Originally Posted by debbiehub
I'm at a loss for words ...my muscles continue to atrophy full body. When I sleep there is little blood going into my hands and its so painful ,,the rsd has spread to my left hand and its curling up. The originally rsd pain in. Foot has intensified a lot...how much more can or do I want to take. There is no way out of this nightmare! Thanks for letting me vent...oh I lost my job too...
Deb, please know we all care for you and what you are dealing with. Please don't give up-this is a set back and I know feels terrible. Losing your job is horrible, but please view it as temporary. I know when my rsd spread, it was really harad to deal with. When it went to my hand and lost complete use of my hand was hard. The physical therapy group had me do daily therapy at home. Took several plastic containers and put different things in each one. Cotton balls in one, rice in another, coffee grounds in another, dried beans in another, sugar in another, just different textures, etc. put your hand in the container and just work your fingers thru the different textures. my hand and fingers went thru from being straight flat with no finger movement to being able to partially bend the fingers. Now able to partially bend fingers and cut food, and have functual use of hand unlike before therapy with no use of hand.
Please know we all care about you and what you are going thru. We know it's tough! You are not alone and we care. Can you get unemployment? Hopefully you can get some assistance. It's scary isn't it. I have full body rsd, and it's so hard. Unless someone has it, it's difficult for others to understand what we go thru. Don't give up- thank you for sharing your despair. we truly understand. One day at a time-right! Take care, and please share your thoughts with us. your friend, loretta