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I am new here want to share my pain seeking understanding

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Unread 12-30-2012, 11:46 PM   #1
fireandnicegirl
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Attention I am new here want to share my pain seeking understanding

I am in a lot of pain in the top of my feet-Shooting Lightning Bolts of pain and burning in the tops while sitting still. At times I break out in a Hot Sweat along with the excruciating pain in one or both feet. The tops feel tight like leather being stretched and the bottoms feel like walking on wet diapers or cement blocks. Sometimes it feels like someone is standing on my foot. My knees also itch like crazy! my feet are not red or swollen and show No signs of discomfort, and they also seem to feel cold when they are warm. I have to always wear socks or they are cold. The pain is so bad it makes me very mean and grumpy, at times I am in pure tears from the sharp shooting pains. Nothing makes them go away except for a lot of Gabapentin and a narcotic pain pill on bad flare up days. HELP ME!
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Unread 12-31-2012, 12:58 AM   #2
Twinkletoes
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Yikes! Sorry for your pain and discomfort.

Welcome to NT -- surely someone will come along and post something helpful.
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Unread 12-31-2012, 02:45 PM   #3
Namethatflame
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Post Lightening Bolts

This is my first day on this site, but when i read your post the words Lightening Bolts stood out to me because that is exactly what I experience. I have not introduced myself but I'm not even sure when all of this started. I went from having numerous back surgeries to a titanium cage in my back to feeling like molten lava was running down the front of my right legs. Then it abruptly turned to lightening bolts that run under numb skin in my thigh. There was a period of three years when I was unable to wear anything on my feet except very stretchy loose socks (even in the dead of winter). I have gone through everything, physical therapy, pressure point massage, nerve stimulator body vest (this actually worked well but insured would not pay for it), accupuncture, and nerve blocks. For reasons unknown the swelling went down in my feet but not without causing permanent damage. I have muscle wasteing in right ankle, can't stand on toes, run, walk a straigth line and I favor my left leg. The lightening bolts in my right thigh are larger and stronger than ever (they started in 2001). I have had to wear skirts for years because I can't stand the heat build up when I wear pants. I take quite a bit of medication, including narcotics in order to control the pain. I have just been informed by my Dr that unless I am dying of cancer my dosages will have to be cut dramatically because of "the war on drugs," that does nothing but make it a little more difficult for people on the street level to get certain drugs, but those who really need it will end up suffering. I have never got a "high" off of any of the meds I am taking, the Dr says it's because I actually need them. She says she feels like she is practicing medicine with her hands tied behind her back. I live in fear of having to suffer through the lightening bolts of fire that would zing up and down my leg, yelling into a pillow so nobody would hear me. I'm not trying to scare you but let you know you are not alone with those feelings. I consider myself one of the lucky ones because my dr was well versed in RSD and didn't consider me a bored housewife a little off in the head! I wish you all the best. You have probable already learn you are in a completely DEAD ZONE as far as info on RSD/CRPS. I have had to see Dr's in Nashville to get any real help!
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Unread 12-31-2012, 04:03 PM   #4
ginnie
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Default Hi fireandnicegirl

You will find alot of friends here. Welcome to Neuro Talk. Many have RSD, CRPS or PN, that sounds alot like what you have. Do you have a firm DX? I do know in all the forums about this there will be help and understanding. I wanted you to know you found a good site for information. Again welcome, and don't hesitate to respond to anyone you encounter. ginnie
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Unread 12-31-2012, 06:03 PM   #5
CRPSsongbird
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Default Ginnie

Yes this is a wonderful support tool!! Ginnie you are quickly becoming a great ear and help to me! Many many thanks


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ginnie (01-01-2013)
Unread 01-01-2013, 01:59 AM   #6
Darlene
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fireandnicegirl & Namethatflame ,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Click on the following forum there could be some there to help you out able you feet.

Peripheral Neuropathy:
http://neurotalk.psychcentral.com/forum20.html

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.
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Unread 01-01-2013, 09:37 AM   #7
SpecialDad
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Default Been There

Try Lyrica. I use it as needed and seldom more than a 48hrs. I also use gabapentin as needed. Good Luck




Quote:
Originally Posted by fireandnicegirl View Post
I am in a lot of pain in the top of my feet-Shooting Lightning Bolts of pain and burning in the tops while sitting still. At times I break out in a Hot Sweat along with the excruciating pain in one or both feet. The tops feel tight like leather being stretched and the bottoms feel like walking on wet diapers or cement blocks. Sometimes it feels like someone is standing on my foot. My knees also itch like crazy! my feet are not red or swollen and show No signs of discomfort, and they also seem to feel cold when they are warm. I have to always wear socks or they are cold. The pain is so bad it makes me very mean and grumpy, at times I am in pure tears from the sharp shooting pains. Nothing makes them go away except for a lot of Gabapentin and a narcotic pain pill on bad flare up days. HELP ME!
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ginnie (01-01-2013)
Unread 01-01-2013, 08:11 PM   #8
Rrae
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Smile Hello fireandnicegirl & Namethatflame!

Welcome!

I'm sorry for the reason which brings you here, but the good thing is - you've hit the jackpot for support and information!
Darlene pointed you to the Peripheral Neuropathy forum. I can tell by both of your usernames that's where you need to be

PN is such a frustrating condition, but once you see how many others there are and the amount of research which has been put into it, you'll be utterly amazed. Be sure to check out the upper portion of the forum when you get there, called the 'Stickies'.

So glad you're here!
Friends are on the way

Caring,
Rae
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Unread 01-01-2013, 11:00 PM   #9
MelodyL
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Hi Hon.

Nothing more to add accept Welcome. I feel for you. I hope some doctor listens to you and perhaps prescribes one of those implantable pain pumps??

Sending you a hug

Melody
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