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Unread 01-10-2013, 09:17 AM   #1
BetsyAnn
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Hello everyone...just saying hello. Not sure where I should look first so here I am I am a 40 y/o female in sunny FL dx'd with neuropathy, 'seizures' and currently flaring up so feeling rather frustrated.

No clue what the neuropathy is from, EMG showed it in all 4 limbs, and we were trying to find the cause for some autonomic symptoms (elevated HR and BP episodes w/sweating and chills/shaking)...long long story short I was eventually found to have 'abnormal spikes on both sides of the brain' via EEG (both 20 min and 3 day) so neuro says he thinks the spells are seizures.

Currently taking Keppra which seems to work, at least for nerve pains/tingles, and time will tell about the other weirdness

Right now my knees are tingling, my hands are shocking me every time I grab something, my neck feels like it won't hold my head up anymore and my one eye keeps watering so I'm gonna grab a cup of coffee and browse what you all have got here.

Thanks for being here!
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Unread 01-10-2013, 10:08 AM   #2
Alffe
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Hi BetsyAnn and welcome to NeuroTalk. Here is the link to our Neuropathy Forum http://neurotalk.psychcentral.com/forum20.html

Great place to share information and form friendships.

I'm glad you've joined us.
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Unread 01-10-2013, 02:11 PM   #3
loretta
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Originally Posted by BetsyAnn View Post
Hello everyone...just saying hello. Not sure where I should look first so here I am I am a 40 y/o female in sunny FL dx'd with neuropathy, 'seizures' and currently flaring up so feeling rather frustrated.

No clue what the neuropathy is from, EMG showed it in all 4 limbs, and we were trying to find the cause for some autonomic symptoms (elevated HR and BP episodes w/sweating and chills/shaking)...long long story short I was eventually found to have 'abnormal spikes on both sides of the brain' via EEG (both 20 min and 3 day) so neuro says he thinks the spells are seizures.

Currently taking Keppra which seems to work, at least for nerve pains/tingles, and time will tell about the other weirdness

Right now my knees are tingling, my hands are shocking me every time I grab something, my neck feels like it won't hold my head up anymore and my one eye keeps watering so I'm gonna grab a cup of coffee and browse what you all have got here.

Thanks for being here!
Hi Betsy Ann- Welcome to Neurotalk, I'm sure you are searching in every direction for some answers. Your symtoms sound like an autonomic dysfunction- the sympathetic nervous system, parasympathetic nervous system, vegas nerve all control blood pressure, heart rate, body temperature, even digestive issues. I have a disorder of the autonomic nervous system-reflex sympathetic dystrophy-RSD or now called CRPS. blood pressure varies from high to low- heart rate varies from high to low- go from hot to ice cold in body-usually burning hot. electrical shocks, tingling. I have it full body or generalized-all limbs. I don't know what all the autonomic disregulations are, but RSD one of them.
I hope this is NOT the case with you. Are you seeing a neurologist? The condition I have is difficult to diagnose and many Drs. are not familiar with it. I my case-it followed an operation. For some it has followed an injury- I hope you get some answers. I'm usually of the Reflex Sympathetic Dystrophy part of NT. Just happened to notice your post. You will find a lot of good information and support on NT. Hope the best for you and you get some answers with good results. loretta
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Unread 01-10-2013, 09:47 PM   #4
BetsyAnn
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Originally Posted by loretta View Post
Hi Betsy Ann- Welcome to Neurotalk, I'm sure you are searching in every direction for some answers. Your symtoms sound like an autonomic dysfunction- the sympathetic nervous system, parasympathetic nervous system, vegas nerve all control blood pressure, heart rate, body temperature, even digestive issues. I have a disorder of the autonomic nervous system-reflex sympathetic dystrophy-RSD or now called CRPS. blood pressure varies from high to low- heart rate varies from high to low- go from hot to ice cold in body-usually burning hot. electrical shocks, tingling. I have it full body or generalized-all limbs. I don't know what all the autonomic disregulations are, but RSD one of them.
I hope this is NOT the case with you. Are you seeing a neurologist? The condition I have is difficult to diagnose and many Drs. are not familiar with it. I my case-it followed an operation. For some it has followed an injury- I hope you get some answers. I'm usually of the Reflex Sympathetic Dystrophy part of NT. Just happened to notice your post. You will find a lot of good information and support on NT. Hope the best for you and you get some answers with good results. loretta
Thank-you I am seeing a neurologist. He is the one who said I am having seizures, and did the PN workup. I don't have the autonomic symptoms frequently, thank goodness. I do take Toprol for a reduction in HR/palpitations and it keeps my BP at bay as well, so for the most part I am good on that front (Holy carp, can you tell I've been watching Downton Abbey?) The worst was just over a year ago, I think the Keppra is keeping it at bay (assuming it is sz. activity). I am browsing the forums as I can, there is definitely a lot of wonderful info here! Thanks for the warm welcome.
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Unread 01-11-2013, 12:39 AM   #5
Rrae
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Default Hello BetsyAnn!

Welcome to NT!

You've come to a wonderful place of support and understanding!
There are many caring people here, easy to talk to, and very down-to-earth, so make yourself right at home.
Alffe has pointed you the to Peripheral Neuropathy forum in which you will be amazed to find so much information and support on this very frustrating condition!

Just holler if you have any questions or need help in finding your way around.
I hope you will begin to get some answers very very soon.

It's great to have you!

Caring,
Rae
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Unread 01-11-2013, 01:09 AM   #6
Darlene
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BetsyAnn,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Here is the epilepsy forum, just click on it. There are great number of members there to assist you also.

http://neurotalk.psychcentral.com/forum11.html

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.
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