Fed up with level of care and Medical staff not Understandinig pain!!
First off I have CRPS/RSD...considered to be the "worst" Cronic pain syndrome there is.....woo frigging hoo....
Grr. Ok I'm am ranting a little but I am so fed UP! I truly wish they could feel what I do, and then be asked to wait for different medication. But you can only get the medication if you get an appt with your PCP. Who has been on vaca for the last 2weeks, and is booked solid for the next coming week!!!!
I had a bad reaction to Lyrica. Though it did help with the pain, at least to the point where I could tolerate the pain a LOT better, I couldn't very well keep vomiting and being so fatigued that I felt I would fall asleep standing up.
The other doc I saw at my Doc's office Friday said he wanted to wait before giving me anything else for pain until the Lyrica was out of my syst6em. This made me nervous but I understand why he did, it made sense not to make anything worse! I had a LOT of pain this weekend, but I managed.
Even when I HAD to clean house because no one had actually mopped the kitchen or bathroom since before I started having these problems. Oh they spot mopped and swept but I guess no one else knows how to use it. I was also caring for my youngest daughter as she had come down with strep and i was up 5-6 times a night caring for her (she's only 7).
SO I was seen Friday for medication reactions and was told to stop taking the Lyrica. And To call back and get a appt today so I could start Cymbalta. So all weekend I dealt with it, only having Amitriptyline at night which doesn't do much as far as I'm concerned but dies help me sleep a little or at least STAY asleep once I can fall asleep....
I call today and guess what NO appt available.....I would have to wait till Friday or next week before I could be seen to get the medications.....
I seriously wish they could feel what I feel and then be put through all of this and told to "wait". The funny thing is I'm not even asking for "controlled substances" just for now at least the Cymbalta.....
Though I am extremely hesitant to try it based on the reactions I've had to Gabapentin and Lyrica. I mean yes they did help with the pain a bit but the Side effects were SO hellacious I could barely function. I feel like I either have to be in EXTREME pain or a pretty painful and vomiting or feeling like sleeping for 3days straight or losing hair or being so weak from the vomiting/fatigue you can barley tolerate standing......not to mention you work Full Time for not much over min wage so you need ALL 6the hours you can get to care for you kids, then your supposed to come home cook dinner and clean house all while finding the energy and strength to smile and read to your sweet 7 yr old. And I have been trying to hide the pain I'm in from her, so she doesn't feel scared.....
I really wish they could understand more so they would try and DO something about it!!!! I mean I feel like I tolerate the lion's share of the pain on the medications, and then when I can't take it or have to stop the meds the pain starts going through the roof!! I know it won't kill me but aren't I supposed to be allowed better quality of life???? Isn't that why we go to the doctors??? To get better? And to all those "junkies out there who faked illness/injury to get "controlled substance" drugs GO JUMP OFF A BRIDGE!! Thanks to you people chronic pain sufferers like myself have to go through every "new" medication or treatments that have horrendous side effects before they will prescribe strong enough pain/narcotics, to actually help you not want to cry from the pain!!! I am starting to see why people woth chronic pain get depressed!!
When doctors look at you odd because you are trying to tell them what you are getting isn't strong enough or you can not tolerate the side effects, and think you might be a "drug seeker". Well in this case YES I AM SEEKING IT, you feel like screaming at them to HELP ME and make the PAIN STOP. But you don't on fear of having what little medication you have be taken away, or being labeled as an abuser. I am fed up with other people not understanding that the little thing can set off you pain. Move you finger or wrist in the wrong way, or pick up a silly cup of coffee can send your pain to such heights you're trying not to cry!!!!
But oh yes I'll wait because I HAVE to. Because you don't want the state board to question why you're prescribing a constant "controlled substance narcotic" to someone who doesn't make six figures a year. I have small but conclusive PROOF of my condition as well! SO they know it's not being "faked". I am so exhausted, hurt, frustrated, confused, and ****** off!
I know all of you can probably related to some or all of what I am saying. And I don't really have a question I just needed to get this all off my chest. I am sooo SICK of doctors thinking that it won't "kill me" so I can just WAIT!