Originally Posted by OzKira
I have only just seen your post. I am in Melbourne as well. haematologist's here tend to fob you off here unless you have cancer. Thats what mine did with me. I am on thinners for life after 2 clots. I am on my 2nd Vascular specialist after the first one was a big fail. I am looking at surgery also but still doing the TOS shuffle between my Neurosurgeon and Vascular. How have things been for you and have you had any success with dr's?
Well it's been about a year since I last posted on here and just stumbled upon it, as I am now researching rib resections.
After a year of tests, delays, 2nd, 3rd, 4th opinions, my specialists have all concluded the same thing you had 12 months ago! I need a bilateral first rib resection.
I am meeting with a vascular surgeon in the next coming weeks to discuss my path towards surgery.
It has been a frustrating and long year, with many specialists never seeing a case like mine before and not having the slightest idea how to tackle the problem.
I'll keep you all updated as I finally move forward to recovery!