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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

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Unread 02-10-2013, 06:21 PM   #11
ginnie
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Default Dear gr8ful

Welcome to Neuro Talk. You found a good bunch of people. Glad to have you here, but sorry that you are going through possible mg. I just wanted to stop by and say hello and a big welcome. ginnie
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Unread 02-11-2013, 12:08 PM   #12
scrubbs
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southblues;

If the time ever comes when you have to talk to your administrators, make sure you know your rights under the Family and Medical Leave Act.
http://www.dol.gov/whd/fmla/

Your doctors will be the ones you want to talk to before your administrators.

scrubbs
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Unread 02-11-2013, 08:54 PM   #13
Tracy9
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It sounds like so far, you aren't experiencing too much impairment, which is great! Some people I've met online don't get too bad. Others of us, like myself, are in bed a lot and can't work anymore. Like others said, there is no way to predict. I think judging by where you are now, you are in good shape and hopefully things will stay that way.

I was already really sick when I got diagnosed. I got sicker from there. Even so, I can still find a lot to be grateful for. In this age of the internet, we can have a decent quality of life even being bedridden. It can be a daily struggle to be inspired to be grateful, but I have the best friends I've ever had in my life since I became ill. I'm also closer to God and have a new, wonderful church family. I learned what is important and what isn't. I went from being a workaholic to someone who is at a standstill, but I'm much more present for my family.
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Unread 02-11-2013, 09:31 PM   #14
gr8ful
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Well, I like my doctor. She told me I would be OK but she didn't know what the process of me being OK would entail. My 1st dose of mestinon fixed the ptosis. There's lots of testing scheduled. It's time to hunker down and deal with a chronic illness. I can do that. I don't want to, but I will.

I'm not sure that's my 'final answer' on acceptance. My thoughts are all over the place.
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Unread 02-13-2013, 09:29 AM   #15
gr8ful
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I had a CAT scan yesterday and they found a thymoma. I'm meeting with a surgeon next week. My neuro said removing the tumor could eliminate my MG. That sure would be a twist on this roller coaster ride I'm on. I was just starting to get used to being myasthinic and just hoping symptoms didn't get worse in the next year. Now, there's more thoughts to process.

I want to thank this forum for giving me a place to vent to knowlegable and understanding people. This process has been hard for me and yet, so far, I've been lucky. Thanks....
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