Go Back   NeuroTalk Support Groups > Health Conditions M - Z > Traumatic Brain Injury and Post Concussion Syndrome

Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

Post concussion syndrome 10 month point - HELP!

Reply
Thread Tools Display Modes
Unread 02-23-2013, 06:07 AM   #1
Alex V.
Junior Member
 
Join Date: Feb 2013
Location: Vancouver, BC
Posts: 13
Default Post concussion syndrome 10 month point - HELP!

Hi,
I'm new to neurotalk and I stumbled upon this forum when I was researching PCS. I suffered my original concussion approximately 10 months ago while playing hockey. I was hit in the head similar to the Sydney Crosby hit where I was blind sided. I fell back and my vision was slightly blurred for a moment but I continued playing and didn't think much of it at the time. I'm sure I've suffered many undiagnosed concussions through out my years of playing hockey but this is the first time that I've had problems after the original incident.

Foolishly, I continued to exercise multiple times per week and play hockey despite feeling extremely light headed to the point of almost passing out. As a hockey player it's normal to simply "suck it up" and play through the pain. As I now know I probably did more damage by doing so.

Most of my symptoms have gone with the exception of the dizziness and light headedness. It has only been within this past month that I have completely stopped working in order to focus on recovering. I've completely stopped all exercise because I can't do anything without becoming dizzy. I've tried extremely light walks for short periods of time and I still get dizzy from that.

I've been trying to cut down on anything that causes symptoms and have started to take vitamins everyday. Any advice on what I can do to help me recover is greatly appreciated! I'm only 22 and I want to get back to living a normal life! I'm willing to do whatever it takes.

Please help!
Alex V. is offline   Reply With Quote
Unread 02-23-2013, 09:41 AM   #2
cyclecrash
Member
 
cyclecrash's Avatar
 
Join Date: Nov 2012
Location: Ontario, Canada
Posts: 267
Default

Welcome to the group! I'm sorry you're still having these issues but its good to hear you only have one main problem and it might be a treatable one! Have you looked into vestibular rehabilitation? Its physiotherapy specifically for dizziness. I have been having it for 5 weeks now and it is helping my dizziness.

The other thing that might help would be getting your eyes checked and not by a normal optometrist. There are others that can post links for you but if you search for NORA you can find an eye specialist in your area.

I'm sure others will be along with their advice. You've found a good group here!

Good luck to you
CC
__________________
I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world.

Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances.

Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident.

The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful!

My brain WANTS to heal itself... I just have to let it and stop trying to get better!
cyclecrash is offline   Reply With Quote
"Thanks for this!" says:
Alex V. (02-23-2013)
Unread 02-23-2013, 11:42 AM   #3
Alex V.
Junior Member
 
Join Date: Feb 2013
Location: Vancouver, BC
Posts: 13
Default

Thanks! I'll definitely look into both of those! The dizziness seems to only appear when exercising but can sometimes develop into a headache.
Alex V. is offline   Reply With Quote
Unread 02-23-2013, 12:26 PM   #4
mouse1
Member
 
mouse1's Avatar
 
Join Date: Feb 2013
Posts: 426
Default

I would say that you should avoid exercise altogether if it provokes your symptoms The key is doing the things that do not provoke symptoms and avoiding the things that do.. You should hopefully get through it, you have age on your side! Like yourself, I exercised 3 weeks after injury and now I am appriaching 4 months with pcs, I had dizzyness in the gym anda whole host of terrible symptoms after the dizzyness. After having lots of headaches, and head pressure, today I just have numbness in head instead. I hope I am on the road to recovery, and I hope you get there too.
mouse1 is offline   Reply With Quote
Unread 02-26-2013, 03:51 PM   #5
jmsarge
Junior Member
 
Join Date: Feb 2013
Posts: 16
My Mood:
Default Pca

I know exactly how you feel! I have passed the 1 year mark last month and don't know if I will have much improvement at this point.

Quote:
Originally Posted by Alex V. View Post
Hi,
I'm new to neurotalk and I stumbled upon this forum when I was researching PCS. I suffered my original concussion approximately 10 months ago while playing hockey. I was hit in the head similar to the Sydney Crosby hit where I was blind sided. I fell back and my vision was slightly blurred for a moment but I continued playing and didn't think much of it at the time. I'm sure I've suffered many undiagnosed concussions through out my years of playing hockey but this is the first time that I've had problems after the original incident.

Foolishly, I continued to exercise multiple times per week and play hockey despite feeling extremely light headed to the point of almost passing out. As a hockey player it's normal to simply "suck it up" and play through the pain. As I now know I probably did more damage by doing so.

Most of my symptoms have gone with the exception of the dizziness and light headedness. It has only been within this past month that I have completely stopped working in order to focus on recovering. I've completely stopped all exercise because I can't do anything without becoming dizzy. I've tried extremely light walks for short periods of time and I still get dizzy from that.

I've been trying to cut down on anything that causes symptoms and have started to take vitamins everyday. Any advice on what I can do to help me recover is greatly appreciated! I'm only 22 and I want to get back to living a normal life! I'm willing to do whatever it takes.

Please help!
jmsarge is offline   Reply With Quote
Unread 02-26-2013, 05:00 PM   #6
cyclecrash
Member
 
cyclecrash's Avatar
 
Join Date: Nov 2012
Location: Ontario, Canada
Posts: 267
Default

don't give up jmsarge! Try to do little things that make you happy to push yourself just a little bit. From what I found out today and have heard and read before, it's very important that you not let psychological issues make you worse. It's amazing how many physical symptoms are actually psychological causes! My neurologist said today that any new or worsening problems in a concussion are usually psychological in nature. Not that that makes them any less troublesome but they can be and need to be treated differently. Maybe seeing a psychologist would help.


Sorry back to Alex V. If you get dizzy during exercise a sports physio therapist or vestibular therapist sounds like the way to go! You should notice improvement quickly with them too which is nice so you don't wonder if you're wasting your time and money. From what I heard today from my neurologist, rest at this late stage is probably not the answer and could make things worse by causing fatigue, depression, etc. I hope you find a good physio person that can help!

Good luck
CC
__________________
I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world.

Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances.

Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident.

The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful!

My brain WANTS to heal itself... I just have to let it and stop trying to get better!
cyclecrash is offline   Reply With Quote
"Thanks for this!" says:
Mokey (02-26-2013)
Unread 02-26-2013, 06:29 PM   #7
Alex V.
Junior Member
 
Join Date: Feb 2013
Location: Vancouver, BC
Posts: 13
Default

I took your advice and booked a vestibular rehab appointment. I have high hopes! Especially since the dizzy spells seem to be my main problem. I'll keep you posted on my progress!
Alex V. is offline   Reply With Quote
Unread 02-26-2013, 06:36 PM   #8
Alex V.
Junior Member
 
Join Date: Feb 2013
Location: Vancouver, BC
Posts: 13
Default

I agree that it is difficult to stay positive when day after day you wake up feeling terrible. I've been forced to become lazy not by choice which is completely against my nature. I keep thinking about being healthy again and how much better I'll feel. Right now I can't even imagine being able to do a simple jog without symptoms.

It's tough! Just stay positive and be optimistic!
Alex V. is offline   Reply With Quote
Unread 02-26-2013, 06:52 PM   #9
cyclecrash
Member
 
cyclecrash's Avatar
 
Join Date: Nov 2012
Location: Ontario, Canada
Posts: 267
Default

Good luck with the vestibular rehab! It doesn't work for everyone but is a good place to start. My vision is bad and dizziness so exercises with movement are a big problem. I can do some easy short time on recumbent bike though. Have you tried that? Not good to be inactive altogether if it can be avoided.

Let us know what the therapist says!

Good luck
CC
__________________
I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world.

Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances.

Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident.

The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful!

My brain WANTS to heal itself... I just have to let it and stop trying to get better!
cyclecrash is offline   Reply With Quote
Unread 02-27-2013, 09:34 AM   #10
DFayesMom
Member
 
Join Date: Sep 2012
Location: Columbus
Posts: 304
My Mood:
Default See a Neuro-Optometrist too!

I just wanted to put in my two cents and urge you to get your eyes checked by a neuro-optometrist. I've had four concussions in the last two years, the most recent one in November, and I have severe dizziness that makes it so I can't exercise or do a lot of other activities. I'd been doing vestibular rehab since October, but was not seeing a lot of progress. My frustrated physical therapist referred me to an optometrist, and it turns out that the big problem is with my eyes and I really need to do a totally different kind of rehab (though I may also need to do vestibular rehab afterwards as well). I should have seen a neuro-optometrist back in October!

It's great your signed up for vestibular therapy, but if you want to do everything you can to get well, see a neuro-optometrist too to get checked out. That way, you've covered all your bases! Also, remember that to get better, you really need to rest! When I first was off work and "resting", I still tried to do things around the house like scrub the baseboards and weed the garden. That is not resting! I ended up making my symptoms worse. Don't do that to yourself! Good luck!
DFayesMom is offline   Reply With Quote
Reply

Tags
concussion, pcs, post concusion syndrome

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
One month post-concussion...when will this get better? LisaGH Traumatic Brain Injury and Post Concussion Syndrome 11 11-27-2013 11:18 PM
New Member Seeking Recovery from 4-month Post concussion symptoms pswift02 Traumatic Brain Injury and Post Concussion Syndrome 10 01-28-2013 10:12 PM
post concussion syndrome alisden New Member Introductions 9 10-11-2012 12:51 AM
Post Concussion Syndrome Crash-Test-Piwi New Member Introductions 2 05-10-2012 01:24 AM
Post Concussion Syndrome... AirHead928 Traumatic Brain Injury and Post Concussion Syndrome 4 03-25-2011 08:59 AM


All times are GMT -5. The time now is 08:50 PM.
Brought to you by the fine folks who publish mental health and psychology information at Psych Central Mental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.


Powered by vBulletin • Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.


All posts copyright their original authors Community Guidelines Terms of Use Privacy Policy
NeuroTalk Archives