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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

ugh.....

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Unread 02-19-2013, 06:35 PM   #1
CRPSsongbird
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I had such a bad flare last night. Was impossible to sleep. So of course today I'm tired, hurting and frustrated. Tramadol is NOT cutting it today. Called my doctors office but most everything is waiting on the Neurologist appt in march. Nice how they want you to wait.....Oh you're in a lot of pain? Hmm Well I did everything I can think of so you need to see someone else. But you can't get in to see them for 3 months, oh and we won't give you anything stronger for pain than tramadol until you DO see them. Oh and you're allergic or extremely intolerant to all other non-narcotic pain meds for what you have........Fun and games fun and games.

Hey I know one it's called who can scream the loudest........lol

Just venting...
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Unread 02-19-2013, 07:36 PM   #2
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Sorry to hear about the pain keeping you up. If it gets to bad, I would go to the ER.
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GOD help me be faithful in the midst of my suffering. Alt1268
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Unread 02-19-2013, 11:51 PM   #3
Angelina55
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Originally Posted by CRPSsongbird View Post
I had such a bad flare last night. Was impossible to sleep. So of course today I'm tired, hurting and frustrated. Tramadol is NOT cutting it today. Called my doctors office but most everything is waiting on the Neurologist appt in march. Nice how they want you to wait.....Oh you're in a lot of pain? Hmm Well I did everything I can think of so you need to see someone else. But you can't get in to see them for 3 months, oh and we won't give you anything stronger for pain than tramadol until you DO see them. Oh and you're allergic or extremely intolerant to all other non-narcotic pain meds for what you have........Fun and games fun and games.

Hey I know one it's called who can scream the loudest........lol

Just venting...
OMG I totally feel you!! I am having such a bad pain day today!!! Right now I just want to scream at the top of my lungs and cry like a baby! And I wish I had a someone who would hold me and tell me that everything is going to turn out all right. That is if he could even touch me right now anyway! But since I am a single mom all I can do is sit here and pretend that I am not screaming in pain inside and wanting to die (not really die). I hope we both feel better tomorrow and actually get that thing called sleep tonight. If you even know what that is..lol I am not even sure I know what a good night's sleep is anymore!
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CRPSsongbird (02-20-2013)
Unread 02-20-2013, 02:34 PM   #4
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YA. I'm starting to feel very nervous. The doctors are starting to say things like not sure what else they can do, and permanent......thankfully its hasn't progressed beyond slight mottling, and the pain, and coolness. The pain spikes up and down, I have good days and bad. Sometimes I have a few days that are nearly pain free! At those times I start thinking maybe it's going away! And then it comes back with a vengeance.....I'm sure you all know how that is. The pain free days are few and far between, I am still waiting to see the Neurologist and am trying to get into a "pain" clinic. I really need something stronger than Tramadol when I have my normal daily spikes. and definitely when I have my bad days!! I DID get more sleep last night thank goodness, my arm had calmed down from the night before, but I could feel it starting to gear back up. so I slapped a Lidocaine patch on before it got too bad......ahhhh sweet sleep! lol I hope you feel better soon!
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Unread 02-20-2013, 07:20 PM   #5
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Quote:
Originally Posted by CRPSsongbird View Post
YA. I'm starting to feel very nervous. The doctors are starting to say things like not sure what else they can do, and permanent......thankfully its hasn't progressed beyond slight mottling, and the pain, and coolness. The pain spikes up and down, I have good days and bad. Sometimes I have a few days that are nearly pain free! At those times I start thinking maybe it's going away! And then it comes back with a vengeance.....I'm sure you all know how that is. The pain free days are few and far between, I am still waiting to see the Neurologist and am trying to get into a "pain" clinic. I really need something stronger than Tramadol when I have my normal daily spikes. and definitely when I have my bad days!! I DID get more sleep last night thank goodness, my arm had calmed down from the night before, but I could feel it starting to gear back up. so I slapped a Lidocaine patch on before it got too bad......ahhhh sweet sleep! lol I hope you feel better soon!
Yay for sleep! I am very happy for you! I do know about those pain free days that are just a tease. lol A couple days ago my pain was down to like a 5 and I was totally thinking maybe it is getting better and possibly going away, but then it really turned out to just be a fake out! lol The last two days it has so come back with a vengeance! I think it is worse than before. My whole leg feels like my ankle did, which sucks because the burning is up into my hip joint and left back side. I did get in to see my neurologist today but she can't give me narcotics because of her office policies, but she thinks I should be on them. So I have to hope my primary doctor will, or that I can figure out a way to get off them. Which is my real goal. I would love to get off them. I really don't like taking them. So we are going to try uping my Lyrica and using muscle relaxers. Fingers crossed here!! Good luck to you, and like always I hope you feel better!!
Angelina
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CRPSsongbird (02-21-2013)
Unread 02-21-2013, 04:02 PM   #6
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angelina--
Have you tried the Lidoderm patches??? They don;t always work for me but a LOT of the time if I get it on before it flares up completely it will help a lot and sometimes slow or stop the pain professing so far sometimes.
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