So happy that I am able to spread the word to fellow RSD/CRPS'ers.
My mother suffers from CRPS in her left leg. Cannot explain to you how badly this has changed her life and ours. Her pain is just to much to handle. Up until now the pain and depression had taken over her life. We were researching Ketamine treatments, we're desperate. It was that time that I prayed and received an email the next day!
Has anyone heard of Calmare Pain Therapy Treatment!?
Its new, developed in Italy.
There are currently only 20 of the machines in the US.
I was lucky enough to get my mother into the only doctor located on the West Coast.
She had consult yesterday
and her first treatment today!
She literally went from a 8-9 pain to walking out pain free!!
Wow is all I can say.
You can research it, but basically it scrambles the brain. It re-programs the brain that there is no pain there.
Its non invasive, no side effects and ITS NOT PAIN FULL!
Usually it consists of 10-12 treatments 45 min
these are done every day.
The pain is gone immediately and lasts for a few hours.
Gradually the pain comes back
However, each day the therapy is done it comes back less and less
until finally, its gone completely or at a 1-2.
Some people have gone 3 months pain free to 1 year!
If the pain comes back, you simply go back in for a booster treatment!
This is such a MAJOR breakthrough for people with the chronic pain condition and my mom is proof!! SO exciting I had to share the success. and did I mention its something like 91% effective!!
Originally Posted by Wibley
I have been reading posts on this site for the last 3 weeks when my insomnia and high pain kick in and have finally decided to post about how my diagnosis of CRPS came about.
I had 6 ankle/foot surgeries (same leg) in about a 12 year time span, The last surgery was a double arthrodesis. Did fine for about 5 years, then fell off the walkway to my house ( only 2" tall) and really twisted my ankle. Had the usual x-rays, MRI scans, in a boot for 6 wks, casted for 8 wks, still not healing.
I was then sent to a trauma surgeon who then told me I was in BIG trouble. Oh Yea ! When all was said and done, I went in to surgery#7 for 7+ hours, had 13 screws, 8 fractures, 5 bone fusions and now a triple arthrodesis.
Now I have no wt bearing for 16 wks, went in to get cast removed, bones not healing, 4 more weeks in cast. After that time he took the cast off and I started PT. Only allowed to WT bear in the pool. Well I spent 53 weeks in therapy, at the end I could wt bear/walk for 15 mins max with crutches. Next 3 visits to surgeon no change, x-rays a tiny bit better, the fusions did take well. So now I can walk 10 ft without crutches but need things to balance against, since I have no balance at all.
My surgeon sends me to an Anesthesia pain Dr. 4 weeks ago, after a physical and review of all tests, diagnosed with CRPS. I have had 3 lumbar sympathetic nerve blocks, and the 3rd block was a breakthru, 15 mins later you could see my blue foot actually get pink and instantly warmer.
So, where I stand( well no, actually sit in my wheelchair) I will have the nerve blocks once a weekfor now and started on Lyrica 300 mg day and have had good results with the nerve pain and burning. Unfortunately the deep i call it dark pain is still present, even with Tramadol 6x a day. So I am going to ask Dr about meds for the break thru pain. He wants to start PT again while I have the nerve blocks so that will probably start next week, My BIG concern now is that my left knee is now getting really stiff and if I flex to much painful, concerned that the CRPS is creeping up. So now for the past 18months I have been dependent on my wheelchair for any activities outside the house, and am very fortunate that I can get out of the house of course usually for Dr appointments.
Sorry for such a long explanation but this is my story.