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Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.

thread where i talk to myself and complain

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Unread 12-22-2012, 04:38 PM   #111
LiveLoveandTrust
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Originally Posted by mspennyloafer View Post
So in multiple sources I've read about how the collarbone scissors the first rib in droopy shoulder syndrome and if u strengthen the shoulder girdle the collarbone and thus the entire shoulder are in a different position (not the first rib)

I have this in my right side. It is NOT scalenes. It feels weird but like something I could control... It's not like that muscular compression I'm gonna vomit and pass out from pain type feeling

Still doesn't explain both hands being numb

Getting venogram and p minor block
I'm so glad to hear that you're getting that pec minor block. As I understand, it's the best way to diagnose p minor syndrome and give you a preview of how you could feel if you get a pec minor tenectomy. P minor syndrome could cause numb hands I think. I hope you get feeling back... that's the worst :-( I've had pain for the past 5 years but it wasn't until about 5 months ago when I lost sensitivity, coordination and dexterity in my hands that I started to panic. Hands are so precious :-(
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Unread 12-26-2012, 12:45 PM   #112
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thanks, your words mean a lot. i dont think anyone aside from the people who post here really udnerstand how much it means to lose sensation in your hands. everythign i do is COMPELTELY exhuasting. at work they def do not understand. i can only work part time because of it. and even that is very very hard. im obsessed with my hands like most people here are obsessed with scalenes. i have 5 pairs of gloves on. i used to have like 10 pairs of gloves, so i am better but still not normal

i tried doing pec minor release with a tennis ball on the wall and instantly felt tingling in my hand, pain thru my neck and sick. so i am telling my pt about this when i go tomorrow.
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Unread 01-13-2013, 10:14 AM   #113
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had first bad flare up in awhile after trying to release my p minor/armpit area (i think??)

everything including legs were tingling

i guess this isnt TOS but PN in my tos area and spine?

interesting how i am affected the next day, so my scalenes, pec minor then back of my shoulder and around the outside of my arm, outside of elbow (unusual) down my forearm to my index finger which feels tight

this whole area feels like it has glue on it, there's no muscle there to be tight.especially in my forearm. and needley thigns deposited all along.

i never wanted warm water after a flare up bc i found it irritating but now i like the warm water, so i am taking that as a good sign. otherwise ugh.
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Unread 01-15-2013, 11:37 PM   #114
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Have you ever tried Valium or Ativan? I'm on Valium at the moment and it has decreased my lumbar, ulnar, and cervical neuropathy. You may have tension you are unaware of irritating nerves.
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Unread 01-16-2013, 07:47 PM   #115
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Yup I def have tension all along my spine
I'm mobile in my spine but maybe too mobile thus tense dunno

I am going to a pain management clinic finally so I will ask about those drugs

Also I have major lumbar problems now or sciatica. So I need a lumbar MRI I guess. My calf muscles felt awful yesterday. It was like deja vu with my arms/arm pits
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Unread 01-16-2013, 07:59 PM   #116
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so normally i would go back to pt at this point and have her work on me since i have 5k needles along my back but i dont feel like paying for it. also not sure if that would help with my lumbar, thats a whole other thing id have to pay to be treated for outside of tos and i dont have the effing money to go in all the time. i like going in for her to show me exercises to keep my core strong but thats like once a month.

i hope the needle trigger points kind of go away on their own

i should be grateful i am flaring up less and less but this one was bad.

with flares i feel so self destructive and cranky, im sure u guys can all relate
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Unread 01-21-2013, 12:13 PM   #117
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im going to ***** about my legs here.

havent gotten into pain clinic yet for block

im doing tennis ball on wall pretty aggressively on my back. someone psoted about teres minor and i was like oh i dont think mine is bad, but its BAD full of trigger points from doing rotator cuff strengthening. i still say strengthening rotator cuffs is pointless when you have weak l. traps and s.as.

flipside, i cannot do tennis ball on the wall on my pec minor without tos flare. HRMM.

if i hadnt gone to 2 different neuros id be worried that i have MS

ive been strengthening my lower body, pre pt my hips were very much anteriorly rotated. so i had very tight hamstrings and low back ache but no neuropathy

so i believe i have overcompensated and sometimes i go into too much of a posterior tilt (this is easy to do because im hypermobile). now my hamstrings are fine however i have sciatica. i'm a "toe walker" . exercises which involve strengthening one glute/one side flare me up. also i have "groin pain" i guess..the tendon or whatever there is triggerpointish

after doing a few one legged exercises, and having a tos flare, i started to get REALLY heavy feeling in both my legs and major shin pain. needles all along my shins. it was like deja vu of my heavy arms from tos. the shin pain actually made me want to puke and ive read that people with l4 impingment are "heel walkers"..so i think that's what started happening to me.

bending foreward makes this worse
anything on one leg or where my hips shift to one side is bad

i saw a video on youtube about the mckenzie protocol for low back nerve impingment and sciatica where your back is hyperextended. i didnt expect it to help bc the position looks really irritating but it totally helped.

so now im back to anterior tilt land. trying to make sure i remember to breathe thru my diaphragm.
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Unread 01-21-2013, 09:51 PM   #118
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Quote:
Originally Posted by mspennyloafer View Post
thanks, your words mean a lot. i dont think anyone aside from the people who post here really udnerstand how much it means to lose sensation in your hands. everythign i do is COMPELTELY exhuasting. at work they def do not understand. i can only work part time because of it. and even that is very very hard. im obsessed with my hands like most people here are obsessed with scalenes. i have 5 pairs of gloves on. i used to have like 10 pairs of gloves, so i am better but still not normal

i tried doing pec minor release with a tennis ball on the wall and instantly felt tingling in my hand, pain thru my neck and sick. so i am telling my pt about this when i go tomorrow.
Can I ask what the gloves are for? Coldness? Sensitivity? Because they look cool?

[newbie and couldn't decipher all 12 pages of your posts!!!]
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Unread 01-21-2013, 11:10 PM   #119
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Can I ask what the gloves are for? Coldness? Sensitivity? Because they look cool?

[newbie and couldn't decipher all 12 pages of your posts!!!]
I think she was referring to the sensation of having gloves on due to lack of sensitivity in her hands. Before surgery I had the same problem though I didn't feel like I had gloves on like she does. Mine was more lack of light touch sensitivity and I just had to work so HARD to do anything with my hands.
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Unread 01-21-2013, 11:27 PM   #120
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Originally Posted by LiveLoveandTrust View Post
I think she was referring to the sensation of having gloves on due to lack of sensitivity in her hands. Before surgery I had the same problem though I didn't feel like I had gloves on like she does. Mine was more lack of light touch sensitivity and I just had to work so HARD to do anything with my hands.
I have never considered it like that..but that makes a lot of sense.

I have stiffness, coldness, lack of sensitivity, numbness, pins and needles, burning and the skin itself is weird.. I get irritated if I touch certain textures (mentally irritated..like..grr) such as old shoe laces or cardboard. I never thought of it as being similiar to gloves!
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