Go Back   NeuroTalk Support Groups > General > New Member Introductions

New Member Introductions Welcome to our community! Come in and introduce yourself to other members!!

New

Reply
Thread Tools Display Modes
Unread 01-10-2013, 09:45 PM   #1
Floyd b
Junior Member
 
Join Date: Jan 2013
Posts: 6
Default New

Hello
I'm new to the board. It seems to have a lot of useful information
Floyd b is offline   Reply With Quote
Unread 01-11-2013, 12:43 AM   #2
Rrae
Grand Magnate
 
Rrae's Avatar
 
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,106
My Mood:
Smile Hello Floyd!

Welcome to NT!

You've come to a wonderful place of support and understanding!
Let us know what brings you here and you'll find that
there are many caring people here, easy to talk to, and very down-to-earth, so make yourself right at home. Look through the different forums and post anywhere you feel inclined.

Just holler if you have any questions or need help in finding your way around.

It's great to have you!


Rae
Rrae is offline   Reply With Quote
Unread 01-11-2013, 01:19 AM   #3
Darlene
Legendary
Community Welcome Team
 
Darlene's Avatar
 
Join Date: Sep 2006
Location: Once a Texan, always a Texan.
Posts: 11,035
My Mood:
Wink Greetings!!


Floyd,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.
__________________

.
"Life without God is like an unsharpened pencil -- it has no point.
Darlene is offline   Reply With Quote
Unread 01-11-2013, 08:56 AM   #4
Floyd b
Junior Member
 
Join Date: Jan 2013
Posts: 6
Default Symptoms

Thanks for the welcome.
I was given an mri in December for weakness in my tongue,jaw area while chewing. My arms have also become sooo tired while hanging up clothes or washing dishes or even some times just walking. They have been going on for over a year. I've had two ncv test and also two emg test that were normal. The mri showed moderate diffuse cerebellar atrophy. My neurologist dx spinocerebellar ataxia. I had been having leg problems for 2+ years. I had been told it was the result from my lower back problems. I have severe narrowing at two different level of my lowere spine. My legs tingle and burn 24/7. I also have strange vibrations , like a cell phone is going off in my thigh sometimes. I now am waiting on my genetic test results to see what type of spinocerebellar ataxia it is. I'm worried but am glad to have a dx after all this time.
Sorry for the long post
Floyd b is offline   Reply With Quote
Unread 01-12-2013, 01:00 AM   #5
Darlene
Legendary
Community Welcome Team
 
Darlene's Avatar
 
Join Date: Sep 2006
Location: Once a Texan, always a Texan.
Posts: 11,035
My Mood:
Default

Floyd,

Check into the following forum, there sure be some fellow members there to help you out.

General Health Conditions & Rare Disorders:
http://neurotalk.psychcentral.com/forum2.html

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.
__________________

.
"Life without God is like an unsharpened pencil -- it has no point.
Darlene is offline   Reply With Quote
Unread 01-28-2013, 02:11 PM   #6
Floyd b
Junior Member
 
Join Date: Jan 2013
Posts: 6
Default

Just bumping this thread. No one has replied, so please if anyone has anything to add please so. Thanks
Floyd b is offline   Reply With Quote
Unread 02-03-2013, 12:24 AM   #7
Rrae
Grand Magnate
 
Rrae's Avatar
 
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,106
My Mood:
Smile Hi Floyd

Have you heard back from your Dr regarding the genetic tests?

I don't know much about ataxia, but the symptoms you describe in your legs sound very familiar. I battled horrible unrelenting burning pain in both my legs for 6 yrs.....went to umpteen different types of specialists tring to get a solid diagnosis.
I'm not saying this is what you have by all means, but what you describe in your legs sounds like nerve pain (neuropathy), as tho your nerves have been mis-firing.
It might be worth it to check out the Peripheral Neuropathy forum.
In my case, I had other issues going on, such as my thyroid wasn't functioning right. I have HyPOthyroidism. Have you had your thyroid checked lately? I was very tired all the time. I am since on maintenance meds for that, but all these issues I had going on kind of all worked together to create the 'perfect storm' in my body.

Here's the PN forum:
http://neurotalk.psychcentral.com/fo...aysprune=&f=20

My lower back pain from a slight scoliosis and arthritic deterioration also contributed to the neuropathy. The sympathetic nerve chain is responsible for the nerves that run along your lower extremities. I had a SNB (sympathetic nerve block) injection, which I responded very favorably to.
There are options out there to help control this type of pain.

Hopefully you will get some answers very soon. In alot of cases, it's a matter of process by elimination before diagnostic answers become evident.

Just throwin some ideas in there air....I certainly don't claim to know much , but when I read what you described about your legs, it really caught my attention.

Caring,
Rae
Rrae is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump


All times are GMT -5. The time now is 06:09 AM.
Brought to you by the fine folks who publish mental health and psychology information at Psych Central Mental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.


Powered by vBulletin • Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.


All posts copyright their original authors Community Guidelines Terms of Use Privacy Policy
NeuroTalk Archives