Lookng back what were the signs, symptoms (severity, timing of) that prednisone (i assume that is steriods you refer to?) caused your condition to worsen?
My response to steroids was relatively rare.
It was a clear dose-response curve by all criteria fitting Koch's postulate to the tee. It has been described in the literature and had I not been overwhelmed by a very traumatic hospitalization I would have clearly figured it out long before and not kept on taking them for 3 months, before deciding that I start to decrease the dose as fast as is possible.
A while ago, I consulted my neurologist regarding a patient of mine who developed muscle weakness and voice changes every time he received steroids. He had no signs of weakness without steroids. My neurologist said that we have to consider the possibility that this patient has MG.
I nearly fell off my chair when he said that, because when I had a similar response during my hospitalization (in a large MG center) with a known MG, they had no clue of what was going on.
Do you think it is possible that it prevented condition from getting worse than it would have otherwise?
In my specific case, clearly not.
In general, medical decisions are not and should not be based on mystical assumptions.
Effective treatment can either lead to significant improvement (which is easily detectable) or can slow the progression. In order to decide that it slows the progression, one has to know the rate of progression without treatment.
MG is not a progressive disease with a predictable long term course. With or without treatment it has periods of improvement and periods of worsening, so it is very hard to assess response over a relatively short period.
In my opinion, taking treatment with significant long-term side effects, that leads to no discernible improvement, with the unproven assumption that it possibly slows the progression of the disease, makes no sense.
I have a patient who has some mild tremor. A neurologist he consulted diagnosed him with Parkinson's disease and started him on treatment for it. I am not a neurologist, but it was quite clear to me that this patient does not have PD. I asked him if he had any improvement with the treatment he was taking regularly for more than a year. he said that he didn't, but it stopped the progression of the disease. It took me a long time to convince him to try and stop the treatment. He was pleasantly surprised to find out that it made no difference.
Medicine is not an exact science, but it's reasoning is logical and follows simple rules. There is no reason to make it more complicated than it really is.
In my opinion, If after 5 months of treatment with prednisone you see no improvement, I think you need to review this with your neurologist.