3 years of 24/7 headache

[medstudent99]

I am a med-student who has been suffering from 24/7 bilateral eye pain and frontal head pain for over 3 years. This constant, dull, soreness and sensation of pressure has become totally disabling and I've had to completely withdraw from school and almost all other activities. I have literally seen over 100 doctors all over the United States including Ophthalmologists, Neuro-Ophthalmologists, Neurologists, Neurosurgeons, NeuroRadiologists, and Cardiologists. I have taken a myriad of different prescription medications for the pain, but they only provide short-term 30% relief of the pain at best. I was diagnosed with Idiopathic Intracranial Hypertension, but I have had shunt surgery to relieve the high CSF (cerebrospinal fluid) pressure. The pressure is normal, and the question is why am I still in pain?

I'm looking for ANY information that would lead to the resolution of the pain I experience. I've been blessed with a loving family that supports me and cares deeply for me. *edit*
here is a link to a website my father and I constructed which has my full medical history

*edit*

Despite the burden of constant pain, I will never stop fighting and searching for an answer

God Bless,
medstudent99

[razzle51]

have you ever been checked for Chiari Malformation ?

[Barry Spencer]

I always give the same advice: gradually decrease your caffeine intake from all sources, dietary and medicinal, over a number of days.

BTW: Med students have the highest caffeine use prevalence of any group! Some studies I've seen of caffeine use among med students at various med schools found caffeine use prevalences of 98, 99, and 100 percent.

[Nina.G]

Have you tried steroids injections and Gabapentin?

[imuspee]

!OMG, it's almost like reading my own story!

Started out medically treating with diamox, proceeded to have ONSF to my right eye only to have my left eye done a month later, and yet the headaches continued. Two months later had my first shunt placed, LP shunt. Headaches decreased significantly but there were still days when I had those horrible ones yet.

Am currently on topamax & gabapentin which is doing well with the headaches most days. I have a great deal of other pain with OA, RA,.. have what they often refer to as a complicated medical history...just lucky I guess.

Sorry to hear you have this & I do hope you can get back to your medical training/education. Perhaps you could change the way some (in reality, many) docs think & treat us IIH patients. Think we all have stories where we have been treated less than kind at one time or another.
Peg

Hang in there! I pray it does get better for you!

[dds4life]

I am sorry to hear that you have had a chronic headache and no specialist has been able to pinpoint the problem. I am a Reconstructive dentist with many years of experience in treating TMJ disorder. I would suspect that your pain is coming from your TMJ. Depending where you are located, I strongly suggest seeing someone with extensive experience in TMJ.

[Squidge]

Originally Posted by medstudent99

I am a med-student who has been suffering from 24/7 bilateral eye pain and frontal head pain for over 3 years. This constant, dull, soreness and sensation of pressure has become totally disabling and I've had to completely withdraw from school and almost all other activities. I have literally seen over 100 doctors all over the United States including Ophthalmologists, Neuro-Ophthalmologists, Neurologists, Neurosurgeons, NeuroRadiologists, and Cardiologists. I have taken a myriad of different prescription medications for the pain, but they only provide short-term 30% relief of the pain at best. I was diagnosed with Idiopathic Intracranial Hypertension, but I have had shunt surgery to relieve the high CSF (cerebrospinal fluid) pressure. The pressure is normal, and the question is why am I still in pain?

I'm looking for ANY information that would lead to the resolution of the pain I experience. I've been blessed with a loving family that supports me and cares deeply for me. *edit*
here is a link to a website my father and I constructed which has my full medical history

*edit*

Despite the burden of constant pain, I will never stop fighting and searching for an answer

God Bless,
medstudent99

Hi I was diagnosed with IIH 4 years ago. I had a vp shunt inserted and have had this revised many many times! My last icp reading in march this year was normal, however my headaches have been chronic and daily for the past year! My neuro surgeons referred me to a neurologist who has given me 39 injections of Botox. This was only done 2 weeks ago but so far there is some improvement, its now more like a background headache, although us still bad when I lie down or bend over. I've been told the second course in 12 weeks should work even better! IIH sufferers often end up with chronic migraine as well as the intracranial hypertension. I am very hopeful for the Botox to work, I'm glad it's been approved on the NHS in the uk x hope you're feeling better and that you get some relief x

[DevotedDad]

There has been an explosion of the amount of people who are suffering from similar symptoms as you have described.

Everyone is trying to rule out commonly referred to illness or factors that may cause these illnesses while ignoring the massive increase in chemical spraying, genetically modified food, and poisons that are being added to most of our food supply.

I can literally predict how bad my headache and pressure behind my eye will be by simply looking up in the sky and keeping a count on how many planes are chemtrailing in my neighborhood.

A lot of planes = a lot of headaches and eye pain.

If you want to find out what is happening to you, stop listening to the idiots who say: "That's a crazy conspiracy" as your head is pounding!

Originally Posted by medstudent99

I am a med-student who has been suffering from 24/7 bilateral eye pain and frontal head pain for over 3 years. This constant, dull, soreness and sensation of pressure has become totally disabling and I've had to completely withdraw from school and almost all other activities. I have literally seen over 100 doctors all over the United States including Ophthalmologists, Neuro-Ophthalmologists, Neurologists, Neurosurgeons, NeuroRadiologists, and Cardiologists. I have taken a myriad of different prescription medications for the pain, but they only provide short-term 30% relief of the pain at best. I was diagnosed with Idiopathic Intracranial Hypertension, but I have had shunt surgery to relieve the high CSF (cerebrospinal fluid) pressure. The pressure is normal, and the question is why am I still in pain?

I'm looking for ANY information that would lead to the resolution of the pain I experience. I've been blessed with a loving family that supports me and cares deeply for me. *edit*
here is a link to a website my father and I constructed which has my full medical history

*edit*

Despite the burden of constant pain, I will never stop fighting and searching for an answer

God Bless,
medstudent99