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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Drugs that work..... I need help with pain!

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Unread 02-12-2013, 04:10 AM   #11
Angelina55
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Quote:
Originally Posted by loretta View Post

Hi Angelina, Do I have this right- you are on lyrica from your pain doc- and your family doc just prescribed neurotin? Is that right? If so, did the family doc know your are already on lyrica? There is an old thread october 2008 on the two meds, but I would start a new one and ask for input.
Personally, I was on neurotin for years, then dr. had me go off it and started me on lyrica. Lyrica became the newer drug. Some can take one and not the other, I think it is important you find out about taking 'both' at same time.
These are all meds that crps drs put us on to help with nerve pain etc. neurotin or lyrica, anti-depressants, narcotics, sleep med, anti-anxiety med,
Did you say you are seeing the neurologist Feb 28th? Can you call and ask if he/she has knowledge of crps? If so, perhaps you can get on a wait list for earlier appointment?
There are so many knowledeable people here with lots of experience. I'm sure you will get some good input on a lyrica-neurotin thread asking for help.
Of course, we are all different and what works for one doesn't for another.
But it's the taking BOTH that I have questions about.
Take care, loretta
He is the doctor that originally put me on Lyrica and we talked about me being on it so yes he knows that I am on it. And I started a thread about it, I think I am going to call the neurologist tomorrow and ask those questions.
Angelina
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Unread 02-18-2013, 02:20 AM   #12
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Quote:
Originally Posted by Angelina55 View Post
So I have been trying to manage my pain with pain killers, vitamins, lyrica, and herbal remedies. I am just in to much pain! Here are my symptoms:
Painful pins and needles from toes up to hip joint
a pressure type feeling, kinda heavyish
sharp stabbing pains
spasms
a constant stabbing pain throughout leg and ankle
a sharp stinging feeling throught leg and ankle
cannot put any weight on it
burning constantly but sometimes feeling of so cold feels like it has frostbite
a constant achy intense dull deep pain

I am just having trouble researching different drugs that I should try. I am trying to fing a neurologist, but I just can't wait. I am a single mom and my daughter depends on me. I need to get this pain under somekind of control. So any help or advice on ANYTHING would be great!!! Any vitamins, herbal remedies, diet, drugs, other "tricks", anything.....
I am taking vitamin C, D, a B-complex, and Fish Oil.
Thank you,
Angelina
May we all be strong.... We may not always win the battle but we will win the war!!!!
I rarely reply to any of the common hats, but yours struck a nerve with me.
I was in the same shape as you, taking Lyrica and the other vitamins that you mentioned, and had small success.

I finally found a neurologist who is board-certified and four different specialties one being neurology, one being psychiatry, one being a pain management, and the other being specific cancer pain management at the brain.

I take the Vitamins that you are on, but I find that SLEEP is Absolutely necessary if you are going to have any success at pain control. I realize this is easier said than done. Here are the meds that I take and have found success with:
MS Contin - It is a Long Acting Morphine. You get no "highs" & it keeps you on a more "even keel" than taking a Norco or the likes. It is your decision, coupled with your physician's advice, as to whether you are a candidate for this medication.
I also take:
Soma - for Spasms (could not make it without this Rx)
Klonopin - label says for seizures, but it -off label - helps with pain
control.
Clonidine - label is for high blood pressure, but works to keep excessive
sweating & B/P down when pain is high
Trazadone - Great for sleep, but I had to stop because of drug interaction.
Restoril - Replacement for Trazadone. Doesn't work as well, but helps.

I'm Afraid you will be like me, Having to have a combination of medications to control your pain. There is never a time when I feel high or unable to function because of the medication.
I never exceed the Recommended dosage, and many times I do not have to take the medication prescribed for breakthrough pain.

My suggestion is to find a pain management specialist who is knowledgeable and RSD / CRPS. I've had RSD for over 10 years, and have experimented with many, many treatments. Physical therapy helped for the first year, and without that I have no idea what shape I would Be IN, but it would not be as good as I am now.

All I can say is don't give up, keep trying, try to keep a positive attitude, and most of all try to find someone to support you. Support is extremely important. I have not found it in any support group, other than this online group.

Tell your doctor you would like to try combinations of antidepressants, anti-seizures, muscle relaxants, and painkillers. If he/she does not understand this, then you probably need to look for another physician.

I know it sounds like a lot of medication, and I realize you have a small child, but I also care for a three year old, and these medications do not incapacitate you. Take them as prescribed, and if that feels too much, then cut back. You will know when you've reached the right dosage.

GOOD LUCK! Hang in there, you are not alone.
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Angelina55 (02-18-2013)
Unread 02-19-2013, 11:32 AM   #13
Morgan Herritage
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The first 8 months I was trying to get diagnosed I was only on norco. Then went to norco with lyrica.
Started PM and have went through morphine and fentanyl as long acting, keeping norco and switched to neurontin with lidoderm.
Now I take methadone with norco, neurontin and lidoderm with lido ointment. This is the best I've felt in over a year.
I tried cortisone shots, worked a little. And nerve blocks with no relief.
I also get California Poppy extract and Bacopa with Passion Flower from the health food store. It's a lot of jazz but its turned into routine and life is good for now.
I hope you find what works.
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Angelina55 (02-19-2013)
Unread 02-19-2013, 12:30 PM   #14
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Quote:
Originally Posted by Angelina55 View Post
So I have been trying to manage my pain with pain killers, vitamins, lyrica, and herbal remedies. I am just in to much pain! Here are my symptoms:
Painful pins and needles from toes up to hip joint
a pressure type feeling, kinda heavyish
sharp stabbing pains
spasms
a constant stabbing pain throughout leg and ankle
a sharp stinging feeling throught leg and ankle
cannot put any weight on it
burning constantly but sometimes feeling of so cold feels like it has frostbite
a constant achy intense dull deep pain

I am just having trouble researching different drugs that I should try. I am trying to fing a neurologist, but I just can't wait. I am a single mom and my daughter depends on me. I need to get this pain under somekind of control. So any help or advice on ANYTHING would be great!!! Any vitamins, herbal remedies, diet, drugs, other "tricks", anything.....
I am taking vitamin C, D, a B-complex, and Fish Oil.
Thank you,
Angelina
May we all be strong.... We may not always win the battle but we will win the war!!!!
hi! i finally got my meds working for me now, dr. put me on oxycontin 15 mg and percocet 5 mg plus trazodone to help me sleep, they have helped me more then anything else that i have tried
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Angelina55 (02-19-2013)
Unread 02-19-2013, 02:04 PM   #15
Angelina55
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Here is an update. My doctor added Gabapentin. After two weeks of taking vitamins I started noticing a little difference, now with the gabapentin I see a real difference. My pain level used to be a 9-10 all the time and now it is usually around a 7-8 and sometimes even a 6! I can not enev believe it! I still get flare up days when my pain spikes back up, but I will take it. My function of life has been helped so much. I am still having strouble with waking up in pain in the middle of the night and my ankle is getting really stiff and hard to move. It really hurts to move my toes. And I have a constant pins and needle feeling and spasms up my leg and in my ankle. I still can't be on it for very long or even sit for very long. I have also put a blanket folded up on my car seat to help with the vibrations and it really helps!
Thank you for all of your replies!!!!
Angelina
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