Originally Posted by crimsoncrew
soccertese, I am not on meds, yet. Got a recent dx of "Parkinsonian syndrome", but anxiously waiting for a follow-up appointment with a movement disorder specialist to get into the details of what exactly I have. I'm truly hoping that I can stay active with athletic activities and sports for as long as possible. Sounds like you stayed very active for many years before getting on meds - any advice you can share on how to make this happen?
Nan, I did row crew in college, and actually still row now, though I dread thinking about how much longer I can continue before I have to stop... With the stationary cycling, I will try the one leg at a time routine and see how it goes. It's frustrating that one leg can't keep up with the other - I feel myself wobble and gyrate in the bike seat from one side to the other when I try to use both feet.
i certainly was an exercise junkie for those years, playing soccer, running, weights, swimming, for all those years. a lot of aerobic exercise, like 4-5 days/week since i played a men's soccer game twice a week and a pickup game on sunday. won't bore you with the other details. suffice it to say, after i stopped playing soccer my pd seemed to progress faster. i stopped because i just couldn't keep up with my peers anymore, 40 year old men are very competitive, and i rationally or irrationally didn't want to have to start taking enough pd meds to try to continue to play so i quit. back then there wasn't the buzz over exercise that there is now otherwise i would have kept up the same aerobic load via other activities that i was getting from soccer.
during my "drug free" years, took a lot of supplements, took the 1200mg/day coq-10, ginseng, b-12, vit-e, vit-c , etc. but can't say anything helped slow my progression.
things i tried that i wouldn't recommend to anyone is chelation therapy and I.V glutathione. i tried the chelation therapy because strangely enough, my PD symptoms got worse a few days after having my mercury amalgams removed, i had this done because my dental insurance was going to run out, my old filling were starting to fall out and decided to have the 3-4 fillings replaced, nothing to do with pd. i found a MD who specialized in this, got a metals and hair analysis which didn't show i was high in anything except interestingly enough the imaging agent used in the MRI i had had a week earlier which was surprising since it was supposed to be cleared out in a day.
i switched to a do it yourself chelation, the CUTLER PROTOCOL, requires a RX. Desperate people do desperate things.