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Old 03-10-2012, 02:31 PM   #61
reverett123
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I am bumping this and one other thread on mucuna pruriens because of some expressed interest. This seems to be the most info on mucuna to be found on the Net as well.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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Old 03-11-2012, 07:20 PM   #62
tulip girl
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Thanks Rick,

I am interested in MP as an adjunct to my PD meds. Over the past month I have been taking 1 or 2 DopaBean by solaray containing 15% l-dopa/50mg with comtan and 1 25/100c/l/dopamine at about 9am. So far it has lasted until 3-4pm with just a very mild down time. At that point I take 2 MP and I am good to go for the rest of the evening. I have found that taking 2 MP with my PD meds causes mild dyskenisia so I have cut it back to 1 MP in the mornings with no dyskinesia
Backgroud: Have had PD for going on 21 years YOPD, had a unilateral DBS/STN in 2006 with labile results. I have had to turn off the IPG many times due to dystonic problems and cannot tolerate high voltage so currently set at 1.5 which bare minimum. I do "forced exercise" by riding a tandem bike with my husband almost every day for about 11 miles. And changed my unhealthy diet for a vegan diet along with Ca, Mg, zinc, Bcomplex, Cayenne, Resveratrol and Vit d. & tumeric, mid January. So I hope I haven't clouded the playing field.
I don't think the MP results are placebo effect and want to try the MP with my IPG turned off to see what would happen with symptoms which are primarily gait issues. I do not have any sudden drop off of my medication while on MP...it is very subtle
I have poor fine motor skills which is not affected by the MP or PD meds - I just live with it. I am very active, do my own yard work, cook, clean and am pretty normal looking.
Any thoughts on how I should continue to trial the MP - I have given myself 3 months - 1 down 2 to go.
thanks
tulip girl

Last edited by tulip girl; 03-11-2012 at 10:29 PM.
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Old 02-19-2013, 12:24 PM   #63
waalfort
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I have recently been diagnosed with Parkinsons Disease and am still a bit shell shocked. I am 53. I do know that I am not keen to start on chemical meds and came across Macuna Pruriens. I live in South Africa and the only availability is from the Himalaya range. I am currently on Azilect but would like to NOT be on it. Help please!
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Old 02-19-2013, 05:14 PM   #64
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Originally Posted by tulip girl View Post
Thanks Rick,

I am interested in MP as an adjunct to my PD meds. Over the past month I have been taking 1 or 2 DopaBean by solaray containing 15% l-dopa/50mg with comtan and 1 25/100c/l/dopamine at about 9am. So far it has lasted until 3-4pm with just a very mild down time. At that point I take 2 MP and I am good to go for the rest of the evening. I have found that taking 2 MP with my PD meds causes mild dyskenisia so I have cut it back to 1 MP in the mornings with no dyskinesia
Backgroud: Have had PD for going on 21 years YOPD, had a unilateral DBS/STN in 2006 with labile results. I have had to turn off the IPG many times due to dystonic problems and cannot tolerate high voltage so currently set at 1.5 which bare minimum. I do "forced exercise" by riding a tandem bike with my husband almost every day for about 11 miles. And changed my unhealthy diet for a vegan diet along with Ca, Mg, zinc, Bcomplex, Cayenne, Resveratrol and Vit d. & tumeric, mid January. So I hope I haven't clouded the playing field.
I don't think the MP results are placebo effect and want to try the MP with my IPG turned off to see what would happen with symptoms which are primarily gait issues. I do not have any sudden drop off of my medication while on MP...it is very subtle
I have poor fine motor skills which is not affected by the MP or PD meds - I just live with it. I am very active, do my own yard work, cook, clean and am pretty normal looking.
Any thoughts on how I should continue to trial the MP - I have given myself 3 months - 1 down 2 to go.
thanks
tulip girl
Tulip girl, could you clarify how you are getting the MP? Are you taking more dopabean to get it or getting it in a powder form? Thanks!
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Old 02-20-2013, 06:28 AM   #65
Aunt Bean
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Use some mucuna that I grow here on the farm. I don't use it much..only when I need more strength and speed than usual. It is fairly easy to grow...but the harvesting and preparation is time consuming (but worth it when I "Need a bean" to be able to pull start a rototiller or weed-eater. I think they would be illegal for olympic competition! I have friend that take mucuna capsules from Swansons Health Products...seems to be a good brand.
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