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Unsure of diagnosis

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Unread 01-25-2013, 02:07 PM   #1
Wolfie1954
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Default Unsure of diagnosis

Last Jan I was admitted to the hospital for some memory loss. It seems I had lost about 2 yrs of memory and I have continous confusion, disorientation, lack of concentration, etc.. First I was diagnosed with having a minor stroke with TIAs. After my follow ups with my first neurologist, he changed the diagnosis to Migraines and put me on Depakote 500 ML. I never had or have any headaches or any usual migraine symptoms. Each visit all he did was name 5 things and have me recall them 10 mins later. Needless to say, I changed Drs.

Neurologist #2 sent me for more blood work and reviewd all my MRIs, CT scans, EKG, EEG etc. He upped my Depakote to 1500 ML and diagnosed me with Complex Confusional Migraines. Most of my sysmptoms seemed to have eased up for about 2-3 weeks then came back full blown occuring multiple times daily.

I saw the Dr today and he is sending me for another MRI and EEG. They may be thinking it is not Confusional Migraines at all. They have ruled out early dementia and Alzheimers. I am at my wits end. I get lost when driving home at times. Afraid to go to sleep because I am so afraid I am not going to remember anything when I wake up.

Anyone else have anything like this? Physically I am very healthy for a 58 yr old. No high blood pressure, blood sugars are great, lungs are clear, heart is strong, etc. Any input would be appreciated.
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Unread 01-25-2013, 02:27 PM   #2
pabb
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Originally Posted by Wolfie1954 View Post
Last Jan I was admitted to the hospital for some memory loss. It seems I had lost about 2 yrs of memory and I have continous confusion, disorientation, lack of concentration, etc.. First I was diagnosed with having a minor stroke with TIAs. After my follow ups with my first neurologist, he changed the diagnosis to Migraines and put me on Depakote 500 ML. I never had or have any headaches or any usual migraine symptoms. Each visit all he did was name 5 things and have me recall them 10 mins later. Needless to say, I changed Drs.

Neurologist #2 sent me for more blood work and reviewd all my MRIs, CT scans, EKG, EEG etc. He upped my Depakote to 1500 ML and diagnosed me with Complex Confusional Migraines. Most of my sysmptoms seemed to have eased up for about 2-3 weeks then came back full blown occuring multiple times daily.

I saw the Dr today and he is sending me for another MRI and EEG. They may be thinking it is not Confusional Migraines at all. They have ruled out early dementia and Alzheimers. I am at my wits end. I get lost when driving home at times. Afraid to go to sleep because I am so afraid I am not going to remember anything when I wake up.

Anyone else have anything like this? Physically I am very healthy for a 58 yr old. No high blood pressure, blood sugars are great, lungs are clear, heart is strong, etc. Any input would be appreciated.
get checked out for B12 def. any possiblity of poisonings of any kind?
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Unread 01-25-2013, 03:20 PM   #3
Wolfie1954
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get checked out for B12 def. any possiblity of poisonings of any kind?
They did check for any deficencies and toxins. Everything came back fine. I even went for Psychological testing and everything is fine there.
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Unread 01-25-2013, 04:05 PM   #4
mrsD
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Are you using a statin drug for cholesterol? They cause memory loss.
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Unread 01-27-2013, 04:54 PM   #5
Wolfie1954
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Are you using a statin drug for cholesterol? They cause memory loss.
the only medication I am on is Depakote ER and daily low dose aspirin daily.
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Unread 01-27-2013, 05:28 PM   #6
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I am sorry you have to go thru this. It sounds very frightening.

I can only comment on drug use...Not MRI data.

But I would get a B12 serum test, and get the numerical results... It should be at least 400pg/ml (US units) and preferably higher.

Low B12 can affect brain functions. The lab ranges have not caught up with the new treatment protocols for B12, so don't accept "normal" from any doctor without the actual numbers.

In the US the gov't recommendations now for people 50 and over are to take a B12 supplement daily. It is really an important nutrient and can become very low quickly, in many people.
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Unread 01-27-2013, 05:48 PM   #7
peacheysncream
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Dear Wolfie,

Have you hit your head recently? Are you sure you are not suffering a bad concussion? I do not know the circumstances under which you were admitted to ER. But maybe the docs missed the obvious. Just an idea

Take care
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