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What's Your EDSS Number?

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Unread 01-15-2013, 09:30 AM   #11
TheSleeper
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Quote:
Originally Posted by doydie View Post
It looks like I am a 5. How far of a distance is 100 meters?
A little over 100 yards.

Myself? some where above 6.5, LOL I am not liberal enough to call what I do walking. A manual wheelchair is beyond me, although I stagger around the house at time for short periods. The quad cane, walls and counters are my friends.
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Unread 01-15-2013, 09:54 AM   #12
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Quote:
Originally Posted by TheSleeper View Post
The quad cane, walls and counters are my friends.
Me, too! I think I seem worse when I go out somewhere because my usual "props" are gone....the walls, furniture, counters, predictable terrain. At least that's what I'm telling myself......
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Unread 01-15-2013, 10:47 AM   #13
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Never been tested or had a test offered or suggested. Been on SS Disability since '04, I think.

I would think the results would change from day to day. For me, even hour to hour depending on what activity I just did.
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Unread 01-15-2013, 11:45 AM   #14
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I have never been given a number either by my neurologist. Mine would also depend on the time of day. I am guessing I am somewhere betwen 4.5 and 5.5
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Unread 01-15-2013, 11:52 AM   #15
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I'm assuming that the doctor probably looks at your overall condition and makes a determination based on several months of data.....not just that particular day he gives you the number. But, I'm really not sure so you'd have to ask the Neuro how it's determined. I saw mine on a copy of my medical records. Otherwise I'd not have known what mine was either.
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Unread 01-15-2013, 02:40 PM   #16
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My old neuro never gave me one either, but I've rated myself from time to time. I watched mine scurry up the ladder, in the last 20 years. Before my bad attack in 1993, I was about a 2.

So how would you gals and guys rate yourself? Who would know better than you?
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Unread 01-15-2013, 04:30 PM   #17
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Most of the time I'm a 3.5-4.0; but when in a bad flare, it has gone up to a 6.0.

With love, Erika
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Unread 01-15-2013, 06:06 PM   #18
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I have never been given an official number, on my first visit to a neuro in late 2004 one of the first things he said to me was " you don`t walk very well " LOL did you think I just came to visit? My PCP didn`t think so either and referred me to you.

On the bright side? he said I needed to be in a wheelchair (electric) and started the paperwork, and it only took two years to finally get everything done right so I could get one. LOL
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Unread 01-15-2013, 06:13 PM   #19
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I don't think my neuro wants to put that number in my head...but one thing I've noticed--during my exams, he no longer makes me perform the worst test for me. He used to have me stand with feet together, arms extended, then close my eyes. I would immediately fall into his arms.
Since I have both bladder & bowel problems, as well as dragging foot & cognitive issues serious enough that prevent me from working, I'm not sure but I would suppose I'd be around a 3 or 4...but I can't really figure it out...numbers
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Unread 01-15-2013, 07:05 PM   #20
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6.5 for me.
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