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Unread 01-19-2013, 09:25 PM   #481
SallyC
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Welcome Nimrodel. nice to meet you. Wow dear you are so young to be strapped to this neurological nightmare.

I'm glad you joined us and hope you stick around to keep us up to date on how you are doing. Anythingh we can do to help you along your diagnosis journey, we will be happy to do.

I hope your TM gets better soon.
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Unread 01-20-2013, 02:55 PM   #482
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Hello and welcome, Mary Sue. I am so sorry that you may have MS (and while caring for your daughter w MS at the same time).

I can not give you any advice on the Cervical Stenosis. With MS, you may know that it does often take some time to diagnose. Please let us know what the conversation is on Jan.30th.

Also, you will get more replies to specific questions if you start a thread asking that question below.

See you around the board,
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Unread 01-20-2013, 04:19 PM   #483
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Welcome Mary Sue, so glad you found us here at Neurotalk. Your DM & DD both have /had MS...wow...what do you think your chances are.

My DD also has MS and right now she's in total remission. I pray she stays that way forever. she's 42...MS since early 30s.

Nice to meet you.
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Unread 01-20-2013, 06:05 PM   #484
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Quote:
Originally Posted by NurseNancy View Post
hello nowakes and welcome to NT,

it can be possible to have MS and the lesions not show up for a while on mri.
but it does seem a bit odd since it sounds like you've had this for a while. and, if you're in an active flare the lesions should show up as active. odd.

did you have the mri with contrast? that shows the lesions better than without.
at least your drs are validating you and tx'ing you. i hope the roids help.
please keep in touch and let us know how you are.
I did have contrast. It is odd. They want to redo the mri's again, but it's too soon I think. I'd like to wait a while, it's too much at once for me. Get past the optical crap first. I don't know exactly what the lumbar puncture showed, but they said it was positive. I just don't get it and am very unsure. I may want to get a different set of eyes on my tests after the optical part clears.
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Unread 01-21-2013, 08:55 AM   #485
Mary Sue
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Hi everyone,

I have been very recently diagnosed with MS and am caregiver for daughter with advanced MS. From the information I have found it is unusual but not rare to be diagnosed with MS at my age (I am 73). I am also diagnosed with Crevical Spine Stenosis. Needless to say I am a wreck. Anyone have an "advanced age" diagnosis of MS? If so can you give me any advice?

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Unread 01-21-2013, 12:38 PM   #486
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Welcome to NT Mary Sue,
Hope that someone here has some useful info for you.

With love, ERika
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Unread 01-21-2013, 02:31 PM   #487
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Mary sue, I think I already welcomed you once, but welcome again.. I like you already, you're one year older than I am.

I think you have a good chance of having MS. Keep us up to date as your Doc possibly diagnoses you.
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Unread 01-22-2013, 03:06 PM   #488
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dear nowakes,

your findings both clinical and otherwise would seem to suggest MS.
can you get a 2nd opinion? that might put your mind at ease. once you can get a dx you might be able to start a tx.

don't rush into anything you're not ready for. make the dr explain to you why
he wants the mri's again this soon? maybe the films were hard to read, or weren't done right? in which case you shouldn't pay again.

my advice would be to start to keep a medical file on yourself. that means
getting copies of your mri's on a disc and getting copies from your dr of your test/lab results. if and when you see other drs it will be helpful to show them the files.

the reason i feel strongly about giving this advice is that as i was building my
case for a try at SSDI, which took 18mos, i was finally denied and told they hadn't received some vital info etc. well, my dr said it had been sent. ever since then i've kept my own records. i had to hire an attorney and won my appeal. but what a costly and stressful journey that was.

now, I'M NOT saying you will need disability. i'm only giving a good example to keep your own records.
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Unread 01-22-2013, 03:08 PM   #489
NurseNancy
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hi mary sue,

i'm so sorry about your dx and your daughter's.
i was dx'd at 53 and that was considered late by my neuro.

if you need help with resources you can call your local MS society at 1-800-FIGHT MS.

please let us know how you are.
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And whether or not it is clear to you, no doubt the universe is unfolding as it should.
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Unread 01-25-2013, 03:20 PM   #490
susanjesparza
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Quote:
Originally Posted by Dejibo View Post
hello and welcome to all the new one.
Hi I am new here. I'm really glad I found this!
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