Lightening Bolts
This is my first day on this site, but when i read your post the words Lightening Bolts stood out to me because that is exactly what I experience. I have not introduced myself but I'm not even sure when all of this started. I went from having numerous back surgeries to a titanium cage in my back to feeling like molten lava was running down the front of my right legs. Then it abruptly turned to lightening bolts that run under numb skin in my thigh. There was a period of three years when I was unable to wear anything on my feet except very stretchy loose socks (even in the dead of winter). I have gone through everything, physical therapy, pressure point massage, nerve stimulator body vest (this actually worked well but insured would not pay for it), accupuncture, and nerve blocks. For reasons unknown the swelling went down in my feet but not without causing permanent damage. I have muscle wasteing in right ankle, can't stand on toes, run, walk a straigth line and I favor my left leg. The lightening bolts in my right thigh are larger and stronger than ever (they started in 2001). I have had to wear skirts for years because I can't stand the heat build up when I wear pants. I take quite a bit of medication, including narcotics in order to control the pain. I have just been informed by my Dr that unless I am dying of cancer my dosages will have to be cut dramatically because of "the war on drugs," that does nothing but make it a little more difficult for people on the street level to get certain drugs, but those who really need it will end up suffering. I have never got a "high" off of any of the meds I am taking, the Dr says it's because I actually need them. She says she feels like she is practicing medicine with her hands tied behind her back. I live in fear of having to suffer through the lightening bolts of fire that would zing up and down my leg, yelling into a pillow so nobody would hear me. I'm not trying to scare you but let you know you are not alone with those feelings. I consider myself one of the lucky ones because my dr was well versed in RSD and didn't consider me a bored housewife a little off in the head! I wish you all the best. You have probable already learn you are in a completely DEAD ZONE as far as info on RSD/CRPS. I have had to see Dr's in Nashville to get any real help!
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I am new here want to share my pain seeking understanding
Great to meet you!!
It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.
Hello fireandnicegirl & Namethatflame!
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