Originally Posted by Pattymary88
Try not to worry. I am not diagnosed with tos but I have read the same things you have and yes it's scary. I have two blood clotting disorders. I have put the whole clot thing in the back of my head. The best thing you can do you have already done and that is read. You are now informed which is more than most people. Now you know what to look for
Went to PT today. Lady was super sweet to me, she did all the tests the doctor did but she understood that being in certain positions makes me anxious. I've had all the pain on the left but she said the left pulse doesn't drop as much as the right pulse does. And she assured me i still have a pulse in that position, i'm not dead lol but it is restricted so they're almost positive it's arterial.
Self pay for a vascular ultrasound (no insurance in this state) is $2000. So i can't do that. Scheduling it for when i fly home, but she said we can see if PT helps for 4 weeks, 3x a week to at least strengthen everything and open the area up as best we can.
All i can do is hope! She said my range of motion is great. No numbness and tingling in the arms is a good sign and i can keep positions without getting dizzy for now. Gotta work on my ergonomics and posture!
Thanks again for all the support ladies and gents