My husband is not supporting me emotionally with all the stuff that is happening. He's like this any time I get sick, like with a cold. He acts like I feel much better than I do. Last night I came home and my wrists hurt so bad that I actually wrapped one up in an ace bandage to see if that would help (and it did, surprisingly). He was like "are you really that bad?" He then got into an argument with me this morning saying I'm not doing anything he suggests and I only do what the docs tell me to do (which is untrue, and the argument was much longer and worse than just that). He has some control issues, obviously, and the fact I won't be controlled makes him upset (yes, we have other issues, he's also selfish and not respectful). He's an "energy healer" and every time he touches me to "heal" me he hurts me. For example, I ask him to rub my feet and instead of just lightly rubbing them he starts yanking on them and twisting my foot around even though I explain it over and over. He never actually does reiki on me. He actually thinks the meds I'm taking are making me worse, which if you ask my legs, they are helping a ton.
I can't deal with somebody who can't help me when I need help. If you're going to be part of the household, and I need help, then help me when I ask for it (like with dinner). I can only get my 10 year old to help a little. I also work full time and he's supposed to be a SAHD but ends up playing video games a ton. And no, he won't deal with his own issues either.
Seriously, besides some supplements, how much can one do to help treat this horrible disease without getting pharmaceuticals? Especially if it turns out to be hereditary (I go to the Neuro on the 26th, I'm going to ask them to test me for CMT type 2)? What do people who don't have a support system do? What alternative therapies actually work?