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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

**New Regimen**

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Unread 01-15-2013, 09:38 PM   #1
MiaVita2012
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I found out that I need to get root canal and my jaw fixed before I go any further in recovery....This way I do get threw recoveries and BOOM settle with it included since it did happen with accident(well except tooth)....So I discussed with my boyfriend and I asked if we could make a trip to islands before this tooth & jaw thing....Since I haven't really started 2 much therapy yet!
Do you think I'll be ok going down to islands on plane and sick on way back or both?
**But I could sleep on beach all day**

~I think I NEED to go out with a Bang now because later it could very easily a relapse in recovery~

***he said yes as long as I don't curse him out for awhile***LoL
P.S. I know this is a far and wide from a regimen...I been on bed rest 6months out of 10months and dealing with this "unknown" for almost 14months
__________________
What Happened: In 2011 I was in a MVA
.


Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems.

Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention

Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks

Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation.

~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~
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Unread 01-16-2013, 08:24 AM   #2
SmilinEyesMs305
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Getting away can really help you to stop focusing on your symptoms and all the added stress they bring to you life. My doctor suggested this on many occassions and said that if I couldn't afford going somewhere or handle a long drive, plane ride etc, that even spending the night at a friends or family members house was necessary to get away from things for a while.

Do you experience motion sickness? Did you before your accident? I know for me, I did prior to my accident, so this was compounded until I finished vestibular rehab. When I visted my parents, (6 hour drive to the beach), I took dramamine and my doctor also prescribed something to mildly sedate me, so I slept the whole way. This seemed to help.

However sadly I was hoping the calming of the ocean would help me. But I have noise sensitivity issues and the roaring ocean really made my brain unhappy. Ear plugs helped. Also, be VERY careful to keep yourself hydrated. Even the smallest amount of dehydration can make your symptoms flare like crazy! I learned that lesson the hard way and had to be carried to the car one of the days we were there. Lesson learned

Hope this helps
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What Happened: On 3/8/11 I was stopped waiting to merge into traffic when I was rear ended by someone doing 45 mph. I walked away from the accident, to fall into the pit of PCS 5 days later... (I have had 2 previous concussions, but neither developed into PCS.)

Symptoms 3 Years Post: Physical: migraines, infrequent vertigo, neck and back pain (from accident), tinnitus, visual field deficits in left eye, problematic light sensitivity, (including visual seizure activity), noise sensitivity, EXTREME fatigue, semi-frequent disrupted sleep cycles,
Cognitive: semi-frequent Brain fog after cognitive strain, limited bouts of impulsivity, unable to concentrate for more than short periods of time without fatigue, word finding problems, slowed processing speeds, impaired visual memory;
Emotional: easily overstimulated, depression, anxiety;

Treatment so far: Vestibular therapy; Physical Therapy; Vision Therapy; Vitamin Schedule; Limited caffeine; Medications; attempting to limit stress and overstimulation; Yoga; Cognitive Therapy
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MiaVita2012 (01-17-2013)
Unread 01-16-2013, 08:00 PM   #3
MiaVita2012
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Smilin~

I never had motion sickness until accident and my ears are very sensitive as well....I had went to vestibular therapy today and BOOM one of my eyes has got worse...

So I called neuro and I got to go to eye doctor now after my last yearly eye exam was in September 2012 prior to diagnosis in December 2012 resulting from accident in fall 2011...I hope I am not on my way to going blind?!?!

****Did you have changes in your eyes while doing vestibular therapy?I am at a rapid pace of change and now I wonder what tomorrow will bring me for news!

>>>I am on verge of losing it....every time I feel like I'm getting grounded BOOM!It is really turning into wild ride over here! I can't even get sad or depressed I try to laugh but end up very mad & angry and I know that this is going to make symptoms worse....but what do I have to lose...when I am feeling grounded and coping I get the ***** end of the next issue!!!!!

~I can't even think about a beach now because I might get lost over there the rate I am going! I hope I do not have to go to another specialist for eyes and wait another 2 or 3 months for that to happen! I will not be able to drive to craft store to keep sane!!!!

>>>>>I ALSO HAVE NOT GOT MEDICATION YET SINCE THE PSYCHIATRIST MOVED ME BACK ANOTHER 2WEEKS!!!!

*~*I APPRECIATE ANY FEEDBACK GREATLY*~*SMDH
__________________
What Happened: In 2011 I was in a MVA
.


Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems.

Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention

Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks

Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation.

~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~
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Unread 01-17-2013, 07:56 AM   #4
MiaVita2012
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>>I have decided that a beach could bring me some peace of mind....but the company would not so much!!!

Me and my BF have been going around and around for sometime now....It is not helping my health and I need to officially let it go!! I feel that he has tendencies to belittle me that can cause more emotional problems because financially I have lost my independence and kind of depending on him and he is in denial of my diagnosis....

**With that being said that is an argument because he has no MD and I am not in denial at all. I have been searching for over a year to get a diagnosis threw hell. ***He use to play football in college and thinks that I am just being weak***I do not need him to question this I need him to support this**I cannot make him do anything !!!

~*~Looking back at this relationship it started 5months before accident. So he does not know the real me....Like the doctors say it is time to focus on me and my child I have my family and not so much friends anymore. I feel more humble like this!! It is sad but in my eyes it is starting a new better healthier lifestyle~*~

^^^I am replacing this relationship with making organic soaps ~Who knows maybe my love & joy of this hobby will become the next Burts Bees inc^^^It does not hurt to dream**I love going to the organic markets and getting oils, herbs etc for the soaps. The smells are so soothing for positive stimulation<<<<Wish me luck on my Organic soap making
__________________
What Happened: In 2011 I was in a MVA
.


Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems.

Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention

Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks

Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation.

~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~
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