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Anyone have Raynaud's too?

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Unread 02-20-2013, 12:40 PM   #1
Agirlandhertort1
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Default Anyone have Raynaud's too?

My fingers started turning blue lately, and I have been consistently cold (skin actually freezing to the touch) even hours after coming inside. I had a rheumy appointment last week, and was diagnosed with Raynaud's. He wants me on a calcium channel blocker for this (in lieu of my APS meds) and I guess I'm worried about the effects this has on my vascular system. I am nervous about starting the new medicine since I don't have high blood pressure, but I suppose it's for the best.

If you do have this condition, do you find it makes the PN worse? Is it all somehow related?
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Unread 02-20-2013, 02:05 PM   #2
Kitt
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I know of a gal who has this. Here is a site concerning calcium channel blockers.

http://www.mayoclinic.com/health/cal...ockers/HI00061
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Unread 02-20-2013, 04:38 PM   #3
mrsD
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I have this too, to a minor degree.

When my drug reaction was at its worst I had reddish purple finger tips. My doctor said that is a sign of Lupus.
But my hands are rarely cold.

I still have them a little, but not so severely. My toes however, will go white mostly in the morning, and reddish purple at night.
My feet do go cold sometimes, however.
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Unread 02-20-2013, 09:21 PM   #4
Joano
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I have Raynauds too. My finger tips sometimes just go suddenly white on one or two fingers. It is very hard to get change out of my wallet, or bills, or my credit card when this happens. The weather is usually on the cool side, but not always; sometimes if the A/C in the store is set too low for me, it can trigger the white fingers. At night my feet usually get very cold once I lay down in bed--it's something about being horizontal I think.
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Unread 02-24-2013, 11:33 PM   #5
dolby
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According to Dr. Bernstein (the diabetic doctor), about 1/2 of his diabetic patients have Raynaud's. It's supposedly that common. It's not so much of an issue if it's primary. If it's secondary, that is, if you also have autoimmune issues, then you should watch it. It could anticipate the onset of scleroderma.

I also seem to have Raynaud's. Never been diagnosed. But my fingers are cold and will remain cold for a while after handling cold items. Only my fingers, though, not so much my toes. No color changes, yet.
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Unread 02-25-2013, 10:44 AM   #6
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Quote:
Originally Posted by dolby View Post
According to Dr. Bernstein (the diabetic doctor), about 1/2 of his diabetic patients have Raynaud's. It's supposedly that common. It's not so much of an issue if it's primary. If it's secondary, that is, if you also have autoimmune issues, then you should watch it. It could anticipate the onset of scleroderma.

I also seem to have Raynaud's. Never been diagnosed. But my fingers are cold and will remain cold for a while after handling cold items. Only my fingers, though, not so much my toes. No color changes, yet.
Yes, it could anticipate the onset of scleroderma before the person realizes this. A good article on it:

http://www.cedars-sinai.edu/Patients...henomenon.aspx

A person I know has just been diagnosed with localized scleroderma. The sister has Raynaud's. My friend had systemic scleroderma. I hadn't realized that there were two kinds of it. Not something to fool around with when one gets any of it.
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AKA Hereditary Motor Sensory Neuropathy (HMSN).

"I was once like you and you will be like me."

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