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Chronic Pain Whatever the cause, support for managing long term or intractable pain.

I feel like I have no one to turn to...

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Unread 12-15-2012, 05:29 PM   #11
Njbackpain
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Treating chronic pain is a time consuming and not an exact science and is a journey. I have found that communicating and listening to your doctor is very important. Sometimes it wii require you to change doctors. Hope the best for you..
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CRPSsongbird (12-15-2012), mg neck prob (12-18-2012)
Unread 01-08-2013, 09:26 PM   #12
quitlyricalive
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Default PLease Read this before you get on lyrica, it is not a good life

Quote:
Originally Posted by EMILY ANDERSON View Post
OK ,,,,got the Lyrica. They finally gave me something stronger than Tramadol. I have Oxycondone 5mgs no Tylenol those are supposed to be stronger right?? But I only got 10 of them...I'm supposed to take 1 every 12 hours.......seesh I doubt that will work but I guess I'll just pray for the Lyrica to work Still having the fiance issues but oh well I'll let it runs it course and see if he pulls his head out of his *****......I don't know why I've been so up and down and down and up lately. Is this normal for CRPS or is it just living with the chronic pain?

OH one thing that was neat... they got me on this prescription assistance thingy and instead of 200.00 bucks it was 20.00!!

thank you again....I really needed some people who actually seemed to CARE what happened!
My advice is get off all drugs, I did and after a year of very difficult bu consistent effort I am almost pain free and completely drug free. Lyric and tramadol messed my life up. read this thread about lyrica:

http://neurotalk.psychcentral.com/thread132645-9.html

all my very best.
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Unread 01-09-2013, 07:04 PM   #13
NerPain4
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Hi Emily,

Part of the problem of long term pain is that your body goes into acute pain and then anxiety when it is in withdrawal from pain control.

So some of your spiraling emotions may be due to that. Please try to Be careful and try to take a deep breath and wait 10 sec before going off on a Rant of some sort to the people around you. I guarantee that emotional rants are never Helpful to you, it just makes medical staff push you away! When expressed to a young child, it can cause a reversal of the parent-child relationship which is never heathy. When expressed to your partner, it may make them retreat into a fantasy world like the non-confrontative world of video games...

It really sounds like you need to get a Pain Management doctor. Since you are in a major metro area, you will be able to find one. You will need to get your current treating doc to refer you.

It sounds like your fiance is going to have to step things up if he still wants to keep his status as "your fiancee"...there are so many ways of handling this, but you are dealing with a relationship challenge!

You are definitely not alone!
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Unread 01-10-2013, 10:59 PM   #14
CRPSsongbird
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Quote:
Originally Posted by NerPain4 View Post
Hi Emily,

Part of the problem of long term pain is that your body goes into acute pain and then anxiety when it is in withdrawal from pain control.

So some of your spiraling emotions may be due to that. Please try to Be careful and try to take a deep breath and wait 10 sec before going off on a Rant of some sort to the people around you. I guarantee that emotional rants are never Helpful to you, it just makes medical staff push you away! When expressed to a young child, it can cause a reversal of the parent-child relationship which is never heathy. When expressed to your partner, it may make them retreat into a fantasy world like the non-confrontative world of video games...

It really sounds like you need to get a Pain Management doctor. Since you are in a major metro area, you will be able to find one. You will need to get your current treating doc to refer you.

It sounds like your fiance is going to have to step things up if he still wants to keep his status as "your fiancee"...there are so many ways of handling this, but you are dealing with a relationship challenge!

You are definitely not alone!

Trust me his video gaming stated years ago. It's nothing new. And the game is the least non-confrontational one! He yells and swears at it all the time. Trust me. My daughter never see me go totally out of control if I can help it. She is the most important thing in my life. I stated before in another post, this is one of my coping mechanisms. to vent/rant in a forum like this. So that my family doesn't suffer the build up of emotions. I am getting more help soon. I'm already on Cymbalta, Nortriptyline, and Tramadol.So sorry to all if I seemed like an emotional wreck. I was struggling with a lot of pain that wasn't being managed properly. Plus told the WORST Chronic pain syndrome possible, from a ridiculous injury! So I was floundering at best.

Thanks to all for your support and listening to my insane rambling
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Unread 01-11-2013, 03:43 PM   #15
ozzysun
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Hello!!

Sounds like you have had a hell of a time! The up's and downs are common.. for me anyways! (I have no diagnosis but chronic pain)
Being in pain all of the time and feeling like you have no support-you are bound to be mentally all over the place!

I feel for you and your fiance, when my pain started I had a hell of a time doing much of anything most days, my husband flat out told me he thought I was being lazy. It was devastating to me.
He has since smartened up but it took a lot of time and I had to show him a lot of information about what I was going through to get him to understand at all where I was at. Also something I did not think much about until recently is how this all affects his life. Its also hard for him to deal with me, pick up my slack and not know what is going on. I have been too involved in my own pain/confusion/frustration to think about how hard this all has been on him. Have you thought about showing him a website for spouses dealing with chronic pain? My husband still has a hard time dealing with me and all of the stuff that goes with chronic pain! I just have to do my best to explain where I am coming from.

Good luck, its sure an adventure
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Unread 01-21-2013, 10:31 PM   #16
danikai09
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Quote:
Originally Posted by CRPSsongbird View Post
Trust me his video gaming stated years ago. It's nothing new. And the game is the least non-confrontational one! He yells and swears at it all the time. Trust me. My daughter never see me go totally out of control if I can help it. She is the most important thing in my life. I stated before in another post, this is one of my coping mechanisms. to vent/rant in a forum like this. So that my family doesn't suffer the build up of emotions. I am getting more help soon. I'm already on Cymbalta, Nortriptyline, and Tramadol.So sorry to all if I seemed like an emotional wreck. I was struggling with a lot of pain that wasn't being managed properly. Plus told the WORST Chronic pain syndrome possible, from a ridiculous injury! So I was floundering at best.

Thanks to all for your support and listening to my insane rambling
I am a single mom of a three year old who has been suffering with chronic pain for the past 7 1/2 years - the past 2 years have been excrutiating.

The last month, it has been so bad that I find my eyes watering to sob when I am doing simple things like stooping down and reaching out to help my daughter put on her clothes. I try so hard not to let her see my "fall apart", but it has been nearly impossible recently.

I am also waiting on a prescription for Lyrica - my insurance doesn't cover it and the pharmacy is waiting for my neurologist to get back to them with his decision (different drug or contacting my insurance and explaining it's necessary).

I've called the pharmacy every day to check the status.

I considered an overdose of Nyquil last night just to get me to fall asleep, but I knew it would leave me nauseous in the morning!

I understand what you're going through.

I don't want my daughter to see the pain on my face or feel bad that things she needs/wants me to do are causing it. It's so hard, though, when every minute of the day is throbbing with pain!

Think positive and remember that she's the reason you're suffering through EVERYTHING in life, including the pain. And I'm sure at the end of the day, you think she's worth it.
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