions M - Z > Traumatic Brain Injury and Post Concussion Syndrome

Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

15 months Post Injury

Reply
Thread Tools Display Modes
Unread 12-17-2012, 04:28 PM   #1
Poppy's mum
New Member
 
Join Date: Dec 2012
Posts: 1
Question 15 months Post Injury

Hi guys,

I hope that you can give me the benefit of your experience!

I have PCS as the result of a bike vs car accident over 15 months ago, the impact was directly to the front of my forehead - my helmet was totally ruined but this was my only injury. the first few months after the accident i was quite fatigued, confused, unable to think logically, i had trouble following conversations and with light and noise, i was often spatially confused and suffered a lot of headaches but over tiem I felt that i was getting better.

About 4 months after the accident my partner and I took over the management of a medium sized hotel. I thought that I was coping fine but as the stress increases and people want more from me I find i am getting much much worse, I am often tired and confused, i can't focus on tasks, I struggle with simple things that i do everyday (eg feed the wrong food to the wrong animals), my sleep patterns are disturbed, my thoughts are scattered and i have awful headaches and creeping sensations over my head. I am also gettign quite depressed as I am unable to particiapte in life and even just talking to people gets me tired.

I would like to just "drop out" for a while and focus on getting really better but this isn't practical, but now I am wondering if I am doing myself additional harm by pushing myself? CT scans and hormane balances are normal.

I find that small amounts of alcohol help me - it seems to untwist my brain and let me relax. Is this common?

does anyone have any experience/success with natural therapies (eg movement therapy, chiropractors etc)? i have heard that they can help re-orientate the brain.

thanks
Poppy's Mum
Poppy's mum is offline   Reply With Quote
Unread 12-17-2012, 06:52 PM   #2
todayistomorrow
Junior Member
 
Join Date: Dec 2011
Posts: 83
Default

I will tell you my brief experience with chiro and movement therapy. I have only done 3 appointments but I don't trust it and think it's mostly a scam. I've seen no improvement in symptoms and they just want you to sign up for a 12 week plan. I know how hard it is when you're feeling like crap and will try anything to find some relief but this semes like it's all placebo effect.

I had good experience with Acupuncture and if you feel stress(which who doesn't with PCS), this might help your symptoms a lot. It's a lot cheaper and I felt like a different person the next day. Good luck if you end up trying, just make sure you are aware of all the costs and risks of chiro.
todayistomorrow is offline   Reply With Quote
Unread 12-17-2012, 07:28 PM   #3
rmschaver
Member
 
Join Date: Jul 2012
Location: virginia
Posts: 484
Default

You need to practice quiet rest. Hopefully you have not settled over the accident!!! You are suffering from PCS obviously. But as you have noticed it is affecting multiple facets of your life. Alcohol is a NO-NO as are several other things. Over stimulation will prolong your recovery. At 15 months you are well outside the parameters for a concussion.

PCS or mTBI is highly probable. If your doctor is not treating you for such you should find a different dr. Be careful and cautious identifying the new Dr as more treat concussion or mTBI as something that resolves with rest. Quiet rest, good nutrition, care for any cervogenic issues. Search out nutrition in this sub-forum for suggestions. You might want to google tbilaw and read up on the survivors guide.

If you have questions ask, we hear and understand what you are going thru.
__________________
49, Male Married, PCS since June 2012, headaches, Back pain, neck pain, attention deficit, concentration deficit, processing speed deficit, verbal memory deficit, PTSD, fatigue, tinutitus, tremors.

To see the divine in the moment.
rmschaver is offline   Reply With Quote
Unread 12-18-2012, 01:36 AM   #4
Mark in Idaho
Elder
 
Mark in Idaho's Avatar
 
Join Date: Feb 2009
Location: The Treasure Valley of Idaho
Posts: 6,582
Default

Poppy's mum,

Welcome to NeuroTalk. Sorry to hear of your accident and injury.

My first impression is that you wrongly think your only injury was the concussion. Any concussion also includes a stress or outright injury to the neck. Unless neck injuries get treated, often the concussion symptoms will persist at a magnified intensity.

Chiro can be helpful but the many different techniques can make finding good treatment difficult. Also, some physical therapists/physiotherapists can help with neck traction and manipulation and some can help with myofacial release treatments.

Until you find help with these therapies, you should start some self therapy with icing your upper neck and any area with tenderness.

It is very unlikely that you are causing more damage to you brain. You are delaying you recovery. As mentioned by rmschaver, you need quiet rest. This means minimal cognitive and physical activity. Running a hotel sounds rough unless you can stay in the back office and minimize guest contact. Phone contact with a head set may be acceptable.

You need to try to forget about your normal activities unless you can set your own time schedule. Trying to keep up with a preset schedule is too stressful. When you need to do a task like feeding animals, try to go slow and act with purpose. This is a skill you should master. Sometimes, we call it "Stop to Think" or "Stop to Act." Trying to go on like you used to with the same momentum as before will be problematic.

In time, you can return to your prior level of activities. But, you likely need to plan on a month or two of quiet rest with very moderated activities.

The 'vitamin supplement' thread will give you some ideas of how to provide good nutrition to your brain. The injured brain needs additional nutrition to help it flush the injury toxins before it can start to heal.

Please feel free to post any struggles you are having.

My best to you.
__________________
Mark in Idaho
.


59 years old, retired due to disability, married 34 years, father of three, grandfather of four, Suffered a serious concussion at 10 years old (1965) stopped most driving after concussion at 46 years old (2001), Post Concussion Syndrome/Multiple Concussion/Impact Syndrome with PTSD, immediate/short term visual and auditory memory problems, slowed processing speed, visual/auditory processing difficulties, insomnia, absence seizures, OCD, 14 concussions since first concussion at 8 years old, Taking paroxetine for 14 years and gabapentin for 12 years. Added L-Tryptophan and stopped paroxetine after 3 months of tapering. I currently take 500 mgs of L-Tryptophan AM, 500 mgs noon, and 500 mgs PM.


As of Nov 15th, Due to high stress issues resulting in PTSD, docs put me on 3 meds. Clonazepam but only for 30 days ) .125 mgs twice daily (Doc presc. .25 mgs 2x daily but half a tablet is good) , citalopram (Celexa), an SSRI , and olanzapine (Zyprexa), an atypical anti-psychotic that usually causes weight gain before bed. I lost over 30 pounds since mid July. It just stopped the weight loss. Took me off the gabapentin. I am feeling better than I have in years.

This great feeling only lasted a month. Back to the same old PCS doldrums.

May 2014, I am off the olanzapine due to a 6 fold price increase. Back on 600 mgs of gabapentin before bed.

I am also taking L-Theanine to help with GABA regulation


"Be Still and Know That I am God" Psalm 46:10
Mark in Idaho is offline   Reply With Quote
Unread 12-18-2012, 10:39 AM   #5
Lightrail11
Member
 
Join Date: Mar 2012
Location: Phoenix AZ
Posts: 478
My Mood:
Default

Quote:
Originally Posted by Poppy's mum View Post
I find that small amounts of alcohol help me - it seems to untwist my brain and let me relax. Is this common?

does anyone have any experience/success with natural therapies (eg movement therapy, chiropractors etc)? i have heard that they can help re-orientate the brain.

thanks
Poppy's Mum
Hi and welcome. In addition to to the great advice above, alcohol can inhibit your recovery:

http://www.msktc.org/tbi/factsheets/...c-Brain-Injury

http://www.tbicommunity.org/resource...Spring2008.pdf

Healthier ways I found for "reorienting" include mindfulness meditation, and I also find massage therapy helpful.

Best to you as you recover.

__________________
What Happened: On November 29, 2010, I was walking across the street and was hit by a light rail commuter train. Result was traumatic brain injury and multiple fractures (pelvis, ribs, skull). Total hospital stay was two months, one in ICU followed by an additional month in neuro-rehab. Upon hospital discharge, neurological testing revealed deficits in short term memory, executive functioning, and spatial recognition.

Today: Neuropsychological examination five months post-accident indicated a return to normal cognitive functioning, and I returned to work approximately 6 months after the accident. I am grateful to be alive and am looking forward to enjoying the rest of my life.
Lightrail11 is offline   Reply With Quote
"Thanks for this!" says:
Theta Z (12-18-2012)
Unread 12-18-2012, 11:35 AM   #6
Abel_in_Fl
Junior Member
 
Join Date: Oct 2012
Posts: 51
Default

I would have to second that about the alcohol, drinking was probably one of the worst mistakes I ever made after my injury, im not sure how much a small amount is, a single serving a day seems to be generally ok but i for one wouldn't even risk that with my experiences

just a heads up
Abel_in_Fl is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Symptoms coming back in episodes 6 months after injury Sammyboi Traumatic Brain Injury and Post Concussion Syndrome 5 07-19-2012 09:20 PM
6 months post op numbness welshgal32 Thoracic Outlet Syndrome 4 04-23-2012 03:21 AM
13 Months Post Op thedspeth Trigeminal Neuralgia 1 05-21-2010 07:50 AM
Nearly 4 Months Post Op JAMY Thoracic Outlet Syndrome 2 07-18-2007 11:21 PM
about Post Concussive Syndrome, Mild Traumatic Brain Injury & other Brain Injury pono Traumatic Brain Injury and Post Concussion Syndrome 0 06-24-2007 10:11 PM


All times are GMT -5. The time now is 06:06 PM.
Brought to you by the fine folks who publish mental health and psychology information at Psych Central Mental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.


Powered by vBulletin • Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.


All posts copyright their original authors Community Guidelines Terms of Use Privacy Policy
NeuroTalk Archives