CSF Rhinorrhea/IIH

carolmacd · 09-02-2012, 01:58 PM

Hi all, I have just been diagnosed with spontaneous CSF rhinorrhea and will have surgery on Sept. 14 to correct it. At this point, the assumed underlying cause is idiopathic intracranial hypertension. This is all new to me (heck, I just thought I had a runny nose!) and I'm not finding a whole lot of information out there. Apparently this is a fairly rare disorder. What I'm wondering is if anyone has had an endoscopic repair of a nasal CSF leak, and if so, what was the recovery like? Any information anyone has on any of this would be very much appreciated.
Thanks,
Carol

Rrae · 09-02-2012, 06:51 PM

Welcome to NT!

You've found a wonderful place of support and understanding.
I'm so sorry for this reason which brings you here. I'm sure you'll get some good input, and hopefully find more information on this.

I wish I knew more about what you are facing, but I am unfamiliar.
We do have a CSF Leak forum. Here's the link to take you there:

http://neurotalk.psychcentral.com/fo...sprune=-1&f=78

Another thing that you might find very helpful is the 'search' feature toward the top in that bar that runs across the screen. Type in the word(s) of interest and it'll bring up posts on the topic.
This is a good thing to do while you are waiting to get responses.

I hope you can get the answers you are looking for.
It's great to have you here!

Caring,
Rae

Darlene · 09-03-2012, 01:01 AM

Carol,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Sorry to hear about your condition. Let us know how your surgery goes. Looks like Rae has given you a great way to get started.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene