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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

Living with Brain Injury

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Unread 01-28-2013, 12:02 AM   #1
SpaceCadet
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Default Living with Brain Injury

I'm not sure if this has been posted before but here's the link to a really great TBI guide:

Missouri Green Book: Living with Brain Injury
http://health.mo.gov/living/families...eGreenBook.pdf

It's in PDF format, so you will need to have a PDF file reader like Adobe installed on your computer. If you want to view it in HTML format, just Google: Missouri Green Book Living with Brain Injury and below the link will be an option to view the HTML version.

Lots of useful information in there for adults and children.

Cheers,

Nick
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What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid and SSI.

Current symptoms: Brain fog, anxiety, panic attacks, memory issues, confusion, problems with spontaneity, sensitive to loud noises, trouble thinking, problems with producing speech, spacing out, word finding difficulties, tinnitus in both ears, random tingling in different parts of my head and many other things that I can't explain. I'm very easily overloaded which makes it nearly impossible to watch TV or use the computer.

Slowly but surely regaining my life back.
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Unread 01-28-2013, 12:26 AM   #2
Mark in Idaho
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Very interesting and intense. It has very little information about concussions and PCS. Some of the concussion information is inaccurate. We should not be surprised.

I caution people from trying to read it through. It may be way too much stimulation and cognitive effort to process. There is a very good and simple diagram of the brain that helps people understand the areas that cause certain symptoms.

Those with upper neck injuries may find the breathing and heart rate area important.
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59 years old, retired due to disability, married 34 years, father of three, grandfather of four, Suffered a serious concussion at 10 years old (1965) stopped most driving after concussion at 46 years old (2001), Post Concussion Syndrome/Multiple Concussion/Impact Syndrome with PTSD, immediate/short term visual and auditory memory problems, slowed processing speed, visual/auditory processing difficulties, insomnia, absence seizures, OCD, 14 concussions since first concussion at 8 years old, Taking paroxetine for 14 years and gabapentin for 12 years. Added L-Tryptophan and stopped paroxetine after 3 months of tapering. I currently take 500 mgs of L-Tryptophan AM, 500 mgs noon, and 500 mgs PM.


As of Nov 15th, Due to high stress issues resulting in PTSD, docs put me on 3 meds. Clonazepam but only for 30 days ) .125 mgs twice daily (Doc presc. .25 mgs 2x daily but half a tablet is good) , citalopram (Celexa), an SSRI , and olanzapine (Zyprexa), an atypical anti-psychotic that usually causes weight gain before bed. I lost over 30 pounds since mid July. It just stopped the weight loss. Took me off the gabapentin. I am feeling better than I have in years.

This great feeling only lasted a month. Back to the same old PCS doldrums.

May 2014, I am off the olanzapine due to a 6 fold price increase. Back on 600 mgs of gabapentin before bed.

I am also taking L-Theanine to help with GABA regulation


"Be Still and Know That I am God" Psalm 46:10

Last edited by Mark in Idaho; 01-28-2013 at 04:59 AM.
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Unread 01-28-2013, 12:44 AM   #3
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It's not perfect, nothing is perfect. Especially when it comes to brain injury because there is still little known about it. But, I'm sure everyone, from TBI/concussion survivors to caregivers will find something in there helpful.

I forgot to mention the part about reading it in one sitting. It's very lengthy and will most likely overload your systems if you try to read more than one chapter at a time. Find a chapter that interests you, read it and come back for more later.

Enjoy.
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What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid and SSI.

Current symptoms: Brain fog, anxiety, panic attacks, memory issues, confusion, problems with spontaneity, sensitive to loud noises, trouble thinking, problems with producing speech, spacing out, word finding difficulties, tinnitus in both ears, random tingling in different parts of my head and many other things that I can't explain. I'm very easily overloaded which makes it nearly impossible to watch TV or use the computer.

Slowly but surely regaining my life back.
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