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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

Is this normal??

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Unread 02-12-2013, 01:54 PM   #1
peacheysncream
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Question Is this normal??

Once again my computer denied me access for ages. I hope you are all progressing.

It's been good news for me. I want to share with you ....Finally saw my neurologist and he took me seriously. Organised an MRI and an EEG. I already have my appt's!

I know memory is an issue for most of us PC. But how many of you suffer an illogical brain? For instance I can be holding the kettle and not know what to do with it. Or a client can ask me a question and because I have been put on the spot I do not know what to say. It is not until about 2 hrs later that I will work out the answer.

Is this a common problem for you?
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I am a 34 yr old female who has played football, as a hobby, for 13 yrs. In July 2012, during a game I was slammed to the floor by two angry guys who hit into me so hard that one of them broke their ribs.

This knocked me back onto hard ground leaving me unconscious. I awoke to chronic head and neck pain, sickness and the inability to see or balance.

The paramedics made me walk to the ambulance, instead of placing me on a spinal board, where I was taken to the ER. I was hospitalised with suspected brain hemorrhage for 1 week, then on complete bed rest for 1 month, in a wheelchair for 2 months.

I have been left with PCS, moderate constant head pain, little short term memory, no memory of the accident, balance and sight problems, depression and exhaustion.

The worst problem is collapsing regularly. This has finally been diagnosed as Hemiplegic Migraines , these cause my brain to regularly shut down when I am tired and I then feel the full effects of a stroke (without the bleed on the brain!!) of which the symptoms last 2-4 days.


I have had 6 CT's, 2 MRI's and am under 3 specialists.

I believe everyday is one more towards improvement. Mainly I believe in the power of acceptance not the weakness of complacency or resignation.

Last edited by peacheysncream; 02-12-2013 at 01:56 PM. Reason: spelling
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Unread 02-12-2013, 03:35 PM   #2
Mark in Idaho
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I have this problem often. This is most common when there are stressors like a felt need to be quick with a response. The pot in the hand is a loss of focus.

I find that it helps to try to act with purpose rather than in an assumed natural flow. By this I mean, as I pick up the pot, I am thinking or planning my next move. Expecting the next move to come naturally or instinctively will lead to these situations. Some of us call them brain farts. They are embarrassing, and we can't believe they came out of us.

It helps to learn to stop to think. This means clearing your mind of conflicting thoughts and stimuli. I even close my eyes to try to get my focus. When my wife sees me close my eyes, she recognizes that I am struggling.

Glad to hear you found a neuro who at least will listen. I doubt the MRI or EEG will show anything. But it will help him rule out more serious injuries. It might be worthwhile to ask if the MRI could include images with your head turned sharply to the right and left. This can show weakness in the cervical ligaments.

My best to you.
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59 years old, retired due to disability, married 34 years, father of three, grandfather of four, Suffered a serious concussion at 10 years old (1965) stopped most driving after concussion at 46 years old (2001), Post Concussion Syndrome/Multiple Concussion/Impact Syndrome with PTSD, immediate/short term visual and auditory memory problems, slowed processing speed, visual/auditory processing difficulties, insomnia, absence seizures, OCD, 14 concussions since first concussion at 8 years old, Taking paroxetine for 14 years and gabapentin for 12 years. Added L-Tryptophan and stopped paroxetine after 3 months of tapering. I currently take 500 mgs of L-Tryptophan AM, 500 mgs noon, and 500 mgs PM.


As of Nov 15th, Due to high stress issues resulting in PTSD, docs put me on 3 meds. Clonazepam but only for 30 days ) .125 mgs twice daily (Doc presc. .25 mgs 2x daily but half a tablet is good) , citalopram (Celexa), an SSRI , and olanzapine (Zyprexa), an atypical anti-psychotic that usually causes weight gain before bed. I lost over 30 pounds since mid July. It just stopped the weight loss. Took me off the gabapentin. I am feeling better than I have in years.

This great feeling only lasted a month. Back to the same old PCS doldrums.

May 2014, I am off the olanzapine due to a 6 fold price increase. Back on 600 mgs of gabapentin before bed.

I am also taking L-Theanine to help with GABA regulation


"Be Still and Know That I am God" Psalm 46:10
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Unread 02-12-2013, 04:01 PM   #3
JUSTLORILEE
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Me too often and Mark is right.

Don't stress about it I found my self freaking out as I couldn't remember how to use a pen . Just stop put the object down, close your eyes and stop, take a deep breath open your eyes and realize we all are there with you.

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March 25 2012
49 year old female slipped on soap in store crashed head first into shelf after I hit shelf I apparently collapsed backwards hit back of head on concrete floor.(dent in front of head 1 inch gash in back of head both on Left side)
Unconscious less than 30 sec

2 CAT scans clear no damage
Nausea, dizziness, headaches,memory loss , aphasia, cognitive issues , balance issues , anxiety, personality changes, some depression.
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Unread 02-12-2013, 04:44 PM   #4
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Quote:
Originally Posted by JUSTLORILEE View Post
Me too often and Mark is right.

Don't stress about it I found my self freaking out as I couldn't remember how to use a pen . Just stop put the object down, close your eyes and stop, take a deep breath open your eyes and realize we all are there with you.

__________
March 25 2012
49 year old female slipped on soap in store crashed head first into shelf after I hit shelf I apparently collapsed backwards hit back of head on concrete floor.(dent in front of head 1 inch gash in back of head both on Left side)
Unconscious less than 30 sec

2 CAT scans clear no damage
Nausea, dizziness, headaches,memory loss , aphasia, cognitive issues , balance issues , anxiety, personality changes, some depression.
______
I do this , especially when I go out and walk the dogs, and the brightness of the sun, and the colors start their glaring sparkles and the glowing shining of the contrasting colors start making feel my vision 'wobbling' into my own brand of vertigo.

One step, close eyes, open , next step. etc.
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Current: Changes of more insomnia, new reviews with findings of more Depression, tremors, vertigo, tinnitus, loss of focus, fatigue; SSDI - accepted on Depression, Cognitive Deficits; Seizures ruled out, mTBI changes including cognitive slowing/lapses.
Medication update: Topamax 200mg twice daily it seems to minimize daily headaches to a 1-2/10 quality(I still know they are there); and acute headaches erupt without warnings.
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Unread 02-12-2013, 05:45 PM   #5
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I do this often. In my line of work I used to work with many lines of logic and nested logic programming. I find I can no longer keep these operations and their expected results in focus. It is just too much. The neuro-psych explained it this way. Because of my processing speed deficits even though I may read, hear or visually take it in, bits of info just can not make it into short term memory. When that happens I just stop or sit there like my brain is grinding away with out that crucial bit of info. His recommendation is to slow down and only do one thing at a time. Looks like multitasking is not an option for me.
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49, Male Married, PCS since June 2012, headaches, Back pain, neck pain, attention deficit, concentration deficit, processing speed deficit, verbal memory deficit, PTSD, fatigue, tinutitus, tremors.

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Unread 02-13-2013, 05:53 AM   #6
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[quote=rmschaver;956662]I do this often. In my line of work I used to work with many lines of logic and nested logic programming. I find I can no longer keep these operations and their expected results in focus. It is just too much. The neuro-psych explained it this way. Because of my processing speed deficits even though I may read, hear or visually take it in, bits of info just can not make it into short term memory. When that happens I just stop or sit there like my brain is grinding away with out that crucial bit of info. His recommendation is to slow down and only do one thing at a time. Looks like multitasking is not an option for me.[/QUOTE

I find exactly the same, even the my role in IT used to involve a lot of complex technical, business and legal understanding, post accident I find even following a simple recipe difficult. I can read the words, but it will take me many rereads to get the gist of what I am suposed to do.

And for multitasking forget it - can't cope with more than one thing at a time or be interupted
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January 2012 tripped over a power cable and life has changed - memory, mood, balance and puzzled. Now how do I fix it ?
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Unread 02-13-2013, 04:52 PM   #7
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Thank you for all your replies.
It is worrying isn't it when others around you seem normal and you are developing symptoms that are not normal.
It is good to know I am not alone and very interesting to understand how our brains function with regard to seeing, hearing and retaining.
My best to you all.
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Unread 02-13-2013, 07:37 PM   #8
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Welcome, maybe we are not what some consider normal. I for one know we have a lot to offer and just because we are injured does not make us less valuable!
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49, Male Married, PCS since June 2012, headaches, Back pain, neck pain, attention deficit, concentration deficit, processing speed deficit, verbal memory deficit, PTSD, fatigue, tinutitus, tremors.

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