Quote:
Originally Posted by EE03
I go every three months for injections. I have two different PM docs and one told me the only way to control ON was to get the injections every 3 months. I told the second PM doc what the first one said and he finally started doing it and I'm in better shape than I was previously. Right now I'm not doing too good, but I'm less than a month out from my next round of injections. Get your PM doc to schedule them every 3 months and see how you fare then. I still have the headaches and the pain, it just doesn't seem to get as bad as they previously were. Best of luck to all of us that deal with it.
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hiya EE03 you must have a pain management team very much unlike mine and you must be very lucky as, Mine told me i am now only allowed 2 per year as they are so expensive. over the last 3 sets of injections they have done a procedure, not sure what its called but they send pulses through the nerves as well and to be fair between the GON and the pulses they are lasting nearly 6 months now. have you spoken to your team about medication as well. my gp gives me diazapam if the pain get really bad where i cant cope, other medications i am on which do help are carbamazapine, co-codamol and omperazol, (the last one is just to help with stomache asid which is comon when on lots of medication) but try medication as well. hope this helps
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