Some types of Porphyria, particularly HCP, need to have a stool test in addition to urine test, but even then, the results may not show positive unless the person is in attack. If you are in pain for a year, that sounds like a persistent attack, but of course I do not know for sure. In my worst attack, I had pain for several months and became thin because eating caused pain, but now I am not like that. I have a lot of neuro difficulty which is the result of attacks which were not diagnosed and were not treated. The main treatment for porphyria is to avoid the triggers, the things which cause the hemaglobin synthesis pathway to go into overdrive because of an "error in metabolism" involving enzymes in the heme pathway. Triggers are many. Look for a site which lists triggers for porphyria. You have the tendency born in, in most cases, but it may not manifest unless triggered. Triggers may be found in some medications, some foods and supplements, and in many environmental toxins. Our world is more and more full of environmental toxins, such as new rugs, carpet glue, new cabinetry which has formaldehyde and other triggering chemicals, pesticides, herbicides, and so forth. The world is a mine field to a porphyria patient. Learn the triggers and avoid as many as you can.
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