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How many here have Lems?

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Unread 02-12-2013, 11:18 PM   #31
seishin
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Thanks, I'll be sending it right away. Mestinon helps with some of the general weakness but hasn't touched my throat.
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Unread 02-12-2013, 11:19 PM   #32
bny806
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Yes, me too, as far as the appearance goes.. I'll look in the mirror and think, ah.. I look my age yay! and then hours later I look like an older grumpy person... At my worst symptoms I couldn't even smile.. I was so upset several months into this all that I wanted to cry.. and then just got more upset when my face wouldn't make the "crying face"....


I have had times where it feels like the back of my throat is touching the front..I had a few days about 6 months ago where my swallowing was so bad I just avoided eating and drinking much (smart I know).. but I felt like gagging as my throat felt like it was collapsing... At one point I tried to speak and it was like my throat was closed so no voice came out.. that only lasted a few hours.. thank goodness.. and now I'm almost back to normal as far as that aspect goes (i'm 1 week post IVIG)..

Yes, I have swallowed and then almost gotten sick as my throat was stuck- too dry to swallow.. they thought I may have sjogrens at some point. but dont' feel like that really fits
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Unread 02-12-2013, 11:24 PM   #33
limpy
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[quote=bny806;956747]Yes, me too, as far as the appearance goes.. I'll look in the mirror and think, ah.. I look my age yay! and then hours later I look like an older grumpy person... At my worst symptoms I couldn't even smile.. I was so upset several months into this all that I wanted to cry.. and then just got more upset when my face wouldn't make the "crying face"....

When I am really weak my face looks like one of those masks that represent the theater. But not the on that is smiling. And you are right, it is very upsetting.
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Unread 02-13-2013, 12:04 AM   #34
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Quote:
Originally Posted by seishin View Post
Thanks, I'll be sending it right away. Mestinon helps with some of the general weakness but hasn't touched my throat.
Seishin,
I tried to answer your pm but I don't know if it went through. It told me there was an error. I may have done something wrong.
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"Thanks for this!" says:
seishin (02-13-2013)
Unread 02-13-2013, 12:13 AM   #35
seishin
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I didn't receive it so thanks for letting me know!
I forgot to add to the Timeline I had pain in the bottom of my feet for several months when walking, podiatrist couldn't see why.
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Unread 02-13-2013, 08:37 AM   #36
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Quote:
Originally Posted by limpy View Post
Seishin,
I tried to answer your pm but I don't know if it went through. It told me there was an error. I may have done something wrong.
I think that some pop-up blockers interfere with neurotalk's private message system. If you're having trouble with Chrome, try Internet Explorer.

Abby
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Unread 02-13-2013, 09:32 AM   #37
seishin
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If it's a new message, it'll say there's an error if there's not a title on the message, too. That happened to me yesterday.
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