Qutenza capsaicin 8% for CRPS pain

[gabbycakes]

Originally Posted by ann237

Greetings I am actually having the treatment done this week for the first time at my pain specialists office. I thank God as being a medicare pt. and medicare will not pay for it because it is so darn expensive, that my pain Dr told the rep listen she is going to be like the test subject and because of that you should provide the treatment materials free of charge...well guess what? They agreed. It is a treatment that has been used on those with shingles, and has provided them with up to 3 months of relief, I understand the risks, and just like everything else there are risks what one person experiences may not be what another does, ie ketamine infusions some have had great results while i have seen someone that has been in a wheelchair now for over a year and was in the hospital for 4 weeks after the first treatment. I have a scs that some swear by but each time i use it my pain levels go even higher if that was even possible. so time will tell, i just am praying for great things, not just for me but for all of us!!!!! Ann

Hi Ann,

Good Luck. Please let us know how it went and how your are feeling.

Gabbycakes

[lovefamilypets]

Originally Posted by ann237

Greetings I am actually having the treatment done this week for the first time at my pain specialists office. I thank God as being a medicare pt. and medicare will not pay for it because it is so darn expensive, that my pain Dr told the rep listen she is going to be like the test subject and because of that you should provide the treatment materials free of charge...well guess what? They agreed. It is a treatment that has been used on those with shingles, and has provided them with up to 3 months of relief, I understand the risks, and just like everything else there are risks what one person experiences may not be what another does, ie ketamine infusions some have had great results while i have seen someone that has been in a wheelchair now for over a year and was in the hospital for 4 weeks after the first treatment. I have a scs that some swear by but each time i use it my pain levels go even higher if that was even possible. so time will tell, i just am praying for great things, not just for me but for all of us!!!!! Ann

Hi Ann,

That is great that you were able to get the patch at no charge. I know all of us struggle with finances and any doctor willing to make that burden a little less is one of a kind.
Please let us know how it goes! We are all looking for new treatments that are effective.

[Treethree]

I have CRPS and have had three qutenza treatments. If your doctor does peripheral nerve blocks, the patches are almost painless. There is some pain afterward, but its manageable often without painkillers. If the peripheral nerve blocks are intolerable for you, try lidocaine cream beforehand, and then go for the blocks. That at least gets you a little numb before they put a needle in you. The qutenza has been a lifesaver in eliminating my burning pain.

[umans33]

Just tried patch 2 days ago. Application and removal are very traumatic to hypersensitive areas. I will let this group know how it works for me.

[RubyCat]

Hello everyone:

I am trying the patch this Friday. I have CRPS in my right leg and foot, and some type of neuropathy in my neck/upper extremities. I will probably just try my neck to start with, since I am nervous to try Qutenza on my CRPS limb without a block. My doctor did not suggest a block but I think I will request one after reading people's comments.

My question is, for those of you who felt a benefit, did the patch only relieve the burning pain? I also have aching/soreness and tingling, especially with my neck.

Thank you!