Originally Posted by Leesa
So which one is it -- Chiari malformation or herniation of tonsils?
I went to my dr yesterday, It is a chiari malformation... it is just a different name for a brain herniation, or cerebellar tonsillar ectopia, have found out that most of the time you are born with it and it is not symptomatic, however, having a car accident, or "whiplash" or an injury to the spine can bring on the symptoms.... this is apparently where most of my pain is coming from, and most drs are not familiar with it... When you have one of these, if you look at your mri from the side veiw and draw an imaginary line at the bottom of your brain and cross over the spinal column, there should be no part of your brain that goes down into where your spinal cord goes... It is the back part and if you look at my images you can see that the back part of my brain or "cerebelum" decends down into the spinal column... This is also made worse by epidural steroid injections if they hit your cord, b/c the leak of csf (cerebral spinal fluid) causes it to be pulled down further by the change in csf flow.... Thus causing more painful symptoms.... So I finally got my answer, dont know happy I am with it! But thanks everyone for trying to help me get to it!