I can relate
This is my first concussion and it is devastating on the body & soul all together....Liar I been called in my search of a over a year for diagnosis! I got very angry and went on a one way ticket to hell....Luckily I stayed alive and free to get off that ticket to finally find one Dr that had a piece of compassion for me....
After I went into numerous Dr offices sounding Drunk (but was sober) and sent home empty handed, no hope, no direction, simply maybe some addictive prescription in hand that I would tear up and flush down toilet.....these Dr's basically were telling me to get back on my impulsive one way ticket being a threat to my soul.
Now in result from this I am emotionally a wreck amongst the long list! "But I suppose to make this positive change to get better" or to make therapies have a better result....
Well I think the hardest part is letting go of all these Dr's that helped me become a worse mess then just a straight diagnosis of a TBI/PCS!
The first thing I have learned in this new life of a month is "If it's not their problem, no one cares" Sad but true reality of life in any kind of situation!!
I am not trying to be a negative Nancy at all....I as well have had a horrible week with this "new"life....But at the end of the day I have to say thank you to all of this support group because we are all humans still and we all can relate to this complex syndrome....I do not know what I would do if I did not find you!
Rio I hope today goes better then before....and be strong to keep fighting with whatever result good or bad....I will be looking for your result post
What Happened: In 2011 I was in a MVA
Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems.
Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention
Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks
Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation.
~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~