Quandry, You need to make a phone call to your neurologist's office.
If you have a muscle that is weak due to MG and then you don't take care of the tight, wadded up area, it'll just keep getting worse and become chronic. That's what it sounds like to me. Any pain in the chest area should be thoroughly checked out though. Neurologists or physical therapists can dig around and find out if it's something they can help with. There's no need to continue to have such pain.
Do you have a primary care doctor, like an internist? They can also refer you to PT for evaluation and treatment, in case you can't get into the neuro soon.
When muscles get really weak, they tend to get knotted up like that. While pain isn't a primary symptom of MG it sure is a secondary one! Right before my MG crisis, my chest wall muscles were so weak that they were spasming while I was just lying down!
Someone needs to define what is going on and then get you care for it.
BTW, are you right-handed or left? Do you lean a certain way when you sit? There are so many things that could cause a unilateral pain syndrome instead of a bilateral one. Just sleeping funny on one side can do it! PT's are so emphatic about setting people up for a proper alignment while sleeping, with pillows, etc.
My doctor appointment isn't until the first of next month. I guess I can wait until then.
No, you can't. I hope you will get this taken care of right away! Doctors always have emergency appts. for patients, so call your neuro 1st thing in the morning.
What worried me is the fact that you are generally getting worse and can't breathe well. Now that IS an MG emergency. Don't be stubborn, just go to the ER or dial 911 if you can't breathe or move well, okay?!