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Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.

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Unread 02-11-2013, 09:23 AM   #11
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ive been "milking" my pec minor..like i can press these little bubble things and milk them out. also pressing into the area under collarbone on p minor and i guess those qualify as trigger points because i feel it in my elbows and wrist

if i rake over the muscle with my hands i hear the bone underneath. is that normal??

this has helped

working on my scalenes tends to just irritate me more than anything. i really think theyre just reacting to everything else, including my awful tmj

my brachial plexus being scarred scares the **** out of me. when i got shooting pains up and down my arms im sure i scarred it. i guess whatever controlls my serratus anterior. i couldnt lift my arms for a fwe days..that was years ago now tho

i wish i coudl sleep on my back. if i do the pec minor stretch in the morning, hands always tingle. from a bad sleeping position im assuming
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Unread 02-14-2013, 12:02 AM   #12
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You're hearing fascia breaking up. Not really bone. Just my experience with pecs, scalenes, arms, elbows, wropists, thumbs, last two fingers on each hand, tmj...

Oddly as it may sound, at one time I found peace and comfort realizing my arms were not going to fall off or explode.

Baby, I've been there. Dark period in my life...

My therapist and I did know, Botox injections eased my popping tmj, for about two weeks. Yeah, that's about how long the relief lasted, to the tune of $400 a pop. It did give me a step up on the recovery ladder. Also cause my right eyelid to droop. I could see that more prominent during the two weeks, too. I asked the Ent doc about that, too. His reply was, "No way. You're not wired up that way." And he raised his rates.

Is a cold, cold world we find ourselves in...

I love NT because people here know where I'm coming from. They've been there, too.

It's not all bad, though. You just need to get some positive things going on for you.

A good pain management doc told me, it would be like peeling the layers off an onion. Boy, was he ever right. I saw him one month after Dr. Powell And he adamantly disagreed and challenged Dr. Powell's diagnosis. So, word to the wise, let the buyer beware and be informed. We are consumers of a big business. I don't mind doctors and healthcare professionals make good/great money for their education, knowledge, skills and expertise. When you find the right one, it will make a big difference. It will not be no quick fix, my friend.

We're here for you.

BTW, keyboarding, which I do for a living, doesn't help. Ergonomics is a must.
Relaxation and deep belly breathing techniques is a must. Yoga is a good starting point. Don't worry about impressing anyone. Just do what you can. Use a chair for tree pose, and the like. Just don't do nothing, ok?

Don't worry about typing mistakes. Just move on. Well get it, ok...
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Unread 02-14-2013, 09:59 AM   #13
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thanks wow, well i guess botox is overrated then. i won't press for that anymore.

i still think id benefit from accupuncture and its a hell of a lot cheaper. i do a few pilates moves every day when definitely help. i wish i could do more.

i can barely keyboard with my hands being this numb 24/7 and i cant double click on a mouse, i have to hold a marker and do it, im amazed i can even work part time. i keep worrying im going to get fired

it sucks when i feel like ive made so much progress with the fascia/onion layers and then i wake up and its like all tight all over again!!!!! even when ive slept great. ugh
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Unread 02-14-2013, 09:50 PM   #14
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Quote:
Originally Posted by mspennyloafer View Post
thanks wow, well i guess botox is overrated then. i won't press for that anymore.

i still think id benefit from accupuncture and its a hell of a lot cheaper. i do a few pilates moves every day when definitely help. i wish i could do more.

i can barely keyboard with my hands being this numb 24/7 and i cant double click on a mouse, i have to hold a marker and do it, im amazed i can even work part time. i keep worrying im going to get fired

it sucks when i feel like ive made so much progress with the fascia/onion layers and then i wake up and its like all tight all over again!!!!! even when ive slept great. ugh

You need to drink plenty water. Helps with the fascia and toxins you're breaking up. Removes toxins... I promise.

Sleeping or laying/resting with your Palms up was a great morsel someone passed along to me on here.

I had to give up smoking and cutdown on caffeine intake... For minute relief and better help. See, you don't need to cause irritation. Avoid it. Maybe even chocolate. I forgot.

I learned quickly to clutch things I need to carry to my chest. Not outstretched arms.

I also used my feet quite a bit. Even set my copier in the floor for a year or two. I did use my feet for that. Believe it or not. Pick up items off the floor. Bad back too.

Blow dryer on a stand is a must for hair.

A warm shower with the water beating my scalenes, if able, would make fascia more plyable for me to work on.

Physical Therapy had a nice whirlpool, with an aqua treadmill.

My goal was, and still is, to get stronger, to hold my bulges and herniations in. That is my answer to a lot of my problems. I'm a work in progress.

Later in years, I learned keeping my upper body, and scapulas fleece warm cut down on the pain level.

I did not fold towels and washcloths. Or much of anything. You have to do what you have to for now. I learned to wear blinders trough my home. It was sad... Some areas still are. I'm going to get to do it, some day.

I'm on my iPad. Don't know how to grab links for you.

Here's some things that helped fascia...

Miracle Ball set. Two soft balls. Google these if you can. Like $18.

Kinesio tape

Theracane

CoolComfort wrist splints with thumb spicas helped tremendously.

Speaker phone or a headset is a must.

Stretches or some kind. Figure out what you need/helps ad do it.

Muscle relaxers help more than pain relievers. It can also cause constipation. Activia, bananas, old grapes helps that.

ASTM is the closest form of tortune k own to modern mankind. PT... They slap some coca butter cream on you and scrape you sorest spots like a hog. It will break up fascia and cause bruising but is not good if you have a possible overlay of fibromyalgia, or other neuropathic problems.

LED/infrared light therapy pads helped me more than any one thing.

So many things...

Oh... I used 3 inch balloons for my armpits -- wow!!! what a relief that was. They are portable. Very handy to help around for propping. 5 inch for neck. Big balloons for back. Back pain is miserable pain.
Hope you're finding relief.
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Unread 02-14-2013, 10:00 PM   #15
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Just read your bio.

Winged scapula... Know all about that. I posted pictures of kinesio tape on my bra line. You would have to have somebody put it on your scapulas, but it's wonderful relief for winged xpscapulas.

BTW, what is eds???
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Unread 02-14-2013, 11:28 PM   #16
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Oh... Read your other thread.

Boy, when it rains it pours...

Praying you find some peace.
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Unread 02-16-2013, 12:26 PM   #17
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Yeah winged scapulas are awful!!!!! I've spent the last year researching them

Thank you. For the tips. I wish I could give up caffeine. I have wound up doing some Variation of all of a lot of them but not infared pads. I will need to look into those. I take hot baths every day. Touchscreens are a godsend And voice dictation

I am proud to say now i believe i can at least intermittently release my pec minor!! So it is not the cause of my numbness. I really think people should try to do this themselves every day and not pay a therapist $$$ It's not a difficult muscle to find.
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Unread 02-16-2013, 01:05 PM   #18
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There isn't a trick to keeping your palms up while sleeping is there? Do you mean sleeping on your back thanks
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Unread 02-16-2013, 10:34 PM   #19
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Quote:
Originally Posted by mspennyloafer View Post
There isn't a trick to keeping your palms up while sleeping is there? Do you mean sleeping on your back thanks

Well, at this point in my darkness, I was sleeping/resting in nests...

And yes, on my back, propped up at a 45degree angle. I used euro pillows, a king size pillows longways down my spine, with soft, fluffy pillows to rest my arms in, oversized tennis balls in my low back.

I slept in wrist splints with thumb spicas. It was pretty easy to lay with palms up. I have soft elbow splints too. You should avoid bending elbows too. Get the best optimal flow, without impingement. I really wasn't getting much sleep back in those days. 2 to 3 to 4 at the most. I have been taking Tylenol pm to help get a couple more minutes/ hours of sleep. It has helped, too.


This was for about eight years. I had several nests throughout the house. Before I found the lights. They made a difference. It took awhile, too.

Google Skin Solutions, in Vancouver, Washington. Edna Ness is the sales rep. I have talked to her, by phone. She is a very sweet person. I hope to meet her some day. Tell her Tammy, from Kentucky, gave you her info. The Pain Buster is the best. I understand they have made them new and improved. They're expensive. I just know these worked or me. There are other brands advertised. I can't speak for them. I did want to start a business with them but nobody in the hills will pay that price. Wore one out. Still got a pain buster, and one for spare parts.

We have a large pad and a more recent model. Wish I knew how to copy and paste with iPad.

Did you look up kinesio tape. It's great for winged scapulas. I could mail you a couple of pieces if you want to try it on your winged scapulas. Like I said, someone would have to put it on you. I wore the tape for three weeks at a time. Shower, used a hair dryer on low setting, on a stand to gently dry tape. Would hold down tape, or put back in place. Also would cut frayed tape to make it look better. I had a lot of tape on my upper body. I would cut tape special ways, to use on my arms, thumbs, shoulders, chest, even breasts. I had very painful points on the inside of my arm, in the belly of my bicep, and a very painful point directly across, on the lateral side of my breasts. Very tender and painful points. Don't know if I described that very well, but I could draw it, snap a pic if you need more.

I hope you are finding positive t hings to help you. You need to keep a journal so you know when you start things. Doing too many things at once could be a problem when you need to tweak something. I graded things as positive or negative. It wasn't hard to figure it out.

Hang in here... It won't always be this way.
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Unread 02-18-2013, 10:57 AM   #20
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thank you! i actualyl have the k tape, i wore it too much and started breaking out but it's good stuff. i wore it when my levators were spasming really bad and instant relief. i need some right now, my right arm is dead

okay, next goal is getting sleeping position better. i might try tylenol pm with melatonin.
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