Just Update

[Shadiyah]

Hi All,

I have not posted in a while about what has been going on with me. I think I had gone into some kind of remission because I started feeling better so I made the move to Atlanta GA. I am having a hard time with stairs on and off. It hurts so bad to go down them and coming up but really going down.

I have had several times of trauma one that sent me to the emergency room and the doctor to tell me he didn't think this was MS related. So the first thing was the sharp pain in my left leg right in the muscle. I mean I was screaming every time it struck. then the second thing did send me to the hospital because the pain would not calm down. this time it was my hip or the fluid around the joint they said and so they gave me anti inflammatory meds which worked but the morphine would not work on the pain. it even took the fluid ball from my elbow away, it was so weird leaning on this ball that would move right from under you.

my new neuro had new mri's taken because he said the ones I had from Philly was in poor quality. So I don't see him again until next month so I will not see how they came out until then.

[SallyC]

Thanks for the update Shadi. Please let us know what your new Neuro has to say, after your MRIs are read. I hope you get the answers you need, to move forward with treatment.

Best of wishes.

[Debbie D]

Keep us updated...prayers for relief sent yr way

[Shadiyah]

Originally Posted by SallyC

Thanks for the update Shadi. Please let us know what your new Neuro has to say, after your MRIs are read. I hope you get the answers you need, to move forward with treatment.

Best of wishes.

Well SallyC I never wanted to have a treatment I was DX in March and it is now in my chart because I didn't want meds. I don't see how they are going to help me at this point after reading how you all are using them and what they are suppose to do. I am on a lot of meds now and I don't want anything else. I am find with just controlling my pain that is what I care about the pain.

Now that I am starting over and I am running out of my meds the pain will be back full force until the new doctors can say what plan they want to go with. I am just amaze how I went from not being able to get out the bed to this. this is my first time ever going in remission. I sleep all day and never get out of the house because by the time that I do wake up everything is close lol

[Debbie D]

Wow you sound like I did when I was dxd with fibromyalgia...unrelenting pain & fatigue...you might want to check that out also...

[Shadiyah]

Originally Posted by Debbie D

Wow you sound like I did when I was dxd with fibromyalgia...unrelenting pain & fatigue...you might want to check that out also...

they say I don't have it but some times that pain just hit any where and the muscles in the legs I don't understand and one time it was the shooting pains in the knee all day. I just laid in the bed crying because the morphine or oxycodone didn't work.

[NurseNancy]

i'm sorry you're in so much pain.
sounds like one thing you need is a good pcp. someone who will listen to you and validate your complaints. then you need a good neuro. if you don't like the dr contact your local MS society and they'll send you names of drs.

sounds like the drs need to get to the real reason for the pain.

keep us posted. be calm when you see the dr and write your Q's down.
i hope he can help you.