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SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.

View Poll Results: Do you have a SCS or Pain pump?
SCS? 105 87.50%
Pain pump? 10 8.33%
Worked well for me 32 26.67%
Works somewhat / partially 39 32.50%
Didn't work for me 8 6.67%
Had to have it removed 12 10.00%
Had medical complications 12 10.00%
Had mechanical malfunctions 8 6.67%
Still in but turned off 15 12.50%
Other issues explain in a post please. 15 12.50%
Multiple Choice Poll. Voters: 120. You may not vote on this poll

Do you have a SCS or Pain pump?

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Unread 02-06-2013, 11:04 PM   #51
Mark56
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Default Started a Thread under your name for You DAWN

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Originally Posted by dawngri View Post
Hi Mark........I know of the risks for any surgery that you sign off for. What happened to me was atypical and related only to the SCS. The docs have no idea what happened or why. ..I went home and vomited for 12 hrs. Unknowingly this displaced my wires, and the unit when turned on was stabbing me on the sides of my chest. I began having shaking chills, then I felt like a furnace.
My hands and feet felt as if they were being smacked on concrete. .........I stopped using it after a week when my neuropathic pain got worse........the tech and I saw the doc, found the wires migrated and he sent me home only using the one good side. ..............but it just got worse every time I turned it on which was only a few more times. ...then I started having problems with weak legs and walking.......................so after 45 days it was removed. .......I am living with those symptoms, which were all from the SCS.................my issues are not the normal risks you take with any surgery........I could understand a stroke or cardiac event.........but not this......the horrible unrelenting muscle spasms are the worst
I truly can relate to your pain and disappointment regarding the failure of your SCS. Even so, you are posting in a sticky thread which is meant to be used for general preserved info on specific topic, such as this one which started off with a Poll, which device does a patient have, SCS or Pain Pump. Please click here
http://neurotalk.psychcentral.com/sh...940#post954940

Hopefully, you will be transported thence to post away regarding the issues with which you wrestle.
May all of the folks gather around you to support you in this situation.
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Unread 02-07-2013, 01:39 PM   #52
Rrae
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Quote:
Originally Posted by dawngri View Post
Hi Mark........I know of the risks for any surgery that you sign off for. What happened to me was atypical and related only to the SCS. The docs have no idea what happened or why. ..I went home and vomited for 12 hrs. Unknowingly this displaced my wires, and the unit when turned on was stabbing me on the sides of my chest. I began having shaking chills, then I felt like a furnace.
My hands and feet felt as if they were being smacked on concrete. .........I stopped using it after a week when my neuropathic pain got worse........the tech and I saw the doc, found the wires migrated and he sent me home only using the one good side. ..............but it just got worse every time I turned it on which was only a few more times. ...then I started having problems with weak legs and walking.......................so after 45 days it was removed. .......I am living with those symptoms, which were all from the SCS.................my issues are not the normal risks you take with any surgery........I could understand a stroke or cardiac event.........but not this......the horrible unrelenting muscle spasms are the worst
I just wanted to say "Hi" and to thank you for sharing
I am so very sorry to hear what you've been through and still going through. I wish the doctors could give you a better explanation to what may have gone wrong. I've heard of cases where the patient's body completely rejects the unit, as it is foreign to the body.
But what you describe almost sounds as tho you became very ill right after the implant and you had a fever.....I'm wondering if the doctors ruled out infection?
I completely comprehend the migrated lead bit. I also had that problem, and you're right, it causes stabbing pain, or in my case a very painful 'pinching' feeling, as tho I was being bit by a huge insect.

I'm hoping your body will heal in time and the nerve pain will simmer down. I've battled neuropathy for 6 yrs and boy is it a B-@#&*%!! Over the years since I've had my SCS tho, I've noticed the neuropathy has been getting less and less. Not sure if it's because of the unit, or if this would be happening even if I wouldn't have got the unit.
Please stick around. There's plenty of caring souls here and you've certainly been through the mill. If you click on the link that Mark provided, it'll take you down to the active posting where more people will see it. I know you'll get alot of feedback, and perhaps someone has been thru something similar.

Glad you found us, Dawn

Caring,
Rae
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Unread 02-17-2013, 05:49 PM   #53
dawngri
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Quote:
Originally Posted by Mark56 View Post
I truly can relate to your pain and disappointment regarding the failure of your SCS. Even so, you are posting in a sticky thread which is meant to be used for general preserved info on specific topic, such as this one which started off with a Poll, which device does a patient have, SCS or Pain Pump.

Hopefully, you will be transported thence to post away regarding the issues with which you wrestle.
May all of the folks gather around you to support you in this situation.
MARK....
I have not been able to figure out how the site works. Don't know the difference between a sticky thread and a post.
I just use the reply button to talk to people..............
DAWN
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Unread 02-17-2013, 05:55 PM   #54
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Quote:
Originally Posted by Rrae View Post
I just wanted to say "Hi" and to thank you for sharing
I am so very sorry to hear what you've been through and still going through. I wish the doctors could give you a better explanation to what may have gone wrong. I've heard of cases where the patient's body completely rejects the unit, as it is foreign to the body.
But what you describe almost sounds as tho you became very ill right after the implant and you had a fever.....I'm wondering if the doctors ruled out infection?
I completely comprehend the migrated lead bit. I also had that problem, and you're right, it causes stabbing pain, or in my case a very painful 'pinching' feeling, as tho I was being bit by a huge insect.

I'm hoping your body will heal in time and the nerve pain will simmer down. I've battled neuropathy for 6 yrs and boy is it a B-@#&*%!! Over the years since I've had my SCS tho, I've noticed the neuropathy has been getting less and less. Not sure if it's because of the unit, or if this would be happening even if I wouldn't have got the unit.
Please stick around. There's plenty of caring souls here and you've certainly been through the mill. If you click on the link that Mark provided, it'll take you down to the active posting where more people will see it. I know you'll get alot of feedback, and perhaps someone has been thru something similar.

Glad you found us, Dawn

Caring,
Rae
You have been very kind Rae.......I have been off the site for a while. I am in CT and we had a major snow storm, lost power for 3 days and froze our buns.
Mark says I am in the wrong place and should not be posting in a sticky thread. ..............I would like to stick around and talk and read.....I tried to figure out a way to have an email sent when there is a reply to a post I made, but that doesn't happen.....
I have to click on my statistics, then click on my posts one by one and scroll down page by page to see if some one has made a reply......
I can tell you know what you are doing..........
Any advise on the site, I'll take.........
Dawn
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Unread 02-17-2013, 06:13 PM   #55
Rrae
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Hi Dawn!
I see you've started posting down below in the thread Mark created for you!
Just holler if you have any other questions!

Rae
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Unread 02-18-2013, 05:36 PM   #56
dawngri
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Quote:
Originally Posted by abrown176 View Post
Hi! I have had my SCS for almost a year. It works well for the pain in my foot and leg. Although it does that I am now feeling lots of pain in my back around all three surgical sites. I had the battery moved because it was not comfortable in my mid backon the right side. It is now above my waist line on same side, but know it sticks out worse and tons more pain than the first site. I have an appointment the 24th. to discuss the possible moving or removing or what ever the doctor thinks. Will see and let u know the status of it.
Hi ABrown..........I had my implant in my butt. The whole time it was in place I could NOT sit down. Having a BM was a big deal..
I believe the thinner you are the more of a problem it is.

Good Luck........Dawn
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Unread 02-18-2013, 05:42 PM   #57
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Quote:
Originally Posted by Rrae View Post
Thank you for jumpin on board !
I'm sorry you are dealing with this pain at your incision sites.
This is a big concern to me as I will be getting mine implanted on the 24th (same day as your appt) and I have heard several others stating the same thing.

PLEASE keep us updated ! You outta start a whole new thread on this issue ! I'm anxious to see what your doc has to say about this.
Well, anyway, I will keep you in my thoughts and prayers and hope something will improve so you can continue to get the pain relief from the SCS.

Truly Caring
Rae
I will be watching in the future, Feb 24 date, to see how well you do. I will take all my good, safe and lucky vibes and send them your way. ......
I don't want what happened to me happen to you.

Sending my hugs for the future.............DAWN

Last edited by dawngri; 02-18-2013 at 05:44 PM. Reason: Spelling error.....Good LUCK Rae, not lick
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Unread 02-19-2013, 03:40 PM   #58
Rrae
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Quote:
Originally Posted by dawngri View Post
I will be watching in the future, Feb 24 date, to see how well you do. I will take all my good, safe and lucky vibes and send them your way. ......
I don't want what happened to me happen to you.

Sending my hugs for the future.............DAWN
You are so great to chat with!
Just wanted to let you know that the post you responded to is from a few years back. I had my implant in Feb of 2010. I see how tricky that must've looked since the 24th of Feb is right around the corner!

I'm doing great with my unit! It covers the horrible burning neuropathy/RSD in both legs by about 70%. I still take pain meds for breakthru pain. I'm just so very sorry that you had a bad experience with yours . You deserve the best possible pain management out there and I hope your doctors are working with you to find other means of pain control.

Thanks for the visitor message! And thanks for accepting my friend request!

Talk soon!
Rae
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Unread 02-24-2013, 05:04 PM   #59
dawngri
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Quote:
Originally Posted by Rrae View Post
You are so great to chat with!
Just wanted to let you know that the post you responded to is from a few years back. I had my implant in Feb of 2010. I see how tricky that must've looked since the 24th of Feb is right around the corner!

I'm doing great with my unit! It covers the horrible burning neuropathy/RSD in both legs by about 70%. I still take pain meds for breakthru pain. I'm just so very sorry that you had a bad experience with yours . You deserve the best possible pain management out there and I hope your doctors are working with you to find other means of pain control.

Thanks for the visitor message! And thanks for accepting my friend request!

Talk soon!
Rae
Geepers Rae, I just found this post by you. I feel like an idiot........I need to look at the dates on the post........glad you are NOT having surgery this week?
Dawn G
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Unread 02-27-2013, 02:31 PM   #60
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Originally Posted by dawngri View Post
Geepers Rae, I just found this post by you. I feel like an idiot........I need to look at the dates on the post........glad you are NOT having surgery this week?
Dawn G
Cut yourself some slack, girl! We ALL do that! You are not an idiot .
I'm glad I'm not having surgery either!!
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