Originally Posted by EE03
I go every three months for injections. I have two different PM docs and one told me the only way to control ON was to get the injections every 3 months. I told the second PM doc what the first one said and he finally started doing it and I'm in better shape than I was previously. Right now I'm not doing too good, but I'm less than a month out from my next round of injections. Get your PM doc to schedule them every 3 months and see how you fare then. I still have the headaches and the pain, it just doesn't seem to get as bad as they previously were. Best of luck to all of us that deal with it.
hiya EE03 you must have a pain management team very much unlike mine and you must be very lucky as, Mine told me i am now only allowed 2 per year as they are so expensive. over the last 3 sets of injections they have done a procedure, not sure what its called but they send pulses through the nerves as well and to be fair between the GON and the pulses they are lasting nearly 6 months now. have you spoken to your team about medication as well. my gp gives me diazapam if the pain get really bad where i cant cope, other medications i am on which do help are carbamazapine, co-codamol and omperazol, (the last one is just to help with stomache asid which is comon when on lots of medication) but try medication as well. hope this helps