Go Back   NeuroTalk Support Groups > Health Conditions M - Z > Traumatic Brain Injury and Post Concussion Syndrome

Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

Post-traumatic headaches

Reply
Thread Tools Display Modes
Unread 12-31-2012, 07:13 PM   #11
wakey
Member
 
Join Date: Dec 2011
Posts: 110
Default

I am still having 24/7 headaches (among other things like fatigue, noise & light sensitivity, etc.) that worsen with activity, mental or physical. I can't seem to kick them even for a minute. I would appreciate any advice on this. This is really debilitating.
wakey is offline   Reply With Quote
Unread 12-31-2012, 08:39 PM   #12
Eowyn
Member
 
Eowyn's Avatar
 
Join Date: Jun 2011
Location: Sunset Coast, USA
Posts: 669
Default

How long ago was your injury? What have you tried?
__________________
mTBI and PCS after sledding accident 1-17-2011

Was experiencing:
Persistent headaches, fatigue, slowed cognitive functions, depression
Symptoms exacerbated by being in a crowd, watching TV, driving, other miscellaneous stress & sensory overload
Sciatica/piriformis syndrome with numbness & loss of reflex


Largely recovered after participating in Nedley Depression Recovery Program March 2012:

.


Eowyn Rides Again: My Journey Back from Concussion

.
Eowyn is offline   Reply With Quote
Unread 01-01-2013, 12:22 AM   #13
Eowyn
Member
 
Eowyn's Avatar
 
Join Date: Jun 2011
Location: Sunset Coast, USA
Posts: 669
Default

What diagnostics have you had done? What kind of doctors/practitioners have you seen?

Have you taken any supplements? Done any therapy trials?
__________________
mTBI and PCS after sledding accident 1-17-2011

Was experiencing:
Persistent headaches, fatigue, slowed cognitive functions, depression
Symptoms exacerbated by being in a crowd, watching TV, driving, other miscellaneous stress & sensory overload
Sciatica/piriformis syndrome with numbness & loss of reflex


Largely recovered after participating in Nedley Depression Recovery Program March 2012:

.


Eowyn Rides Again: My Journey Back from Concussion

.
Eowyn is offline   Reply With Quote
Unread 01-01-2013, 01:36 AM   #14
Eowyn
Member
 
Eowyn's Avatar
 
Join Date: Jun 2011
Location: Sunset Coast, USA
Posts: 669
Default

Here are a few articles I found informative (varying from readable to quite scholarly):

http://www.brainline.org/content/200...r_pageall.html

http://www.neuropsychologycentral.co...c_headache.pdf

http://www.ncbi.nlm.nih.gov/pubmed/22373462
__________________
mTBI and PCS after sledding accident 1-17-2011

Was experiencing:
Persistent headaches, fatigue, slowed cognitive functions, depression
Symptoms exacerbated by being in a crowd, watching TV, driving, other miscellaneous stress & sensory overload
Sciatica/piriformis syndrome with numbness & loss of reflex


Largely recovered after participating in Nedley Depression Recovery Program March 2012:

.


Eowyn Rides Again: My Journey Back from Concussion

.
Eowyn is offline   Reply With Quote
"Thanks for this!" says:
Mokey (01-01-2013)
Unread 02-02-2013, 08:13 PM   #15
Chitown
New Member
 
Join Date: Feb 2013
Posts: 1
Default Question for anyone.

Hi,

This is my first time doing this. But I am just frustrated. I am 21 and well, I received a mild concussion in October of 2010. I am a retired tumbler, but at the time I was doing a major skill on an event and ended up flying into a cement wall with the back of my head and upper back/neck. Every day, and I mean every day, since that night I have had a headache. I am on my third neurologist and I have lost count of how many different medications I have tried but really nothing has helped.

I don't know what has happened to all of you or what you have been able to do. I just wanted to see if there has been anything that has really helped you. Personally I have never met anyone that has gone through this so nobody really understands what it is like to have the constant headache day in and day out without anything that seems to actually help. It is just so frustrating and I have been losing hope that this will get better since so much of what I have read on the symptoms of Post Traumatic Headache is that it usually goes away in a few days, weeks, months, or a year.

Sorry for a semi-rant. As I keep saying it is just so frustrating and the doctor that I am seeing currently (which has been over a year) is having me come in less and says it is great there has been no change and to keep going along with what I have been doing. Then tells me to try not to be stressed which is rather hard to not let happen since I am in college while having two jobs.

Thanks for reading this. =/
Chitown is offline   Reply With Quote
Unread 02-02-2013, 11:05 PM   #16
Mark in Idaho
Elder
 
Mark in Idaho's Avatar
 
Join Date: Feb 2009
Location: The Treasure Valley of Idaho
Posts: 6,474
Default

Chitown

Welcome to NeuroTalk. Ouch, your impact on the wall hurts.

Have you had any diagnostics of your upper neck? I bet it is injured. Icing it can be a good therapy. If it helps, you almost have a diagnosis. The Brainline article I posted at the start of this thread talks about these head aches. They are rarely properly diagnosed and treated. It takes special imaging to show the fine injury, usually stretched/torn ligaments and damaged cartilage. This causes inflammation that lead to muscle spasms and nerve inflammation to this area.

If you have tender spots behind your ears, especially where the skull ends, that is a classic upper cervical injury from concussion/head impact.

Do a search on this forum for "NUCCA" to find posts about upper cervical chiropractors.

Tell us more about yourself and the things you have done to try to recover from your injury. There are dietary/nutritional things you should do to minimize head aches. Alcohol, caffeine, MSG, "Artificial Sweeteners" and some others. Also you daily activity level can seriously impact head aches. I get them from reading for too long. I need to close my eyes for 5 or 10 minutes to get some relief.

Feel free to unload. Your 1st post was not a rant, just even a semi-rant. We are very tolerant of people dealing with PCS. We all have lived with PCS.

My best to you.
__________________
Mark in Idaho
.


59 years old, retired due to disability, married 34 years, father of three, grandfather of four, Suffered a serious concussion at 10 years old (1965) stopped most driving after concussion at 46 years old (2001), Post Concussion Syndrome/Multiple Concussion/Impact Syndrome with PTSD, immediate/short term visual and auditory memory problems, slowed processing speed, visual/auditory processing difficulties, insomnia, absence seizures, OCD, 14 concussions since first concussion at 8 years old, Taking paroxetine for 14 years and gabapentin for 12 years. Added L-Tryptophan and stopped paroxetine after 3 months of tapering. I currently take 500 mgs of L-Tryptophan AM, 500 mgs noon, and 500 mgs PM.


As of Nov 15th, Due to high stress issues resulting in PTSD, docs put me on 3 meds. Clonazepam but only for 30 days ) .125 mgs twice daily (Doc presc. .25 mgs 2x daily but half a tablet is good) , citalopram (Celexa), an SSRI , and olanzapine (Zyprexa), an atypical anti-psychotic that usually causes weight gain before bed. I lost over 30 pounds since mid July. It just stopped the weight loss. Took me off the gabapentin. I am feeling better than I have in years.

This great feeling only lasted a month. Back to the same old PCS doldrums.

May 2014, I am off the olanzapine due to a 6 fold price increase. Back on 600 mgs of gabapentin before bed.

I am also taking L-Theanine to help with GABA regulation


"Be Still and Know That I am God" Psalm 46:10

Last edited by Mark in Idaho; 02-02-2013 at 11:33 PM.
Mark in Idaho is offline   Reply With Quote
Unread 02-02-2013, 11:12 PM   #17
Eowyn
Member
 
Eowyn's Avatar
 
Join Date: Jun 2011
Location: Sunset Coast, USA
Posts: 669
Default

Have you had a vision efficiency evaluation (VEE)? For some of us, difficulty with our eyes working together has also contributed to headaches. The VEE is different from a regular medical eye exam.

You can find practitioners at http://www.braininjuries.org or http://www.nora.cc in the United States.
__________________
mTBI and PCS after sledding accident 1-17-2011

Was experiencing:
Persistent headaches, fatigue, slowed cognitive functions, depression
Symptoms exacerbated by being in a crowd, watching TV, driving, other miscellaneous stress & sensory overload
Sciatica/piriformis syndrome with numbness & loss of reflex


Largely recovered after participating in Nedley Depression Recovery Program March 2012:

.


Eowyn Rides Again: My Journey Back from Concussion

.
Eowyn is offline   Reply With Quote
Unread 06-06-2014, 04:19 PM   #18
wdl6591
Junior Member
 
Join Date: Feb 2012
Location: Baltimore, MD
Posts: 51
Default

My concussion was in October 2011. Constant headache since that time gradually decreasing in severity to a constant 1 to 2 on a ten scale. Physical fatigue, cognitive stress, emotional stress increase the severity up to a 7 to 8, although not consistent. I have had 6 courses of Botox injections, starting at 12 week intervals then to 10 week intervals. Injections seem to "level out" the impact of the spikes. I rotate Tramodol, Tylenol and Ibuprofen on a weekly basis to try to stave off "rebound" headaches. When headaches spike, other PCS symtoms also increase. Light and sound sensitivity, cognitive impairment, confusion, equilibrium problems, short temper, depression. Headache is always the same place, above my right eye behind my forehead. I have generally returned to most of my life including working, although at reduced cognitive capacity. I miss an average of one day every three weeks due to increased headache levels. Very empathetic work situation. A blessing, really. I have great support and count myself fortunate compared to many. Frustration is daily. Pain is the constant. Life goes on with the support and love of friends and family.
wdl6591 is offline   Reply With Quote
Unread 06-06-2014, 04:57 PM   #19
SarahSmile0205
Member
 
SarahSmile0205's Avatar
 
Join Date: Mar 2014
Location: Carmel, IN
Posts: 452
Default

1. no idea what type... either starts on the right just over my temple and goes over my head like a headband or starts in the back of my head on the right side with like a sledgehammer to the back of the head... and then sets in on the left side after about 10 minutes.

2. Treatments- tompamax (not helpful), propanol (nope), flexeril (nope), nortriptalyn (kind of), functional massage on neck.. breaks up scar tissue (helps), acupuncture (helps). I say all the above but yet I still have headaches, just not as bad. They are very detrimental to me... they are why my neurologist will still not let me return to work. When they get very bad, like when I did yoga the other day.. all brain fog and other various symptoms come back

3. In the last 5 months I have had about a 10 day period when the headaches were at about a 2.. those may have been some of the best 10 days! Other than that sorry to report, no relief.
__________________
The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily.

Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well.

Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off)

Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture

Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath
SarahSmile0205 is offline   Reply With Quote
Unread 07-31-2014, 07:22 AM   #20
Joe in LA
Junior Member
 
Join Date: Mar 2014
Location: Alexandria VA as of June 1
Posts: 40
Default

Constant headache at 5-6 level for 10 months, following 3rd concussion.

Medications taking: propranolol 50 mg daily, Nortriptyline 40 mg daily, Ambien 12.5 CR

Tried IV Magnesium, IV Benadryl, IV DHE, and oral Topamax, Gabapentin, Naratriptan, and Prednisone, but none worked and the Prednisone, DHE, and Topamax, made my condition worse.

Increase in headache with any activity at all, even just standing up or doing seated leg lifts, and with sound, talking.
__________________
Basketball head injury Feb. 2012, followed by 3 additional concussions: basketball injury April 2013, hitting head on a low door frame Sept. 2013 and car accident (didn't hit head) Dec. 2013. Recovered from each one with rest until I tried to return to my teaching job in Feb. 2014. Now on total medical leave with daily headaches that prevent me from walking, talking, thinking, and listening. On Nortriptyline 40 mg daily, Propranolol 30 mg daily, Ambien 12.5 CR, Melatonin, Valerian.
Joe in LA is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
"Headaches Are Common in Year Following Traumatic Brain Injury" Eowyn Traumatic Brain Injury and Post Concussion Syndrome 1 02-27-2012 04:38 PM
helpful article explaining post traumatic headaches postconcussion Traumatic Brain Injury and Post Concussion Syndrome 1 01-27-2012 08:36 PM
Is it Post Concussion Syndrome or Post Traumatic Migraines? kayseeah Traumatic Brain Injury and Post Concussion Syndrome 16 06-07-2011 03:23 PM
RSD/Post Traumatic Arthropathy Wendy in Oz Reflex Sympathetic Dystrophy (RSD and CRPS) 3 07-20-2009 01:08 PM
For Iraq Veterans, Headaches Continue After Traumatic Brain Injury (Topix) NewsBot Health News Headlines 0 02-24-2009 11:40 PM


All times are GMT -5. The time now is 04:55 PM.
Brought to you by the fine folks who publish mental health and psychology information at Psych Central Mental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.


Powered by vBulletin • Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.


All posts copyright their original authors Community Guidelines Terms of Use Privacy Policy
NeuroTalk Archives