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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

Fatigue Info...

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Old 05-14-2012, 04:18 PM   #11
Eowyn
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Are you taking vitamin D supplements? Dr. Nedley found that I was low on Vitamin D and gave me a 50,000 IU megadose to kickstart me, and now I take 4000 IU every day.

Are you taking anything or doing anything for the inflammation?

Are you sufficiently hydrated? Even mild dehydration can cause fatigue and brain fog. As a general rule of thumb, you should drink half your body weight in ounces of water each day, plus an additional 8 ounces for every hour of exercise. For example, a 100 lb. person should drink 50 oz. of water per day, and 58 oz. if they exercise for an hour.

How is your sleep/wake schedule? You might consider some light therapy to help get your circadian rhythm regulated.

All that said, sleep disturbances and fatigue are still the last thing I'm struggling with. I just do my best to stay awake during the day and sleep at night. Some days I make it, some days I crash at 4 PM.
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38-yo female with mTBI and PCS after sledding accident 1-17-2011

Was experiencing:
Persistent headaches, fatigue, slowed cognitive functions, depression
Symptoms exacerbated by being in a crowd, watching TV, driving, other miscellaneous stress & sensory overload
Sciatica/piriformis syndrome with numbness & loss of reflex


Largely recovered after participating in Nedley Depression Recovery Program March 2012:

.


Eowyn Rides Again: My Journey Back from Concussion

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Old 05-14-2012, 06:11 PM   #12
camyam73
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I have a semi related question... I'm on nortriptylene, and now that the dose has gone from 10 mg to 25, I'm finding that I am VERY tired... will this pass? Should I sleep, or should I try to make myself push through it?
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Feb 24, 2012 - Slipped on a large puddle of ice at work, hitting the back of my head. No loss of consciousness, so I assumed I'd be back at work within a few days. I was wrong.

When resting, symptoms are low. With exertion, I still suffer from fatigue, migraines, vision problems, problems thinking or reading, troubles sleeping, issues finding or getting words to my mouth when the headaches are bad, tinnitus, and thyroid issues which I think are due to the concussion. Seen one specialist, and now a few others through insurance review of my case. Hoping for further treatment.
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Old 05-14-2012, 06:16 PM   #13
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Yeah, when I was on amitriptyline, I couldn't stay awake for the first few days. It did get better gradually over time as I got more used to it. I don't see any great advantage to trying to stay awake through it.
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38-yo female with mTBI and PCS after sledding accident 1-17-2011

Was experiencing:
Persistent headaches, fatigue, slowed cognitive functions, depression
Symptoms exacerbated by being in a crowd, watching TV, driving, other miscellaneous stress & sensory overload
Sciatica/piriformis syndrome with numbness & loss of reflex


Largely recovered after participating in Nedley Depression Recovery Program March 2012:

.


Eowyn Rides Again: My Journey Back from Concussion

.
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Old 05-16-2012, 10:56 AM   #14
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Just an FYI - I went to get the vision therapy evaluation yesterday and the Dr. said that my eyes are overcompensating and that it's overly draining my energy by doing so - the way my vision is trying to work is taxing my brain.
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Old 05-17-2012, 08:24 PM   #15
kayley
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I found that if you are having a hard time falling asleep at night there's a supplement called melatonin. Can get it over the counter and it works like a charm! No drowsiness in the morning either, which is great! If that's not an option, my neurologist told me that any rest is good rest, if you don't sleep until 1am and then nap in the afternoon, whenever you can is great! Juggling school and/or work is never easy when you're fatigued as many people here can tell you but as others have said it's your brain telling you your body needs less activity (even though doing nothing drives me insane! :P)

Hope that helps!
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Old 05-20-2012, 10:06 AM   #16
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Thanks for all the suggestions. It is so nice to have a forum like this to bounce ideas off of.

Eowyn,
I am getting B12 injections every 2 weeks now (through my own GP) and I am also working on bringing the Vitamin D up. I believe I am staying hydrtaed but I was not told to take anything for the inflammation?

Infact, whenever I ask what type of nutritionals I should be taking, I'm told by the docs (WC) it wont really make a difference???
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Head Injury 10/2011. Diagnosed with contusion/concussion....Now PCS with Tension/Migraine combo headaches.

Symptoms: focus/concentration issues, short term memory issues, nausia, dizziness, sleep problems, noise/light sensitivities, extreme fatigue, irritability, vision problems, slow processing, tingling in extremeties and a few more I can't remember.
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Old 05-20-2012, 11:10 AM   #17
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Well, MY OPINION ONLY, the doctors can say whatever they want, but nutrition is the thing that seems to have made the biggest difference for me.

I also had elevated inflammation markers. Dr. Nedley said that the vegan diet should help reduce it, plus I could take algal DHA/EPA supplements to help speed the process. I am supposed to get re-checked in about another month but I can already say that my muscle aches and pains are MUCH improved from what they were.

I think that hot and cold water treatments may also assist with this as it increases circulation throughout the body and it seems to me that that would help the body clear out toxins or inflammation as well.

Getting your vitamin D up to normal may help with your sleep issues. The body needs both calcium and vitamin D present in order produce melatonin. If you are deficient in either nutrient, it can interfere with being able to fall asleep or stay asleep through the night. So if your vitamin D was very low, that could be another reason to ask about a megadose to help get you up to normal quickly.

Good luck! Keep on keeping on.
__________________
38-yo female with mTBI and PCS after sledding accident 1-17-2011

Was experiencing:
Persistent headaches, fatigue, slowed cognitive functions, depression
Symptoms exacerbated by being in a crowd, watching TV, driving, other miscellaneous stress & sensory overload
Sciatica/piriformis syndrome with numbness & loss of reflex


Largely recovered after participating in Nedley Depression Recovery Program March 2012:

.


Eowyn Rides Again: My Journey Back from Concussion

.
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Old 05-20-2012, 11:53 AM   #18
EsthersDoll
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I know from personal experience that allergies can cause inflammation. So make sure you know what you're allergic to and avoid those things - you can even get tested by an allergist if you're not sure. And get the environmental allergies that affect you under control by keeping dust out of your house, running the AC instead of opening the windows and/or taking medicine.
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Old 05-20-2012, 01:35 PM   #19
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Quote:
Originally Posted by Eowyn View Post
Well, MY OPINION ONLY, the doctors can say whatever they want, but nutrition is the thing that seems to have made the biggest difference for me.
My fatigue reduced a lot when I really became obsessed with nutrition and exercise as well. Hard to tell exactly what the cause was but the nutrition certainly seemed to play a big part.

This in turn was catalysed by what seems to me now to have been an improvement in insight and goal-directed behaviour: for a long time I was kidding myself that there was no point making drastic changes to diet etc because 'I might be better soon anyway'. This now seems totally crazy given how sick I was and I can only put it down to the PCS clouding my judgement.

Anyone with a TBI who is thinking like that, try and snap out of it - your brain injury can go on affecting your judgement far longer than you realise - so get on the nutrition wagon NOW it seems to really help
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mTBI March 2011.

Now feel pretty much completely recovered, a recovery which took around 13 months. Still being careful with lifestyle eg making sure I get lots of sleep, eating brain friendly foods etc. Will not be returning to contact sports or alcohol ever.

"What does not kill me, makes me stronger."
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