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how often do you take Mestinon?

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Unread 02-05-2013, 08:03 AM   #11
StephC
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Southblues

No it doesnt in fact i still have to take miralax 2x per day, every day. however i have had chronic constipation since the guillain barre in 1984 which at least now i am regular.
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Unread 02-05-2013, 06:05 PM   #12
FREDH
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Hi all,

I just increased to 4 x 60 mil a day. Really have noticed lately what you are all saying about lasting 3 to 4 hours. Was having a little problem with droppy eyelid, at 3 x 60 mil, and feel this has helped quite a bit. However, I can still it wearing off at about 3 and 1/2 hours. This time of the year in South Texas, I have bad alergies, and may have contibuted. Once the alergy problem lets up, I may try 3 again, as I was fine on that before. I am new to mg and am still learning so we will will see.
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Unread 02-05-2013, 06:51 PM   #13
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hi, Im currently taking 90mg 3x a day, and a mestinon timespan 180mg for nights. when i cant swallow i use the mestinon syrup. used to take 60mg 3x but doctor just up'd it to 90mg. also if im really bad i take half a 60mg with my timespan.
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Unread 02-05-2013, 08:20 PM   #14
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I think I am going to give it 1 more week and call the optic neurologist and ask to go on 60 mg 4 times a day. Right now I am still home from my fall last week. I am exhausted by 3pm and need a 3 hr nap. That will not fly when I go back to work next week. I get so weak by mid afternoon.

kathie
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Unread 02-06-2013, 04:45 PM   #15
FREDH
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Quote:
Originally Posted by cait24 View Post
I think I am going to give it 1 more week and call the optic neurologist and ask to go on 60 mg 4 times a day. Right now I am still home from my fall last week. I am exhausted by 3pm and need a 3 hr nap. That will not fly when I go back to work next week. I get so weak by mid afternoon.

kathie
kATHIE,

iT SEEMS TO HAVE HEIPED ME SOME, TOO SOON TO SAY FOR SURE. wHEN THE EYE DROPPING BEGAN , I REALIZED I WAS TAKING 1- 60 AT 7;00 AM, 1 AT 11;30, AND THEN WENT UNTIL 7;00 PM FOR THE 3RD, AT SUPPER. NOW I GET A PAGAGE OF PEANUT CRACKERS, HAVE ABOUT 3, AND TAKE ONE AT 3:30 PM, THEN 7:30 PM. I WILL JUST HAVE TO SEE IF IT IS REALLY BETTER IN TIME
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Unread 02-08-2013, 07:23 PM   #16
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I talked to the neuro's nurse. She said it is ok to up the mestinon to 60 mg x4. I am taking it at 7am, 11am, 3pm and 7pm. Hopefully there will be less than of a rollercoaster.

thanks
kathie
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Unread 02-09-2013, 09:46 AM   #17
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Quote:
Originally Posted by cait24 View Post
I have just started taking Mestinon. I take a 60 mg pill 3 times a day, so that is about 6 hours apart. But the medication wears off after about 3.5 hours. So how often and how much does everyone take? Does anyone take it every 4 hrs?

thanks, kathie
if you do not have any convulsive conditions ask about DAP(diaminopyridine) i find that the combination of the two medicines helps me live an almost normal life.
jim
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Unread 02-09-2013, 11:36 AM   #18
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jim, i saw an article that they use this a lot in Europe. Is this becoming standard in the US too? Has anyone else's doctor prescribed this? Are there any other companion drugs or supplements for MG that I should know about?

thanks everyone,
kathie
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Unread 02-10-2013, 04:28 PM   #19
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Originally Posted by cait24 View Post
jim, i saw an article that they use this a lot in Europe. Is this becoming standard in the US too? Has anyone else's doctor prescribed this? Are there any other companion drugs or supplements for MG that I should know about?

thanks everyone,
kathie
I live in rochester , new york . The university of rochester is involved in a study of DAP . I would guess that if you contacted a hospital with a neurology department , maybe they have a similar study . The name of the producer of this med. is jacobus pharmaceutical co. inc.
I started taking it the last part of '09 (I couldn't afford mestinon),the only side effect I experience is an occasional , very ,very slight tingling in the lips which is only occasional and goes away in a few minutes . This is an easy price to pay for being comfortable walking again.
Good luck and keep in touch.
jim
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